How do you manage to find smart clothes to wear
following a urostomy? I can’t wear my bag over
trousers and cover it with a floppy shirt or
jumper as it fills up so quickly and its heavy. I
have to tuck it inside to support the weight of
the liquid. I empty my bag at least once an hour
as it gets so heavy.
Apart from elastic waisted skirts or jogger pants
(yuck!) I can’t find anything suitable to wear.
Even wearing tights restrict the constant flow and
I hate the bulge showing from bene...
Ileostomy / urostomy
Hi all i have ileostomy since 1981 now i have been
told i need a urostomy!.Has this happened to
Travel in india with a urostomy, any tips?
I would love to travel in India for a month or so.
At the risk of offending any of you good folks who
may live in India, I need to ask a few questions.
I have a urostomy. Most of the books I've read
about India, both nonfiction and fiction, describe
public hygiene in the major cities as
significantly different than we Westerners are
used to. (The books are all by South Asian
authors, and include "Maximum City, Bombay
Lost and Found" by Suketu Mehta, and several
of Salman Rushdie...
Urostomy with recessed stoma
I have a Urostomy following R/C 7 weeks ago.
I am over weight and the soma was put right in the
crease and it is also recessed.
Does anyone have the same problems to help me
Help ! with a leaky hollister urostomy.
Hi, I am a recent double bagger. and I am having
a hard time keeping my Urostomy bag from having
blowouts, right at the crease in my skin t 9
o'clock. It seem like there is less time between
blowouts now I am changing my Hollister bag at
least once a day. I am using the paste but its not
working, and I'm wondering if maybe its my close
are to tight????? any suggestions will help
Thank you Rose
Urostomy and full time wheelchair user
I was just wondering if there was anyone in the
same position as me, being a full time wheelchair
I had a spinal cord injury a number of years ago
but had to have a urostomy in 2009. I was given
this as a last resort as I had so many issues with
my bladder previously.
I am just looking to see how others get on if
there is anyone else.
Thanks in advance
Hello all I'm new to this age but not new to my
Urostomy I have had it for 37 yrs . I use convatec
2 piece system and don't have too much trouble . I
usually have to change the wafer 1 or 2 imes a
week if I'm lucky. Lately I ave been using some
tape to help hold it seems to be helping I've had
numerous surgeries and several kidney ston
surgeries but I feel I'm pretty lucky no major
problems Amy questions let me know jody
Where do you change your urostomy pouch
I am just where people change their urostomy
Like in the bathroom, bedroom, lying down,
standing up, or sitting?
I have spina bifida so I have to change it while
Sometimes that does not get the best adhesion
because the stomach is not flat when changing it.
Just curious how other people change their pouches
to get the longest wear time?
Random urostomy leaks
Since I had my urostomy in March I've tried a few
kinds of bags and most of time they work OK but
once in a while they let go of my skin without any
obvious cause or warning.
The stoma nurses have been very helpful offering
different kit and advice but I'm getting the
impression they are getting a bit exasperated with
me and my wilful ways. Actually I don't have a
deep seated desire to spring a leak in public
places and am not trying to sabotage their
efforts. I put the bags on ...
Urostomy.large tummy and leaking
wish my stomache wasnt so big!one consultant says
i have pastorial hernia
another one says i havnt! dont know where i stand!
my tummy opposite my stoma
looks bigger than the stoma half, i leak every day
bit not from stoma, its either the
(wee pipe) thats been left in after surgery or its
coming from my vagina, but i cant tell which it
is! anyone else have this problem? going 2 see
consultant again next friday, hoping to sort it
once and for all!
Urostomy recovery time
Hi There, I have to go out of state for a
Urostomy. Can someone give me a rough idea of
recovery time after surgery, all going well with
no complications. I will ask my surgeon but like I
said he is out of state and would like a rough ide
as I need to board my pets. Thanking you in
advance. I will have to fly back but can get a
direct flight, about four hour flight.
Husband has a urostomy
My husband has a urostomy for almost two years.
His ex-wife left him after learning about his
bladder cancer. The problem for me is getting him
to accept that I think he's a very attractive,
kind, intelligent, and loving person who I am
deeply in love with. He still feels that the bag
makes him ugly in appearance and is hesitant to
work out in the gym due to his urostomy. I don't
even notice the bag and would gladly give him part
of my bladder if that was possible. What can I do
to get him ...
I have had my urostomy since 1980 and over the
years I have gained weight and now there is a very
deep crease right across the middle of my stoma
and it is leaking. I am having to change it
sometimes every one to two days and I am getting
quite frustrated. Has anyone tried the Convatec
Disposable Insert and if so how do you size it.
My stoma is 3/4 inch. And if you have tried it
how is it working for you? Any other suggestion
as to what I should try would be greatly
appreciated. Thank you.
People with urostomies, please give me any info
you can. Anything at all, however trivial it
might seem to you. Thanks in advance.
Urine output low from mom's urostomy
All was going well until this afternoon. She has
gone about 4 hours now with very little urine
coming out. Not a normal day. She is one month
post-op. Is this something to be concerned about?
We changed the bag today and everything looked
Urostomy and ileostomy
I just have been diagnosed with recurrant bowel
cancer, my question is has anyone got a ileostomy
and a urostomy. this might be a question that will
have to answer to if i get the option after my pet
scan results. I would like to make an informed
choice on this matter.
If i'm lucky enough to get this option. As it is
,i will be getting my whole pelvis cleared. Will
it be worth it? Can anyone help me? PLease suzy
Stent and urostomy questions
So I am fairly well recovered from my recent
colectomy but now learning that the radiation 15
years ago continues to lurk in other organs. I've
been dealing with kidney blockage, had stents
inserted in both urethra at the same time as my
December colectomy. In February I had signs of
urinary blockage (thankfully not painful like
colon blockages!) and the urologist decided to
change out the stents. But he found them
encrusted and decided to not replace them as the
encrustation could be adding ...
Hollister urostomy bag problems
Hi, posting on behalf of a friend ....
Does anyone else have problems with Hollister
Moderma Flex Urostomy pouches having holes in them
around the ring???
This lady has to use these as is allergic to all
others, but has been battling with Hollister now
for 4 years, but Hollister say that no-one else
has ever had problems with them!
Please let me know and I will pass on .....
Urostomy surgery video
As strange a this may sound, could anyone tell me
where i can download an actual dvd of a urostomy
surgery. I have searched everywhere I can thinkof
but to no avail. I wouldlike to watch what
surgeons actually did when I hadmyurostomy .
Urostomy and small bowel obstructions
Does anyone have small bowel obstructions--partial
or complete occuring frequently? what to do??
I've lower GI and many Ct scans all looks ok.
Looking for anyone who has had a urostomy take
down. Just want info on what to expect. The
reason for my take down to continent urostomy is
simpley to get rid of the bag. I have had no
other issues for the past 27 years.
thanks for any information,
Urostomy journal uk summer edition
I was wondering if any UK Urostomists got the
summer edition of the Urostomy magazine. I could
not believe it when it dropped through my letter
box. I had been at the Glasgow Dansac roadshow a
few months ago in Glasgow. The roadshow is doing
the rounds of the UK and is well worth a visit.
The main feature of the roadshow is a play
entitled "Still me Waving" which takes a
look at living with a stoma.
Anyway I was gobsmacked because I had my picture
taken at the roadshow and the pictu...
Can anyone give me a good location for getting
pouches at a reasonable rate. I tried osto group
but no pouches like I use Hollister 8482
I was able to get a 3 months supply through
insurance before I retired, Now I know why ins
rates are so high.
Edgepark charged my ins. $1200 for 45 pouches...I
believe they offered me a whopping 10 or 15%
discout being as I no longer have ins ( whooppee
I have a few $$ saved but am trying to live
within my income which is SS and t...
I am new here. I had a urostomy 6 yrs. ago.
Recently, when changing my bag I am
seeing dark skin around the stoma. The stoma is a
healthy color. I also notice
a tad more blood when cleaning the stoma. This is
very scary for me.
Anyone have this or heard of this problem?
Thanks and God bless.
Just wondering if anyone can give some advice , my
Urostomy leeks nearly every night , i was going
along fine for a while only a leek every second or
third night but the lasy few nights i wake up to a
flooded bed , basically i think its because i turn
on to my side when i am asleep and the wee cant
drain out into over night bag,,,i try laying on my
back,, but eventauly end on my side again ,,,its
really getting me down as i want to go visit my
son and friends and stay over night but i cant...
What is an urostomy or an ileal conduit?
This video was created to help explain an ileal
conduit/urostomy. If you would like information
on the Anatomical Apron shown in this video please
Urostomy bag,ileal conduit
I need to know how I can put my urostomy bag on by
myself without the help of my husband. I am very
short and have gained weight so we stand in
bathroom with mirror and as I am applying gauze to
the stoma so the urine (which leaks out as soon as
I take patch off to replace) will stop flowing (we
clean at this time also), my husband applies the
cream that goes around the stoma and as I am still
holding the gauze on he than applies the bag. We
need 3-4 hands and I feel I should be doing this
Marlen urostomy pouch
I just wanted to know if anyone uses or has used
the Marlen UltraLite Urostomy Pouch with Aquatack
and deep convexity and, if so, how is it and has
it worked out for you. I need a pouching system
with deep convexity and I am contacting all of the
ostomy supply companies I can find with urostomy
pouches that have deep convexity. Thanks for your
help. Happy Holidays to all!!!
Cymed urostomy products
Does anyone have any suggestions on how to empty
cymed urostomy pouches witout getting urine on
hi anyone out there with a urostomy i am trying to
get this drinking right
how much should one drink a day.
i have been drinking 4 litres a day and forever
going to the loo
so can some one tell me what is safe to drink
I was accidentally shipped urostomy supplies a few
months ago. The supply company never sent anyone
to pick them up, and they didn't give me any
address to ship them to. So the supplies have been
here long enough!
If you have a urostomy and could use some
supplies, send me an e-mail and I give you the
specifics of what I have. I will ship them to the
USA and Canada only.
Any surgeons to convert 40yr old urostomy to continent div.?
I was born with an extrophy of the bladder in '64
and have had my urostomy since '71. I'm looking
for a specialist who could convert my urostomy
into a continent diversion like Sweede's. I'd
ultimately like to get rid of old scar tissue and
also get vaginal reconstruction due to my
condition. Where could surgeoens all do this?
Could it be covered on insurance in the USA?
Could I be a candidate if I have 3rd stage kidney
disease and a history of kidney stones due to
recurring UTI infections?...
Who's the best urostomy continent diversion doc in u.s.a.
I'm looking to get a continent diversion. I was
told by the urologists at Shands in Florida, that
I'm too much of a risk because my kidneys only
function at 45%.
Then who in THE COUNTRY would be the best sugeon
to go to? Where do I look to research this
information? What doctors are known to perform
this surgury on a frequent basis?
Does anyone know where I could get contact
information & profiles on tese "Urinary
Continent Diversion Specialists"?
Thanks for any infor...
There seems to be a lot of focus on colostomy.
Well the management of URO-OSTOMY is much more
difficult, because, the flow of urine is
24X7,& the erosion of the skin barrier is
unpredictable. Mucus content in the urine,
deposits onto the walls of uro-pouch, constantly,
causes the walls sticks to each other, resulting
in a back flow and damage of the skin barrier.The
leakage starts without an alert. What are the
solutions to prevent any embarrassing situations.
I have been ...
Hello everyone, does anyone have any info
regarding urostomy hernias? Do they get worse as
we age? Is surgery an option, etc.....Thank you
for your time.
Eileen, ( Love this site) :)