I have had my ileostomy for three years now and still have not gotten used to it. If I eat after 2pm in the afternoon, I am up all night having to empty my bag or in fear that I will have a break because a thicker consistency will break through the barrier. This ensures that I only eat once a day really and I am constantly hungry. Also, I have yet to figure out which product will work to make sure I don't have breaks due to thicker output and how to ensure my skin around the stoma is not sore and burning from a very liquid output. My stoma nurse was not as helpful as I would have liked and now I feel like I am alone in this. Anyone out there who has had an ileostomy for a while and has mastered these issues? Any suggestions would be very much appreciated.
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Your stoma care nurse can be a valuable resource when you need help.
Learn about the common issues and symptoms that warrant a call for assistance.
Learn about the common issues and symptoms that warrant a call for assistance.