MeetAnOstoMate.org

Foods

weewee — Sat May 19, 2012 4:17 am

                                      Author: weewee

                                      Posted: Sat May 19, 2012 4:17 am



                                      the best way to find out is to try one thing at a time and see if it bothers you or dont i know that somethings might make you have an oder worse than others to watch for those for me fish and pizza make the local stock yard smell good you have heard of a saying dropping a stink bomb well some foods will do that so eat at home when trying new things

need a good turn out

weewee — Sat May 19, 2012 4:08 am

                                      Author: weewee

                                      Posted: Sat May 19, 2012 4:08 am



                                      i would say if you are happy with how you are then dont change cause someone thinks he/she might make it work there is no guaranty no warrenty its all on chance if you blow a stich and poo juice leaks you are going to be sicker then you want to know been there done that  look up all the other that are going thru a reversals i would have to agree with you i would rather have a bag then a diaper good luck on your choice  sorry no reversal for me to many problems from to many surgeries i am better with my buddy then crapping in my pants and takeing a shit load of drugs wasnt on the fan list either just to shit a log in the toilet

Mens Trousers

dickdastardly — Sat May 19, 2012 2:59 am

                                      Author: dickdastardly

                                      Posted: Sat May 19, 2012 2:59 am



                                      Heres a link to a UK company where you can get mens trousers with a slightly higher waist

http://www.chums.co.uk/. I havent bought trousers from them myself so cant vouch for the quality, but they should clear the darned stoma without going all Simon Cowell!

HAIR LOSS

dazed — Sat May 19, 2012 12:57 am

                                      Author: dazed

                                      Posted: Sat May 19, 2012 12:57 am



                                      HAIR LOSS

I am finding that I am losing an excessive amount of hair I am taking the med Lialda 4 pills a day this hair loss is driving me crazy I am going to speak with my doctor on my next visit if I can stand it that long, any suggestions or recommendations as how this can be prevented the med works well for me except for the hair loss

surfin' bulldog

DH — Fri May 18, 2012 4:48 pm

                                      Author: DH

                                      Posted: Fri May 18, 2012 4:48 pm



                                      Thank you for sharing that. so adorable and comical. I am gonna show that to my husband when he gets home from work

FAP,Interstitial Cystitis or Desmoid Tumor

vanessavy — Fri May 18, 2012 12:33 pm

                                      Author: vanessavy

                                      Posted: Fri May 18, 2012 12:33 pm



                                      I was diagnosed with IC 3 years ago. I was diagnosed with FAP last September.  I now have the BCIR and it has improved my IC by 60-70%.

I only formed one desmoid tumor out of the 10 + surgeries I had. Took my 4th abdominal to get it but it was right under the skin so even with blood vessels running through it we cut that sucker out. I hated it, itched so bad and stuck out like a fist.

BCIR

Bumba — Fri May 18, 2012 12:28 pm

                                      Author: Bumba

                                      Posted: Fri May 18, 2012 12:28 pm



                                      If you do not stay in a facility for 3 weeks you wear a leg bag. I was only in hospital for 1 week then I was on my own. Would have been nice to have 24/7 care at first.  We people that went through this surgery are "tough cookies". Not easy recovery but well worth the effort.

Ostomy and Paleo diet

vanessavy — Fri May 18, 2012 12:27 pm

                                      Author: vanessavy

                                      Posted: Fri May 18, 2012 12:27 pm



                                      I do Paleo but I have a BCIR -  continent ileostomy. I only avoid any gas producing veggies if they bother me. Maybe start out eating only certain things and not to many mixes at first and see if anything is better in your system then get more creative. I did a lot of chicken and turkey at first then bison chilli, raw salads,etc.

I also Oly lift and crossfit.

Contact seeking-how to use this forum and chat?

braveheart — Fri May 18, 2012 9:10 am

                                      Author: braveheart

                                      Posted: Fri May 18, 2012 9:10 am



                                      Hi Kangaroo, I don't speak German, but I was born in Germany, My dad was in the army, he was posted back to Germany when I was 6 we lived there until I was 12, school that we went to was army and didn't start teaching German until I had left, my sister got a year of German,but she can't speak it either even though she did it in secondary school. I think this is the link to the forum http://www.healingwell.com/ community, if not just look up ostomy forums and it should come up. okay hope to talk to you soon. kind regards, Braveheart.

Air ports security.

gee07 — Fri May 18, 2012 7:04 am

                                      Author: gee07

                                      Posted: Fri May 18, 2012 7:04 am



                                      Hello Kangaroo,

Thanks for your reply. I do have the same Travel cert., as you have mentioned and as yet never had to show it.

Seeing as it was over four yrs ago when I made my last air flight to USA  and noted how more intense it was getting. I thought I would ask any on here about how everyone was coping within the airport security.

When you say you flew from the Germain air base was that through normal air flights or with the Army?

So lets hope I have the same luck as you, when I fly in September.

Gee07

Weight gain after Ileostomy?

Kangaroo — Fri May 18, 2012 6:41 am

                                      Author: Kangaroo

                                      Posted: Fri May 18, 2012 6:41 am



                                      Dear Green Eyed Lady,

against the sorrows the best thing is compagnonship and mateship.

Is there any Ostomy-group in Your region?  Here I can choose between 3 groups ,

not more as 25 - 40 kilometers (about 30 miles) away.

they can be visited from me  ; every group has ca.10-20 members meeting

usually on a fix day . One has chosen the fryday, satturday, other the monday.

it helps us "kangaroo-people" (because bagwearing like these Australean animals)

to many questions:

  - at work

  - in partnership

  - joirneying

  - problems with the surgery   and so on . . . .

Best wishes to You!

KANGAROO - from Germany

Bcir,any one have this?

vanessavy — Fri May 18, 2012 4:17 am

                                      Author: vanessavy

                                      Posted: Fri May 18, 2012 4:17 am



                                      I am late to the thread but I have a BCIR

4-5 times a day in the toilet is a lot. You must be eating a lot. I drain 2-3 times. Only time I drain 4 is if I do a heavy work out and want to be empty going in.

SOME NEW STUFF

christiesdad — Thu May 17, 2012 11:05 pm

                                      Author: christiesdad

                                      Posted: Thu May 17, 2012 11:05 pm



                                      OK,

Here's another dilima I have....

How the hell do you, on the last scoop, when making coffee, do you avoid sprinkling the coffee on the counter top!!!?

Losing my insurance soon

Juuust_Jim — Thu May 17, 2012 4:40 pm

                                      Author: Juuust_Jim

                                      Posted: Thu May 17, 2012 4:40 pm



                                      Well Honestly -I dont have have any male friends now -and have had very few in the past. I am very old fashioned with my morals and values -especially when it comes to speaking about and treating women with respect and an equal. I refused to go to Bar to drink and especially go to strip joints like a lot of Guys I was friends with in my youth. You are right though in how a vast majority of Men "rate" women openly in public but i dont see a whole lot of difference in that and the way millions of Women lust over those fake Vampires in those Twilight Movies? When I used to be on Facebook, i had Dozens of female friends that drooled over those Guys openly and repeatedly in their comments -and their fictional characters

Anyone with an ileostomy done Slimming World/low carb diet?

Emeraldeyes — Thu May 17, 2012 3:03 pm

                                      Author: Emeraldeyes

                                      Posted: Thu May 17, 2012 3:03 pm



                                      I have a nagging sore that I have a script for aquacel and duoderm to cover the spot and then put the wafer over it. It works pretty good. I still have to change it every two days since the sore weeps. My doc hasn't been too much help on this unfortunately.