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Note: All videos are automatically pulled from YouTube, based on ostomy-related keywords.
Crohn's Disease Video
Back in 2005, Pearl Jam's fanclub had a contest to create a video using one of their songs. I did so using "Down".
Breaking the News: Crohn's Disease
Made for BioExpo 2010.
CROHN'S DISEASE CURE ULCERATIVE COLITIS CURE CROHN'S OLITIS IBS CURE SCD DIET
crohnsboy.com I am crohnsboy and my goal is try to spread the word that people can overcome IBDs such as Crohn's Disease and Colitis. Visit my website for more information as I would love to hear...
CROHNS DISEASE TREATMENT COLITIS TREATMENT SCD DIET IBS CURE CROHN'S COLITIS
I found an awesome diet called SCD diet which got rid of most of my symptoms, I just want to help ppl. msg me and I can give you links and my email (jaybaluk@hotmail.com) it really works.
My Ileum Resection Surgery for Crohn's Disease
This is my story of ileum resection surgery in slide-show form. Just pics of how it went for me in hopes of helping someone else in a similar situation. I don't recommend this surgery to everyone,... Page: 1 of 8 |
Latest Forum Posts 
I have a permanent ileostomy and use the Hollister
two piece system and usually get 5 to 7 days wear
time for the base plate and change the bags every
1 to 2 days.
I also use the Hollister barrier rings, and on
change day after I have clea...
(within 2 hours) read more Topic: SHORT WEAR TIME? I HAVE HAD A PERMANENT ILEOSTOMY SINCE 2009, I KEEP READING IN THE FORUME FROM OTHERS WHO SAY THEY CAN WEAR THEIR APPLIANCES FOR 3 DAYS TO A WEEK OR MORE, HOW DO THEY DO THAT? I AM LUCKY IF I CAN MAKE IT MORE THAN TWO DAYS AND THEN I ALWAYS FEA... (within 6 hours) read more Topic: SHORT WEAR TIME? I HAD MY FIRST OSTEMEY OPERATION IN 2001 WHEN I LAPSED INTO A COMA AFTER MY BOWEL EXPLODED. SINCE THEN THERE WERE MANY ATTEMPTS TO REVERSE BUT ALL FAILED AND IN 2009 MY SURGEON AGAIN TRIED TO REVERSE BUT THERE WASN'T ENOUGH TO WORK WITH SO I NO... (within 6 hours) read more Topic: **Second surgery to relocate ileostomy-Whoa advice... I use a two piece Hollister system as well. I don't have any problems with cracking or pinholes though. Have you contacted Hollister? Maybe the particular bag you are using has that issue but another style may not. I would contact them. Wha... (within 6 hours) read more Topic: problems with small holes forming on bag Thanks for the info, Cee. Wow! In the middle of her breasts?!? That sounds way too uncomfortable, among other things. Moving on.... I "have" to wear low rider jeans or else the button/zipper are right on my stoma. Thank goodness fa... (within 12 hours) read more Topic: Can you wear your ileostomy pouch sideways? MMSH, I don't care.................it was hilarious I have no experience with any type of cancer and I know what a dreaded disease it is.............but the joke was still funny. (within 12 hours) read more Topic: to all the ladies read please 
I use the old Coloplast two piece, and do
sometimes develope small cracks when folds
develop. I find a piece of plastic tape (3M,
Johnson&johnson, pinktape,etc...) usually
keeps leaks contained. Even Scotch tape for paper
works for a limit...
(within 12 hours) read more Topic: problems with small holes forming on bag
I have used a hot tub often, with only the extra
protection of a Hosister ostomy belt. Oh, and I
do change my pouch after five days of skiing and
Hot tub use, instead of my normal 7 to 10 days.
Never had a problem of it coming off. Try it,
w...
(within 12 hours) read more Topic: Hot Tubs Latest Blog Posts I had a home care nurse who came out here every Monday for nine months she was great after two weeks,I was changing my apparatus myself.The first two weeks was a disaster.I have slept on my stomach my whole life,what a rude awakening at 4:00am... (February 3rd, 2012) read more Blog: post op reversal day 2 Junopete-I like your response-never thought of the anesthesia-good point! I have noticed that every time I came off prednisone or underwent surgery my hair fell out-hoping now that I have had the ileostomy surgery and not on any med for crohn's ... (February 3rd, 2012) read more Blog: Hair Loss 
I'm glad to here you are comming along so well. I did not have my first bm after surgery for a week because my large intestine was pluged up with barium that the so called speicalist from Victoria said I could flush out by drinking lots of water...
(February 3rd, 2012) read more Blog: post op reversal day 2 
I will throw in my 2 cents although not sure if it fits. I havent had surgery since Aug. of '09 and been feeling pretty good when I noticed I had a freakin' bald spot!! I pretended it wasn't there for a few months and then it was bigger. I ca...
(February 3rd, 2012) read more Blog: Hair Loss Hang in there. It will take your body a year or longer to get where it's going to go.Good luck (February 3rd, 2012) read more Blog: post op reversal day 2 I will not go into a long comment. All of you have it wrong as do most of your doctors.Hair loss 2 to 6 months after major surgery is caused by the Anesthesia. Your body interprets it as a shut down. That is why in most cases the dangerous pa... (February 3rd, 2012) read more Blog: Hair Loss |
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