When I was 20 I inherited a rare neuromuscular
disorder. The nerves overstimulate otherwise
healthy bowels and cause 12-25 BMs everyday,
including 2-3 overnight. I am continent but get
very little warning, so I always have to be near a
bathroom. I always have small BMs that vary
between hard and soft stools. It usually takes 15
min just to have one BM. I also have frequent
painful cramps that cause sweating and shaking.
The condition is debilitating but not actually
dangerous.
In the last 5 ...
Hi Peeps
I hope someone can put me straight on this topic.
I will at some stage have to have a colostomy for
enduring FI following multiple surgeries on rectum
for disease and recurrant fistula. I have now been
told I have bladder and bowel (no suprise there)
prolapse. This means the clock is starting to tick
for an op of sorts.
Will they do the bladder hook up op at the same
time as the colostomy? I would much prefer it if
it was all done in one hit but have not had the
chance to speak to ...
Have not been on this site for awhile. Had a
successful reversal surgery over a year ago. All
went well and am back to normal. Thanks to all for
the prayers and support.
Robert from OC CA.
I just had to share this. I just started
colostomy irrigation. I was always getting fecal
impactions that were very painful. By irrigating
I don't get the impactions. I used to take
MiraLax, which would take 4-5 days to work and
even then I would not be fully emptied out. I
have to say irrigation is not for everyone. On
YouTube there is a video of a man from (I think)
Australia who irrigates. His video is very
informative. Irrigation even allows me to wear a
stoma cap instead of a pouch ...
I'm over 2 years down the line from my stoma, and
still hate "Colin" with a vengence,
still smelly, painful and a nuisance, but a few
months ago after getting a bad cold, I sneezed
and had terrible pain, but that's sort of normal
for me, as I'm a paraplegic, however , since then
"Harold" appeared, and now sticks out
about 5 inches on top of my horrible fat tummy.
When I eventually showed my GP she told me to see
my wonderful stoma nurses at Glan Clwyd Hospital
and they conf...
Hi! I am considering having a colostomy and would
like to know the good, the bad and the ugly. I
have a spinal cord injury at the C6-7 level so
have no control over my bowel. It has been 16
years now and I have been manually evacuating my
bowels, but now things are changing and I am
considering a colostomy. Right now I do manual
evacuation every other night and it can take up to
2 hours to complete so it really cuts into what I
can do socially. I am hoping that the colostomy
will give me mo...
hey there everybody, Im looking to hear from
anybody who had the surgery to remove the anus,
and also had a colostomy done at the same time...
my wife Jenny was told today that she needs to
have this done due to a anal stricture and
diversion colitis on her stoma. I'm looking for
info on post Op recovery, what to expect, what to
look for and so on, any info will help
tremendously !! send it to dentalguy22 thank
you, and I hope to hear from you who had this
done, soon!
Dg22
Hello everyone,
I had a question about reversal of a colostomy. I
have had my colostomy since I was born and had it
reversed just a year into life. Then after another
year or so things were not working and I was
getting enemas and rashes so they gave it to me
once again. Now at 24 I want to give it another
try and see if it's possibly. Does anyone have
stories of having it their whole life and then
getting a reversal and hopefully successfully??
I also have something called VATER syndrome, i...
Had my colostomy reversed as well as a colostomy
hernia repaired a few months ago after having it
for around six months. Re connect surgery was
successful and I am feeling pretty normal. A very
bad case of diverticulitis brought it all on. I
ignored a bad stomach ache that finally turned
severe. I spent a month total in the hospital on
strong antibiotics attempting to clear up the
infection to no avail. My colon ruptered during
the third week and had to have a section of colon
removed. Had I loo...
I am fairly new to this site and have posted
comments to other's threads and now am posting my
own story. My son who is 38 years old and
developmentally handicapped is having his reversal
done on Monday, March 26th.
He is pretty nervous about this but happy to be
having it done. It has been a very long road for
him since August 18/11 when he took extremely ill
with Fournier's Gangrene and had massive abdominal
surgery on that date. They did a transverse to let
his rectal area heal. His spincte...
Is this much trouble comon place?
In Feb 2010, they discovered a non-cancerous tumor
between my colon and my bladder. I also had
diverticulitis.
They removed a the tumor and 8 inches of my colon
in May 2010. Four days later my colon came back
apart. Emergency surgery and I woke up with a bag
on my stomach. I was in the VA hospital for a
whole month.
I also lost 50 pounds while I was in the hospital.
I went from 215 pounds to 165. Great way to loose
weight, but I don't recommend it to anyo...
Hello all,
I have a permanent colostomy since 1983 due
to rectal cancer (just starting to get used to
it!!!) Seriously it does not give me much trouble,
skin problems sometimes, but soon remedied,
irrigate from time to time, when the fancy takes
me or if I wish to be bag free for a special
occasion, i.e flying on holiday, business in
another country etc. Six months ago was diagnosed
with polymyalgia rheumatica; prognosis about two
to three years. The medication for this condition
is Pre...
Hi Everyone. I had my colostomy reversal on Jan.
30th and am still in the hospital. All indications
so far are that it will be successful. The pain
isn't as bad as the initial surgery in October so
I am hoping my recovery will be better as well. I
had a low sigmoid ostomy following a diverticular
abscess that would not respond to draining or
antibiotics. It has been quite an ordeal. I will
keep you posted on my daily progress if that would
be helpful to those of you who are scheduled for
this. ...
My reversal and hernia surgery is tomorrow, Feb
3rd! I've been on the clear liquid diet since
yesterday at 4:00 so I'm feeling quite hungry
about now. It's funny how food looks and smells
so great when you can't have it. I'm nervous and
anxious for tomorrow to come. I pray all will go
well and all of you on this site have helped me
with all of your encouragement and information. I
am truly thankful to you all. I'll post again as
soon as I'm able after my surgery and let you know
how it all...
Hi I am 42 years old I have a supra pubic catheter
and have been told by my colorectal surgeon that I
need a end colostomy for nerve damage to bladder
and bowel. At the moment I have to manually
evacuate my bowel which is horrendous a have three
surgeries to repair pouches in the anterior and
posteria vaginal wall. I have been told they can't
repair it anymore and now need the colostomy. I
have been told it is no different to having
catheter. I need to ask and get some answers to
questions regar...
This is the first time I have posted on this site.
I've been reading it for a while and all of you
have helped me feel less like a freak and given me
hope. I started with this whole thing last May
with pain which I chose to ignore because I was
afraid of cancer. Many people in my family have
had cancer and I was three weeks away from my
son's wedding.
When it got bad and I went to a specialist, he
said he couldn't believe I was still functioning
because I had an abcess which was infected. ...
I had emergency surgery a week ago. Had a portion
of colon removed due to rupture from
diverticulitis. Released from the hosp on Friday
with only a small amount of liquid output from
stoma. Since I've been home, I have been eating
more solid foods but there has been absolutely no
output, besides a small amount of gas. No liquids
or other output. My appetite is terrible because I
feel too full to eat. How long does it take to see
output? I still have cramps and some abdominal
pain, but my incisio...
Happy New Year to everyone :) last week I saw this
Article and I just wana see how many other people
heared of it.??
http://ostomyland.com/mainsite/2011/12/the-end-of-
the-colostomy-it-appears-to-be-true/
I am a neebie and was wondering if anyone has a
colostomy due to a rectovaginal fistula. I have
had the colostomy since June 2007 and have tried
on 4 different attempts to have the fistula
corrected. In January I am due to have another
repair attempt using the gracilas muscle from my
leg, then after recovery and if it holds, have the
colostomy reversal along with a hernia repair. I
am very apprehensive about this attempt to repair
and really wonder should I go through with it or
just keep the co...
Hi all, I am a newbie, but i have been reading all
the posts that i can, as i need to hear about
otheres problems so mine may not seem so bad. I
had emergency surgery in 2009 for a blockage in
the intestines, which turned out to be a cancerous
tumor. I woke up 7 days later with severe
peritionitis and a colostomy. I was living in
Florida at the time, but after 8 weeks in rehab my
son wanted me to return to NJ to live with him and
hope to get better medical care up here. Well I
have done all ...
Hello, I was wondering if anyone has any
experience with colostomy guards or any protective
equipment , i have found some adds are quite
overstated. thanks, Bill
Night collection system for colostomy. I was
unable to sleep more than about 45 minutes without
having to get up and empty my colostomy appliance.
I have been trying to find a commercial product
like the night drainage system used for urostomy
patients but none exists for colostomy patients.
I made my own with respitory hose, Holister two
piece bag system, a large pickle jar, baggie,
rubber bands and tape. Has anyone found a
commercial product or created something similar?
Hi Everyone,
I am one of the silent followers on the site and
it is so great to read everyone's blogs even if we
don't ever answer. One thing that has been
concerning me for a while is that lots of folks
talk about eating or not eating certain foods.
After my surgery the colorectal nurse just said
not to eat too many salted peanuts in one go! But
no other diet advise was given. I don't think I
have had too many issues (aside from unladylike
amounts of wind in the first few months but my
bud...
Had my colostomy reconnected 6 weeks ago after
having a bag for 5 months. Everything is close to
back to normal. I am so grateful for all of the
concerns and prayers.
Hi, does anyone out ther have any experience of
urine problems after a colostomy. I had a bladder
fistula removed at the same time and just wondered
if anybody also had problems in this.? The main
problem is that it goes absolutely everywhere and
I hadn't mentioned this to anybody until this
morning when I was moaning to a friend about it,
and she used to care for a lady that had the same
problem after having the op, so it made me wonder
if it was a common problem. If so, any solutions?
Th...
Had reversal 6 mos ago- still sucks...but have
supplies to give.
60 Covatec closed end bags, flanges, adhesive,
travel bag, etc...
not a paying member, cannot advertise in class i
fie d s.
contact for details.....
Roseinky
I had an 'emergency' colostomy in May 2010, I was
told I had diverticulitis, turns out I had a
ruptured appendix causing periotinitis. I wore my
colostomy (or it wore me) for 11 months. I had the
reversal in April 2011, they also repaired a fair
sized parastomal hernia. Six months later, I still
have 'accidents', just when I think it's gas...I
have a mess. There is always a urgency when I have
to go, so knowing where facilities are is always a
top priority. Carrying extra clothes is a
neccesit...
Hello, I have posted before but have not had any
replies. I had my ostomy in 2007 so you would
think I had it just about down now. However, I
have had problems since the onset. First of all,
I have Irritable Bowel Syndrome and find that this
affects me as much now as before my ostomy --
maybe even worst. I have eliminated sodas, wheat,
milk, and several other things from my diet to try
and help with the many diahhrea episodes I have.
I recently had a hernia repaired and hoped this
would cu...
My surgeon tells me you can't get a reversal after
four years. Anyone know how long you can wait, i
didn't know there was a limit. Mine was done it
Dec 2005, he said i'm at a high risk and i have
three large hernias too from the surgery, which
makes my belly pertrude on the side. I still want
to have more information on this and maybe get
this done one of these days. I have Lupus, thats
what makes it serious to have the surgery, had a
stroke after the first surgery. Any suggestions,
thanks ...
Is there such a thing as an ostomy diet?
I am barely getting any output from my colostomy
in at least a month, and I have absolutely no
appetite.
Last year I was in hospital with what they thought
was a partial small bowel obstruction.
My "diet" has been small amount of baby
oatmeal and some coffee at breakfast: maybe cup of
soup for lunch. Small amount of yogurt, jars of
baby fruit.
I tried to eat small amounts of well-cooked green
beans with the carrots today.
I've tried to dri...
I have a friend who had a very serious case of
colorectal cancer. Much of his tissue was removed
leaving him with a colostomy. Are there any
clinical trials that use stem cells to grow new
organs in that area? Where should someone go to
have this procedure reversed?
Top Ten Slogans That Belong On Colostomy Bags
10. “My other bag’s a Prada”
9. “Niblet retrieval in progress”
8. “Is your colostomy bag full, or are you just
happy to see me?”
7. “Colon temporarily unavailable; busy as
Secretary of State”
6. “If you think this bag is full of shit, you
should meet my brother-in-law”
5. “Real men don't use gloves”
4. “The Lord is my ostomy nurse!”
3. “Contents: Starbucks Coffee Of The Day”
2. “Colostomy? Colosto...
I have a question to ask but its not for me its
for my friend.
I have urostomy and ileostomy , my friend has
urostomy and colostomy . He has phoned me for
advice because since yesterday his colostomy bag
is empty yet he is eating as usual.
Can anyone relate to this or give some comment . I
myself have never had an empty bag.
Your replies would be of great importance to me.
Thank you
Jim
Good morning all. Need some feedback please. I
will be commencing my one year anniversary the end
of the month with my colostomy.
Ended up in the hospital due to an allergic
reaction last week. Problem I'm having is with
the steroids and beta blockers etc, it is totally
drying my system out. My output is really thick
and seems like I have gas and I'm bloated all day.
I'm drinking LOTS of fluids to help flush but
I've never had this happen before.
Anybody out there ever have any medic...
I need some advice on what to expect and
encouragement. I have crohns disease which was
very active in the decending colon and rectum. I
had a permanent colostomy formed and my decending
colon and rectum removed with the hope that it
would cure all my problems. My remaining
tranverse colon was deemed to be unaffected by the
crohns. That surgery was two years ago and since
then the crohns has appeared in my remaining colon
and I also have a severe parastomal hernia which
is painful as I believ...
Hi, friends. I have been enjoying the updated
topics and reading through your posts and stories.
Though... I'm still looking for another family
(families???) who have a boy born needing a
permanent colostomy; or an adult male that was
born needing a permanent colostomy... just to
share stories that are similar and bounce
questions/thoughts back and forth.
Everyone's stories are so helpful knowing our
challenges with bags/changing wafers, etc. And my
heart rips when I read when some of ou...
If you are using the disposable pouch liners that
are flushable instead of a drainable pouch, you
can also use the small bags that people use when
walking their dogs and instead of them costing 20
cents a piece they cost 1.5 cents a piece and work
just as well. They are also biodegradeable. Just
cut the ties off and put them in the pouch just as
they come from the box and stretch them over the
opening of the pouch and snap it in place (for 2
piece systems and not advisable where septic tanks
are...
PICK-UPLINES FOR A GUY WITH A COLOSTOMY
[list=1:bbc534e873]
[*:bbc534e873]Will you help me test just how
active I can be withmy new Hollister?
[*:bbc534e873]Are you familiar with the powers of
Stomahesive as anaphrodisiac?
[*:bbc534e873]I'm already wearing protection, so
what are wewaiting for?
[*:bbc534e873]Wow, is my bag getting full or am I
just happy to seeyou?
[*:bbc534e873]Bet you've never met a guy who looks
good in atwo-piece before. . . .
[*:bbc534e873]Have you seen Guc...
Thank you to everyone who has already to responded
to posts. They have already been a huge help in
understanding the differences and what I'm
experiencing is normal.
My situation was suppose to be a simple
non-cancerous mass removal and reconnection. The
mass turned out to be from endometriosis which had
degraded the colon to the point it could not be
reconnected. The colostomy was never part of the
potential outcomes. I currently have two
challenges I hope someone has a story to
share...
...
Hi all, had my colostomy on the 1st Dec 2010 and
am just getting used to it now. It hasn't settled
down to any routine yet and I would be interested
to hear about any tips for diet and products and
about irrigation also have big problem with
pancaking which leads to blowouts any help would
be appreciated. Daydreamer
Hi
I am very new to the ostomy world and am finding
it all very amusing. I had an emergency colostomy
done on the 11th November 6 days after seeing a
specialist up at the emergency room at hospital. I
knew I was in deep trouble with constipation, but
I did not expect to have to have a colostomy as
the first choice solution. that spun me out! but
at that point I was at the shoot me or fix me
stage from the pain and that bullet was sure
looking attractive.
I was so upset and so confronted ...
I named my colostomy Lulu which arrived this past
April. I use the pre cut one piece colostomy bags
without any difficulty until lately. Now, I have a
stinging or burning sensation when I touch or
manipulate the appliance. Anyone have a similar
problem or solution. Any suggestions ??????????
Well here is the story I am 71 going to be 72 next
month. I had a infection and came out with a
ileostomy on one side and a mucas fistula on the
other. I had that for 3 months and was the 3
months from ____. The doctor got the stoma
pointing sideways so the flange would not stay on
and my skin blistered, so we went back in and he
gave me a colostomy where the mucas fistula was.
Everything has been greatbut have so many
questions and can't say that I have any use for
the sad support here. Ok the ...
Hey, it's Maryland Gal. I had my surgery July
13th. Surgery went well. Took 6 hours because I
had so many adhesions. My surgeon was able to
bring the small bowel through the same hole.
I had many other complications that kept me in the
hospital for 3 1/2 weeks. Had pluracy, a lower
collapsed lung. Then found out I had a blood clot
in my leg and was put on blood thinners. Well
doctors did not know nor did I, I had ulcers. The
first one I was put in the ICU and nearly bled out
and needed 5 ...
Hi , i am 18 years old and i had an emergency
colostomy done after a gun shot wound to the belly
im march. i am having the reversal done on 8/11/10
and totally dont know what to expect . i was in
coma while the colostomy healed so i really wish
to know what should i expect after surgery
CAN ANYBODY HELP !!!!!!
Hi all, I have posted before and I have to have
the rest of my large bowel removed due to a severe
stricture along with severe motility issues which
have caused me to be on TPN and do not allow my
colon to work. I know I have to get this done in
order to get off the TPN and try to lead a more
normal life and be able to eat again. All my
doctors and friends have said I should get this
done, so I will be getting my surgery date when I
see my surgeon on Thursday July 1st. Because I
have had so m...
I also live alone but I keep busy by playing
bridge with some wonderful friends.
I have had a colostomy for a year and a half. I am
now going in to have a morphine pump implanted in
my back for three herniated disc.
I keep busy and live in a condo. which I own and
love. I don't have any pets at this time but I
love all of them.
Susieq
Hi Everyone, me and my husband are going on
holiday on saturday, our last flight was very
embarassing, my hubby had a full english breakfast
before the flight and all the way home the smell
was really bad, a lot of the passengers was
complaining thinking the smell was coming from the
toilet ( thank god we sat near the front) I
thopught I would make some sandwiches to take with
us, but not sure what to put in the sandwich that
won't give my husband bad wind.
Thanks in advance
Shakysgirl
Interesting! There is a lot of publicity nowadays
...
Girls Aloud star Nadine Coyle has said she wants
to help "smash the taboo" that surrounds
people who have to wear colostomy bags.
The singer, who is launching a solo career later
this year, said the "pretence of body
perfection" makes it difficult for patients
recovering from bowel surgery to feel sexy or
confident.
Ms Coyle spoke out after her friend, hairstylist
Connor Grant, had an operation in January which
...
I had an attempted colostomy reversal, they found
yet another leak and now I have an ileostomy. I
am having trouble getting my bag on before any
output and it's made the skin below my stoma very
red and raw. Anyone have tips or suggestions?
Thanks in advance!
Hi, I am new to the site and had a few questions.
I had to have a colostomy just over a year ago due
to a doctor screwing up my back. I have cauda
equine syndrome ( No bladder function and my
nerves to my rectum stopped working) Since the
colostomy I have had two revisions. For some
reason my stoma keeps closing up. The doctor tried
to put a scope through it to see what the problem
was, but they could not even get the scope in an
inch or two. I also have colonic bowel, (very slow
moving), b...
Hi Guys and Gals ....
A friend of mine is the Editor of Tidings, the
Colostomy Association's magazine...
The magazine represents the interests of those
living with a colostomy, those working in the
field of stoma care and industries involved in
providing stoma care products.
The Autumn issue of Tidings will focus on pain and
its management - they often have enquiries to
their helpline about pain eg rectal pain, phantom
pain etc ......
The Editor (Jane) is looking for articles for
the...
I was very unwell yesterday. At midday I started
having terrible contractions and my stoma stopped
working. Then the pain increased so that it was a
constant pain for 1 hour. Then I threw up and the
pain lessened only to increase agin within 10
minutes This went on till 9pm when air finally
escaped from the stoma and the pain stopped.. This
scenario happens every month or so. I use to go up
the hospital where they put me on morphone and
keep me in for observation in case the bowel
bursts but I ...
I found this article today on Boston Herald.
Interesting!
Elvis Presley, the King of bacon, banana and
peanut butter sandwiches, didn’t die of a heart
condition. He succumbed, on the toilet, to chronic
constipation.
That’s the word from Presley’s longtime friend
and personal physician, Dr. George Nichopoulos,
who said The King’s insides were All Shook Up -
and not in a good way.
“We didn’t realize until the autopsy that his
constipation was as bad,” Nichopoulos, author of
...
Help
I eat a good diet well balanced diet fruit and
vegetables, chicken ,fish. All foods which are
healthy. I also drink lots of water and
decaffinated Tea. But still I suffer from
constipation. I have been taking 2 MOVICOL a day
for about year. It does not work. Can people tell
me what works for them ?? Preferably a food
suppliment or herbal. Someone mentioned
unprocessed wheat bran but I cannot find it in the
shops. The constipation can cause me excruciating
pain like my bowel has twisted. I ...
Hi is there any one out there who has both a
colostomy and a urostomy? I am a 40 yr old female
and have a permanent colostomy and am maybe
needing surgery to have a urostomy also...Any
thoughts would be appreciated............
Hi all...first I want to mention what a great site
this is!! I'm just new and poking around, but
everybody is so supportive and lovely...I wish I
found you all earlier :)
I have a brand new colostomy and some questions
with respect to diet. I had an ileostomy
previously, but this is very different! I'm about
8 weeks in now, and the output is liquid almost
all of the time (my colostomy is behaving like an
ileostomy, actually!!!). I've added fiber,
restricted fluids, taken immodium...any o...
Hi friends, I need some help. I have had a
colostomy since Nov. 09' and a few weeks ago I
started having a "KNOT IN MY STOMACH"
feeling especially when I stand up, it's better
when I am sitting. Just wondering if anyone else
has had this feeling? Kinda feels like a
constipation feeling and my output has slowed down
some...(hope I am using the right terminology).
Can you take laxatives with a colostomy?
Thanks friends!
This video will help explain colostomy and
ileostomy surgery. Joy Hooper, RN, CWOCN &
Italo Santana explain the surgery in English and
Spanish. If you have any questions concerning the
information in this video, please contact me or
the United Ostomy Association of America (UOAA).
I went running and my colostomy almost disapeared,
it shrunk down
to almost nothing. I feel discomfort but no pain.
Is this dangerous?? Do I need to see a doctor?
Hi all, I need some advice I had a colostomy
reversal & hernia repair 9 weeks ago and all
seems to be settling down one or two small issues
but generally all seems to be ok. My question is
do I or should I use anything to hopefully stop a
reocurrance of a hernia . I am aware that I
should'nt lift anything too heavy. Many thanks
pippa
I was "diagnosed" with Fibromyalgia
several months ago. I just now began taking the
medication, because frankly, I don't have the
"tender points" and my muscles don't
give me problems; my large joints do. So I am not
sure if that's what I have.
My neurologist put me on Lyrica. I haven't decided
if I like it or not or if I will continue it.
Does anyone else out there have this same issue or
have you been diagnosed?
Hi Guys ........
It looks like I will need to make a decision
before long as to whether to have an ileostomy or
a colostomy which I will have to have for the rest
of my life .....(currently have an ileo...) I am
fortunate enough NOT to actually have any 'bowel
problems' per se as do many of you, but wondered
if anyone out there had any experience of having
both? What are the pros and cons, which is the
easiest to manage etc etc.... Also whether or not
to have my rectum removed? How does tha...
Hi, just to keep you all up to date I had my
operation on the 14th October was in hospital for
5 days I have done very well all seems to be
settling down obviously tender and sore.
I have been told not to lift anything for a while
and certainly to avoid anything heavy.
However I do have a question when you suffer with
a hernia and you get it repaired and you give it
plenty rest over the weeks/months can you carry on
as normal in other words are you able to lift
things that could be regar...
Hello, my name is Dee. This is my first time
writing in a Forum but I am so in need of someone
to talk to and to possibly give me some advice.
In 2002 I became very ill which I was told at the
time it was nothing although I was passing a large
amount of blood and couldn't keep anything down.
I was so bloated that I was going to the gym with
no luck of losing those 5 extra pounds. Well, I
landed up in Emergency with every possible test
done . I was told that my main organs were
shutting down...
My wife has had a reversal but has been finding
that even after 4 years she still has to
constantly visit the loo , making her very sore ,
we are unable to go for a walk any distance unless
there are public toilets nearby , we cannot go to
the theater or cinema , on our last visit to the
hospital she was asked if she would like to have a
colostomy which we are told she would only have to
visit the loo once a day or every other day , it
seems there are two types one with a plug or cap
and one wit...
I have three outlets in my stoma. One is an
iliostomy that is VERY liqued unless I take
immodium or something to slow down my gut. The
second is what they call a mucous colostomy that
for the most part just has clear mucous but from
time to time has stool. The third is a tiny
colostomy outlet that backs up and has resulted in
three or four ilius situations. The stool that
comes from there is large, very firm and dry.
Most of the back ups seem to come after I've had a
surgery or some pro...
Hi, there, I have responded to two mates with
questions on this subject so far. All I can say
is I had mine done July 1, 2009. I had the take
down on the colostomy, 2 hernias and what my
surgeon said was a 'tummy tuck'. He did extensive
surgery on me.
Was in the hospital 5 days until they are sure
there are bowel sounds. After I got home the
first few weeks were not the best. Not all my
problems were from the surgery though. Two weeks
after the surgery they took out the staples, told
m...
I've recently had a colostomy, and I'm having
trouble with the bag leaking all the time. I have
cerebral palsy and don't think that the doctors
and nurses are really taking into account that my
lifestyle is ver different because of this. Is
there anyone out there who either has CP or knows
someone who does who also has a colostomy?
Any advice on apparatus would be great, thanks!
Hi , my name is pippa and I am looking for advise
and other people's opinion on colostomy reversal
& hernia repair it will be getting done all at
the same time, which I think is good.
I had a colostomy last July through emergency
surgery its a long story so will get to the point
I had septicimia, septic shock, all my major
organs were starting to close down lots and lots
of complications anyway am having my reversal in
october. Not to mention I am very scared about the
whole thing but r...
Hey, I just realized that Lily Allen is singing
about Colostomy Bags in her 'Window shopper' song.
Here are the lyrics ... and the video:
The bottom feels so much better than the top!
So much better!
Nan you're a window shopper
Taking a look but you never buy
Nan you're a window shopper
You won't pick it up if it's over a fiver
Nan you're a window shopper
Get on the bus 'cause you still can't drive
Nan you're a window shopper
Mad as fuck, only just alive
You get up in the mo...
We are proud to present Joy Hooper's video on
'What is colostomy?'
From Joy:
As a Certified Wound, Ostomy & Continence
nurse, I feel that I have been given a very unique
calling and duty to provide care and education to
patients and their families. I view my nursing as
my own personal ministry, and it is by far the
most meaningful and enjoyable challenge that I
have ever had. I thoroughly enjoy every minute
that I spend giving patient care, teaching, and
helping my clients adjust to an...
Hi There
I am a 36 year old female married to a 39 year old
man who has a colostomy after being diagnosed with
colon cancer 5 years ago. Our lives are pretty
normal and we go about things the best we can but
once in a while the situation gets to me.
I don't know anyone else with an ostomy so I
wonder how other people deal with it.
I think that we have lost friends and a big chunk
of our social life since this happened. Not in an
overt way but subconciously over the years. I feel
its a little ...
Hi There
I am a 36 year old female married to a 39 year old
man who has a colostomy after being diagnosed with
colon cancer 5 years ago. Since he has had the
colostomy he has ended up in the hospital with an
abdominal blockage every year, 7-10 times a year.
Its really hard to say what triggers it, could be
stress, exhaustion, constipation, dehydration,
eating something bad, etc, etc. We never know when
it can happen and it comes on suddenly and very
fast. He usually gets very sick and has to go...
Apologies if I do this incorrectly-- I am not an
expert at posting. I am the daughter of a woman
who will be 100 (one hundred) years old next week,
and has had a colostomy for 9 years. She has
never had formed stools since the colostomy; the
best it has ever been for her is the consistency
of peanut butter as she puts it. In the last
couple of weeks she has gotten into a situation
--it started I guess when she was not having
bowel movements for several days, and then had a
series of very liqu...
hi there,
Anyone out there who has went through the reversal
of their colostomy. I have heard good and bad
regarding this. I think I would like to hear some
more of the good before I commit myself to have
this procedure.
The colostomy itself was not too bad except that I
had septia and peritonitis and almost died twice.
Now that that is all over and done with I am
scared to go back and have surgery again, even
though I hear it is not as bad as what happened
before.
If you have any po...
Hi all
was wondering if you can help me, i have a
colostomy now for 3 months and will have it for a
further 3 months and then will have it reversed.
I have been off work for these first 3 months but
will be returning next week and am absolutely
terrified of my stoma 'popping' at the wrong
moment like in a meeting etc - how does one
prevent this from happening ??? No one knows at
work about my stoma as dont feel confident enough
to explain it all to them as they all my age and
guys. Food wi...
Could I please have benefit of experience on stool
softeners? I am taking a new Rx med that is
really causing me problems. I am drinking lots of
water but I still need help! Naturally, I would
like something that doesn't create the opposite
problem. Thank you!
Hi all
I am new to this board and colostomy etc. I had
an operation to remove my endometriosis which went
wrong and they perforated my bowel and now I have
a temporary colostomy until May. It has just gone
8 weeks since I have had my colostomy and my stoma
nurse said that I have a small hernia above my
stoma. I then have been googling this online and
have come across a prolapse hernia etc? Is it
common for people to get hernia's? also I have
noticed since this hernia my stoma is pertrudi...
A FORMER NEIGHBOR CALLED THE FIRE DEPT. ON ME
BECAUSE SHE SMELLED INCENSE COMING FROM MY
APARTMENT
WHEN THE FIRE DEPT GUYS FOUND OUT THEY HAD BEEN
CALLED FOR SOMETHING SOOO STUPID THEY GAVE HER A
TICKET AND KNOCKED ON MY DOOR TO LET ME KNOW AND
ASKED ME IF I WANTED TO PRESS CHARGES FOR
HARRASSMENT. I SAID NO AND THEY LEFT.
AFTER THEY LEFT, I WENT TO THIS WOMAN'S DOOR, LET
THE AIR OUT OF MY COLOSTOMY BAG, KNOCKED ON HER
DOOR AND WHEN SHE ANSWERED I TOLD HER "NOW
YOU HAVE A SMELL TO *IT...
I am just reaching the point where I am able to go
out socially for brief periods of time and would
like within another month or six weeks to be able
to get through a six-hour plane trip. I'd like to
hear what people carry in their "emergency
kit", advice on what and how much should
always be with you, and what kind of thing you
pack it all into. I've searched but haven't really
found any useful advice on this topic...
I had a sigmoid colostomy on July 31st and am
currently home after skilled nursing care and am
having home health care (under managed Medicare).
During the first three weeks, I had a small amount
of mucous discharge from the "inactive"
rectum (my sphincter is slightly open) but no
serious problem with that. Then suddenly a couple
days ago I waked up and wondered why I stank so
bad! It had nothing to do with my pouch, etc., but
the mucous discharge had greatly increased and I
had to rev...
Everything I read says be careful not to get your
pouch wet, but no one has given me any explanation
of how to accomplish this when showering. I'm a
new ostomate and my "schedule" is not
predictable enough to risk showering with my pouch
removed! Any advice would be welcome.
hi my name is jenni and i am 30 years old. i have
had my colostomy since last august. It was last
resort after having surgery to try to correct a
prolapsed rectum. My surgeon said that the
sphincter muscles had gone competely. Anyway i am
now just about used to dealing with the colostomy
, although i have to change it more regular than i
would like-mostly three times a day. Is this
normal? Anyway my problem now is that i am
continually incontinent with my badder. I have to
wear prescription pa...
Hello Im Richard. I am a relatively new member,
but also new to using this message board. I really
need some help please.
Ive had my colostomy a long time and am used to
living with it now. However, I suffer from Urge
Incontinence, which was caused by the colostomy
surgery. Ive got by with a good system for coping
with it, but its worsening. Ive got the medical
side covered, been seen by urologist and about to
be seen in the continence clinic, but feel it
would really help if I could chat...
Dear friends:
I had surgery for colorectal cancer on Aug 22 and
have been recovering nicely since then. Since the
tumor in my descending colon was too close to my
rectum, the surgeon decided to remove my rectum
and replace it with a colostomy. Prior to surgery
I had full radiation treatment (23 sessions).
Everything went well, the effects were temporary
and I am left with 6 of the original 7 feet of my
colon. I use a colostomy bag (which can be quite
expensive, as you all know).
After tw...
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