My daughter, age 10, is a recent ostomate (ileostomy). We have had a lot of trouble finding the best appliance for her due to size, activity level, and spotty home health nurse help. We're waiting for our first order of what we think is the best system, and meanwhile are making do with samples that the home health nurses can bring to us. The main problem is that they keep leaking at night/early morning while she is sleeping. We wake up to a nasty mess that requires 45 minutes of clean up, etc. The leaks seem to occur underneath the barrier seals that we're using, and mostly seem to occur when there is a lot of gas in the bag. I'd appreciate any tips longer-term ostomates have on how to prevent nighttime leaks. Do you avoid eating past a certain time? Do you wake during the night to empty/vent? Do you sleep at a slight incline? I am hoping the better products I've ordered will get us past this, but would also like some relief in the meantime.
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We conducted a survey to better understand the impact that living with an ostomy has on sleep.
Learn the results of our ostomy sleep survey.
Learn the results of our ostomy sleep survey.
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Your stoma care nurse can be a valuable resource when you need help.
Learn about the common issues and symptoms that warrant a call for assistance.
Learn about the common issues and symptoms that warrant a call for assistance.