As I am new here, I would like to explain my issue in detail. I inherited F.A.Ps and had my large intestine removed 26 years ago. Six years ago, I was advised by my surgeon that a bunch of polyps were impeding on the cancerous side. This entailed the J-Pouch procedure, which I had for 8 months until the J-Pouch was connected. Life was normal as possible under the circumstances until 5 weeks later, I noticed that my motions had changed, became more regular, and more painful. After many interactions with my surgeon, antibiotics, and numerous types of creams, there was no success. I persevered with the pain for 5 years, which was quite draining mentally. My sister advised me to see her surgeon, as this is a genetic disease all my siblings inherited. I did this, and he advised I had pouchitis, which was never mentioned by my original surgeon unfortunately. On his advice, I had to have a permanent ileo. I had the normal fatigue after a general anesthetic, but the fatigue was festering to a zombie state where my legs felt like anchors. I had numerous blood tests, and all my levels were normal. I have spent a lot of money on professional help, both physical and mental, to no avail. The only thing that gives me any motivation to get out of bed is opiates (hate saying that), which I am trying to wean off. If any of my ostomates have experienced this, some advice would be greatly appreciated as I feel stranded. I would rather listen to someone who has experienced it rather than someone who has read about it. Thank you.
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Hollister
Ostomy surgery is stressful both for the patient and the caregiver, and creates a major life change for both people in a relationship.
Learn how to care for your loved one, while still taking care of yourself.
Learn how to care for your loved one, while still taking care of yourself.
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Hollister
We sat down with two influential people in the ostomy community, to find out how they cope during challenging times.
Read what they had to say.
Read what they had to say.