I have an Ileostomy through Crohn's; which was
originally a Colostomy, until it went wrong again
- I've been an ostomate for five years anyway, and
I still cannot digest vegetables except mashed
potato (I can't even digest hash browns), and all
fruit just goes through me, as well as all dairy
except small amounts of block cheddar cheese. I am
in remission, but this still goes on day after
day, does anyone else have this problem? and if so
what do you do please. I cannot take vitamin or...
I gained a significant amount of weight since
getting my ostomy placed. What are some safe foods
that aren't going to cause weight gain but also
won't cause a blockage?
I have crohn's so fiber is a bit of an enemy and I
need to be extra careful with any fruits, veggies
or whole grains but I want some snacks during the
day that won't add on pudge!
I had a subtotal colectomy in Feb 2011 due to UC
and have recently had reversal surgery to have the
j-pouch formed. Im now 7 weeks post op, had a
problem with a couple of infections (a water
infection caused by the catheter and one at the
bottom of the incision) but these havent been too
troublesome, although I think the water infection
has reoccured. My main problem has been
consistency of the output. Im finding it extremely
hard to keep the output thick enough. Most days it
This is for us poor Obama subjects; American
citizens to wit: ME!
I just received notification that my food stamps,
(EBT), will be reduced by 10 per cent for the
month of November. That in itself is not such a
big deal, if that were the end of it, it would be
acceptable, BUT there was no assurance that the
benefit would revert back to the existing level
following the "temporary"
decrease." I wonder if this is just another
case of Obama helping us out?
I am having the colon, rectum and anus removed.
After the surgery what is the best way to start on
your food. Maybe did you start out slowly and
then add foods to it. Did some foods bother you
so you waited and tried the foods later after
healing. I know we are all different but just
Hi all - just undergone an ileostomy 2.5 weeks
ago, after only one severe bout of ulcerative
colitis (diagnosed with proctitis initially 18
months ago) severe bout did not respond to any
I am recovering at home but now have an infection
in my incision (22 inches long) and I believe
mucocutaneous separation of my stoma (not quite
all the way around). So although not major
complications, just more things to worry about
I have 2 questions for you all:
1) Mucocutaneous se...
A reader of our Digestive Disorders White Paper
asks, "What are the pros and cons of relying
on supplements to provide fiber in my diet?"
Here's what we suggest.
Fiber is a component of fruits, vegetables, grains
and legumes (a category that includes peas, beans
and lentils). Fiber can help prevent constipation,
and a high-fiber diet may lower your risk of
diabetes, heart disease and cancer. The two main
types of fiber are soluble and insoluble; many
foods contain a combination.
There are always so many questions here about what
foods to eat, what to do about gas, etc that I
copied a short list put out by my local ostomy
Foods that thicken stool
Bananas, rice, bread, potatoes, creamy peanut
butter, applesauce, yogurt, pasta, pretzels, and
Foods that loosen stool <o></o>
Dried or string beans, chocolate, raw fruits,
spiced foods, fried or greas...
Hello there, everyone.
Once again I'm compelled to ask a question about
how some of you handle a particular situation, i.e
My mother had irreversible illeostomy surgery
almost 2 years ago. Before she had the surgery,
she enjoyed going to the local YMCA to swim.
During the first year, she had some accidents, in
the form of the bag leaking, or falling off. She
now thinks she can no longer swim, and she
actually started to cry about this, recently.
Do any of you swim? I'm sur...
I have had a permanent ileostomy for 30 years now.
I have always had trouble with salad and fruits!
I love them, but lettuce and any fruits like
oranges, or pineapple etc. lead to out put
problems! What can I do?
Hi,just wondering if anyone else has very loose
output all the time?i had my ileostomy 5 years ago
and have always been loose.i dont seem to put any
weight on and have to get up around 4 times a
night to empty.i never seem to have any energy and
wonder if all the goodness out of my food is not
getting into my system?
since I got my ileo 4 years ago I always had a
problem with high liquid output from my stoma
which resulted in dropping 10-15 pounds at a time
and having to go back to the hospital and spending
a day or two getting an IV to put the water back
in.and this has happened at least a dozen times
around the world,I always used the excuse it was
the food I was eating in those places.after this
last time 2 weeks ago and I spent 4 days this time
my doc was asking me more questions about what I
I have recently been told that my bowel
resection/reversal is likely to be in September
this year which is earlier than I thought. Great
news but less time to lose weight before surgery.
surgeon says it will make things easier - want to
lose weight gained recently in any event. In the
past prior to ileostomy and gastro problems had a
lot of success with Slimming World which
essentially for those who don't know focuses on
excluding fat, sugar and refined carbs eg white
I read and lost a lisst of foods not to eat from a
fellow osteo today then lost before I had a chance
to print it. It was quite a comprehensive list
and I would like to have it. I know it was a
lady. Please help. Thank you.
Hello fellow ostomates,
This is my first time starting a new topic so
please bear with me if I did anything
I came across this new product (or new to me
anyway) that is geared toward people who for one
reason or other cannot eat solid foods. I know
that from my own experiences with UC and
frequently reading of others on this site having
difficulty with solid foods that it can be a big
problem trying to get sufficient nutrients without
risking blockages or simply during the ph...
Just wondering if any of you have tried the Paleo
diet and how your stomach has reacted? I do
cross-fit and have just started Paleo. So far my
Colostomy has had nothing but soft unformed
output. Very messy. Changing the whole 2 piece
system once a day and the bag at least 3x a day. I
think I can irrigate but I wonder if on this diet
my output would allow me. I have been an ostomate
for 4 years. It has been very traumatic and
haven't dealt with it really well. I'm sure no
one does. I tried ir...
Hi guys, well I have six months til I may or may
not be eligable for an end colostomy reversal.
I am so desperate to heal my colon from the
inflamation/ surgery etc and the chronic
consitpation that caused the perf, and im
desperate to try anyting that might help!
I am shaking up my diet, no more junk food for me,
and I'm trying the alkaline diet atm.. lotsa of
fruits and veggies, no refind sugar, no dairy, ( i
dont eat meat or fish anyway)
and i've added fresh veggie and fruit juicing
I am one of the silent followers on the site and
it is so great to read everyone's blogs even if we
don't ever answer. One thing that has been
concerning me for a while is that lots of folks
talk about eating or not eating certain foods.
After my surgery the colorectal nurse just said
not to eat too many salted peanuts in one go! But
no other diet advise was given. I don't think I
have had too many issues (aside from unladylike
amounts of wind in the first few months but my
[*:16da752d66]Hello! Have any of you ostomates
eaten sushi, sashimi, oyster or any shells! I'm
craving for Japanese food and havent eaten them f
almost a year! Please advise! Thank you
Is there such a thing as an ostomy diet?
I am barely getting any output from my colostomy
in at least a month, and I have absolutely no
Last year I was in hospital with what they thought
was a partial small bowel obstruction.
My "diet" has been small amount of baby
oatmeal and some coffee at breakfast: maybe cup of
soup for lunch. Small amount of yogurt, jars of
I tried to eat small amounts of well-cooked green
beans with the carrots today.
I've tried to dri...
What foods do you eat? Also I don't have a large
intestine so that compounds the problem.
What foods to stay away from that cause gas and
how does the gas come out, does the pouch expand
out, I know NOTHING about this. Consult is
Fri-13th, yeah!!!! I dread this and also is anyone
expericing acid..... I have alot of anal acid that
keeps me raw and in pain, do you think or does
anyone know if the acid will be like it is now
with an ileo? Thanks to all.
I am new to the land of ostomy and I feel the
Ostomy nurses don't share as much as I can read on
here. So I have a few questions...
Do I need to support the bag? i.e. Do I need to
wear a belt or is it okay to let the bag hang
freely? My stoma is situated such that I can wear
my regular under garments, however I notice that
there are garments which hold the bag. Is this
Does the stoma have to be protected? I was only
told that excessive rubbing would not be good.
I was given a...
been home 3mos, from hosp.
tried popcorn and no problems...so far, i did eat
caramel popcorn in hosp. now i remember
gained 15lbs - really dont want to gain all weight
i lost - 45 lbs
gained a sweet tooth as well
still waiting for AISH, financial income support
will always wake 3x nite to drain, so continue w
Imagine that you had won the following prize in a
Each morning your bank would deposit $ 86,400.00
in your private account for your use.
However, this prize had rules just as any game has
The first set of rules would be:
Everything that you didn’t spend during each day
would be taken away from you.
You may not simply transfer money into some
You may only spend it.
I had an appt with my surgeon and I can finally
eat soft food. Still on TPN until I can get to
normal diet. It is good to have something that
taste good. I have been getting stronger each
day. Some days worse than others. I will start
back to work very part time as a teacher two days
a week for just a few hours each day. I will miss
having my mother in law here helping. She has been
a God Send. Any suggestions from those who have
an ileostomy on how slow or what to eat/not to
eat. I know ...
Bikerboy and cockroach diet here, lol
I eat the same foods now that I ate before.But
whats really neat is meat comes out pure liquid.no
But no nuts ,no coconut,no pop-corn,nothing with a
shell,no skin (damn),and carrots you better
liquify these,and YEA!!!! no sprouts
the problem with a diet is everybody has one.For
me it was trial and error.
Hi all...first I want to mention what a great site
this is!! I'm just new and poking around, but
everybody is so supportive and lovely...I wish I
found you all earlier :)
I have a brand new colostomy and some questions
with respect to diet. I had an ileostomy
previously, but this is very different! I'm about
8 weeks in now, and the output is liquid almost
all of the time (my colostomy is behaving like an
ileostomy, actually!!!). I've added fiber,
restricted fluids, taken immodium...any o...
Hello, haven't been on here for awhile, so I will
fill you in on what has been going on with me.
Since my diagnosis of cohrones and UC in 07, I
have had several surgeries, colonoscopies,
sigmoidoscomies, and medication adjustments and it
got to the point where everything was affecting my
job performance. I had to resign from my job of
20 years. On top of everything, I just had
surgery done to remove my rectum, colon, and part
of my large intestines. With that in mind, I know
that my diet nee...
Piggybacking on Imperfects "Foods I
miss" -- let's list the foods that really go
down well. Might give others an idea of what to
Most pureed things don't cause a problem, so maybe
let's limit this to food that we eat non-pureed.
Me (ileo): Potatoes (no skin), rice, cooked
carrots, small amounts of chicken/ground
beef/turkey/fish, avacado, pasta, cheese, cheesie
puffs , white bread, cottage cheese, canned
mandarin and peaches, plain muffins, Motts low
sodium Garden Cocktail...
Ileostomate with SBS here.
I know some of you all chimed in missing sex but
TODAY I miss so many damn foods I just want to
honor them here and say hello to them.
These are food items I have given up because they
either caused blockages, dehydration, diarrhea, or
Cobb, Caesar, and especially Spinach salad with
hot bacon dressing
Sweet corn on the cobb dripping with butter and
Nuts, Sunflower seeds, protein bars with nuts and
Just became a member. It has been four years since
my ileostomy. I just have to learn to deal with
it. Vanity is a terrible vice! I know sometimes I
am paranoid about the bag. I am reading the tips
and stories about diet. It seems that what ever I
eat affects the output. Am I correct in saying
that an ileostomy is different than a colostomy
and there is more emptying of the bag? There seems
to be no rhyme or reason with the diet. Are there
any good suggestions with what to eat s...
Hey all you O-mate vets...wondering if folks like
us can handle spicy foods, not to the point of
sweating through your shorts and all that comes
from that type of food but a decent tingle in the
gullet. Does it bother the stomy? I've had mild
stuff and all went well, so the next step is a
little more heat. Anybody do nuts, I'm told in
moderation. I don't want to take the chance yet?
It'll be one tear 3-30-10 and I've eaten just
about everything in front of me. The seafood diet,
I see it, I eat i...
excuse the small letters in this post but i am
dealing with a blockage and have my left hand
applying even pressure on my wafer so it doesnt
i cannot for the life of me know what i did wong
tonight at dinner to cause this episode?
i had some italian bread, cheese, pasta, and apple
could the apple juice do this? i prbably havent
drank apple juice in years.
Ok you knowledgeable people I need some help.
pretty soon I will be able to start work as a
security guard. Now this will mean not being able
to run off to the dunny any time I need to. So
what i need to find is a diet that creates as
little residue as possible and is healthy.. Big
ask i know but it's A definate need. Thanks peeps
Hi. I have had my ostomy for 2 weeks now. Double
Barrell diverting due to rectal tear from hyst.
surgery. I have also now developed a bladder/vag.
fistula causing constant urine leak despite a
foley cath. My issue is that its hard to keep up
the fluids and my output goes from thick to watery
within the same day. Is it basically a guessing
game when deciding on what to eat or not. I have
lost alot of weight and am facing 2 more surgeries
within the next month or so.....so easy to get
down and dep...
One day last fall our daughter decided she would
make us up a crock of homemade beans, damn but
they were good, so good I had two (or three)
helpings. You all know whats coming. Three
O"clock in the morning, up to go to the
bathroom but the pouch was three feet ahead of me
laying on the floor, just like jet propulsion. So
her I am at 3am changing pouches and cleaning up
the mess. My wife and daughter still heckle me
when the subject of beans come up. I now stick to
It is n...
Has anyone with an ileostomy tried the diet pill
Alli? Or does it work in large colon which I do
not have so would be useless or harmful? Just
wondered if anyone has ever tried it? I quit
smoking 11/2 years and 17# ago and would like to
loose the 17#!! It is sooo hard older I get!!
Hi, I had an Illeostomy done a yr ago and have
been very careful in eating and
trying new foods, after reading a lot of threads I
decided today to really try
some new foods, I didn't eat much, but I tried
everything that I cooked for
the family so far all is going well....
had baked honey ham, mashed potatoes, yams,
carrotts, a even a lil salad,
stayed away from the string beans thou. I only
took a tablespoon of each thu,
was really afraid to take more, and a very sm.
piece of ham.
Hi Iam new here, had my ileostomy a yr ago, I'd
like to know what we can really eat,
does anyone have a good diet to follow.
I love salads but afraid to try them, was
wondering if anyone has, and how it worked
(i'm posting on behalf of krimat)
My father in law had a urostomy on 30th of jan and
was discharged on 15th of feb. the delay in
discharge was due to sluggish bowel movement. he
is on a semi solid diet. What can be included in
his diet(vegetarian only)?
thanks in advance.
Hello Everyone! I have had a colostomy due to
acute diverticulitis for 5 years now. For quite a
while I have found that Ive had to change my diet
to what it used to be before I had my colostomy.
My bowel can only tolerate very little: fat, oils,
grease, gravy, sauces etc. Also I find I cannot
eat the quantities I used to eat. I feel like
I've had a kind of gastric band fitted! Very
often, if I do eat the above my bowel empties
within 30 minutes, or I have accidents, often
I'm just three weeks out of surgery and only had
two days to to get used to the idea of having an
ileostomy before the operation so I'm very new to
all that it means. Already I have a blockage due
to something I ate. My question is mainly about
onions. I love onions in my food, so many meals I
cook have onions in them and they're probably
responsible for my being bunged up. Does anybody
know if I chop them into tiny pieces or even
liquidize them would it help, even stop the
blockage they can cau...