MeetAnOstoMate.org

SHORT WEAR TIME?

~jo~ — Sat Feb 04, 2012 6:09 am

                                      Author: ~jo~

                                      Posted: Sat Feb 04, 2012 6:09 am



                                      I have a permanent ileostomy and use the Hollister two piece system and usually get 5 to 7 days wear time for the base plate and change the bags every 1 to 2 days.

I also use the Hollister barrier rings, and on change day after I have cleaned around the stoma site thoroughly, mould the barrier ring around the stoma directly onto the skin so it fits snugly, and place the base plate on, snap on the bag and am good to go.  I should mention that I use a Hollister convex flexwear base.  If you are experiencing leaks convex bases are great because they push the stoma out gently and prevent any output coming into contact with the skin directly around the stoma.

I like your attitude in not letting it get you down, like the "Dorothy" reference too (perhaps because I'm from Oz! ), having an attachment for life certainly beats the alternative I reckon!

**Second surgery to relocate ileostomy-Whoa advice is needed

hall8480 — Sat Feb 04, 2012 3:36 am

                                      Author: hall8480

                                      Posted: Sat Feb 04, 2012 3:36 am



                                      I HAD MY FIRST OSTEMEY OPERATION IN 2001 WHEN I LAPSED INTO A COMA AFTER MY BOWEL EXPLODED.  SINCE THEN THERE WERE MANY ATTEMPTS TO REVERSE BUT ALL FAILED AND IN 2009 MY SURGEON AGAIN TRIED TO REVERSE BUT THERE WASN'T ENOUGH TO WORK WITH SO I NOW HAVE A PERMANENT ILEOSTOMY.  AT THE TIME OF THAT SURGERY I ASKED MY DOCTOR IF POSSIBLE AND REVERSAL WAS OUT OF THE QUESTION TO RELOCATE THE OSTEMEY FROM THE RIGHT SIDE TO THE LEFT SIDE, IT HAS MADE A WORLD OF DIFFERENCE.  I HAVE NEVER UNDERSTOOD WHY SURGEONS ASK IF YOU ARE RIGHT OR LEFT HANDED AND THEN PUT THE OSTEMEY APPLIANCE ON IN MY CASE THE RIGHT SIDE (I AM RIGHT HANDED).  HAVING MY OSTEMEY ON MY LEFT SIDE IT IS MUCH EASIER TO TAKE CARE OF AT LEAST IN MY CASE.  I THINK YOUR MOTHER WILL FIND IT MUCH EASIER TO TAKE CARE OF IF IT IS MOVED TO THE OTHER SIDE.

problems with small holes forming on bag

socalileo — Sat Feb 04, 2012 1:48 am

                                      Author: socalileo

                                      Posted: Sat Feb 04, 2012 1:48 am



                                      I use a two piece Hollister system as well.  I don't have any problems with cracking or pinholes though.  Have you contacted Hollister?  Maybe the particular bag you are using has that issue but another style may not.  I would contact them.  What's the worst that could happen?  That they tell you nothing?  You already have that.  I would think that they would want to keep your business and try to help you resolve your problem.  Good luck!

Can you wear your ileostomy pouch sideways?

socalileo — Sat Feb 04, 2012 1:38 am

                                      Author: socalileo

                                      Posted: Sat Feb 04, 2012 1:38 am



                                      Thanks for the info, Cee.  Wow! In the middle of her breasts?!?  That sounds way too uncomfortable, among other things. Moving on....

I "have" to wear low rider jeans or else the button/zipper are right on my stoma.  Thank goodness fashion has brought back low rise jeans!  If I put the bag on sideways it will be above my waistband still, so that's not an issue.  I'm still thinking about the sideways placement of my bag.  I haven't given up on trying it yet but haven't totally decided to do it yet either.  Thanks for the encouragement.

to all the ladies read please

christiesdad — Sat Feb 04, 2012 12:38 am

                                      Author: christiesdad

                                      Posted: Sat Feb 04, 2012 12:38 am



                                      MMSH,

I don't care.................it was hilarious

I have no experience with any type of cancer and I know what a dreaded disease it is.............but the joke was still funny.

Hot Tubs

B4_R2D2 — Sat Feb 04, 2012 12:05 am

                                      Author: B4_R2D2

                                      Posted: Sat Feb 04, 2012 12:05 am



                                      I have used a hot tub often, with only the extra protection of a Hosister ostomy belt.  Oh, and I do change my pouch after five days of skiing and Hot tub use, instead of my normal 7 to 10 days.  Never had a problem of it coming off.   Try it, with a little caution.

Good Luck....  Enjoy your life....  Don't worry to much about what others might think.....

Convatec Esteem synergy question

NJ1215 — Fri Feb 03, 2012 11:05 pm

                                      Author: NJ1215

                                      Posted: Fri Feb 03, 2012 11:05 pm



                                      I saw your post about pouches.  I was wondering if you ever tried Hollister brand?  I have no problems with leakage.  Hollister has many different pouches and wafers.  I am now using Pouch 18324 and wafer 14204 which are fabric type.  I also use pouch #3344 and wafer 3724 by Hollister which are plastic type.  I have no problems with any of them.  I prefer the fabric type but the plastic is good for the ocean/pool.  Hope it helps.....this is all new to me though!!!

Am I doomed from having a partner?

mild_mannered_super_hero — Fri Feb 03, 2012 11:03 pm

                                      Author: mild_mannered_super_hero

                                      Posted: Fri Feb 03, 2012 11:03 pm

christiesdad wrote:

I iied about my own age and just joined in.

remember, there are 3 things that most women will lie about... age, weight and shoe size......she may be 5` 11" but she will swear that she wears a size 5 shoe...lol

.........

question, men only

mild_mannered_super_hero — Fri Feb 03, 2012 10:50 pm

                                      Author: mild_mannered_super_hero

                                      Posted: Fri Feb 03, 2012 10:50 pm

KennyT wrote:

How about 'Live without the outcome but enjoy the reason?'

i like it kt, another for the "maybe list"....

Urostomy Recovery Time

mooza — Fri Feb 03, 2012 10:14 pm

                                      Author: mooza

                                      Posted: Fri Feb 03, 2012 10:14 pm



                                       hey im not in the usa and they still get rid of you but not if your still unwell...if i had to pay they would keep you in longer but its expensive for private health cover i would of had my Op. with in 2 weeks but pre-existing i would have to wait 1 year if i did get insurance so either way i will have to wait my turn grrrrrrrrrrr catergory 2 means 90 day waiting which these days means who the hell knows too much strain on our public hospitals now , Nurses been on strike and thre government is playing with our lives NOT HAPPY ......i getting ready to hassle my surgeon by feb 10th my 90 days are nearly here and looks like im not getting further arggggggggggggg

ostomy belt

dawneagle — Fri Feb 03, 2012 9:54 pm

                                      Author: dawneagle

                                      Posted: Fri Feb 03, 2012 9:54 pm



                                      Mooza - Lots of us miss you - not communicating so well myself just now.  Soon....

Brautigan is good for you.

chrswlhlm — Fri Feb 03, 2012 8:51 pm

                                      Author: chrswlhlm

                                      Posted: Fri Feb 03, 2012 8:51 pm



                                      Your Catfish Friend.

Richard Brautigan

If I were to live my life

in catfish forms

in scaffolds of skin and whiskers

at the bottom of a pond

and you were to come by

  one evening

when the moon was shinning

down into my dark home

and stand there at the edge

  of my affection

and think "Its beautiful

here by this pond I wish

  somebody loved me."

I'd love you and be your catfish

friend and drive such lonely

thoughts from your mind

and suddenly you would

  be at peace,

and ask yourself , "I wonder

if there are any catfish

in this pond, it seems like

the perfect place for them."

Was in a sharing mood and had a notion this was a good one. Hope y'all enjoy it.

Count down to reversal...

bag_n_drag — Fri Feb 03, 2012 8:39 pm

                                      Author: bag_n_drag

                                      Posted: Fri Feb 03, 2012 8:39 pm

tess45 wrote:

good for you Darla - not don't you be wrestling in that Jello it's for eating LMSO

i will try to resist temptation....could liven things up around here!!!!

Colostomy Reversal

Patrice — Fri Feb 03, 2012 7:51 pm

                                      Author: Patrice

                                      Posted: Fri Feb 03, 2012 7:51 pm



                                      Thanks for the info. My first "BM" was a kind of blood tinged diarrhea on day 4.  Today, there was a large amount of dark brown loose stool.  My doctor was pleased, but I will be glad when things firm up.  I had my first "soft foods' tonight and so far have tolerated it well. Got my IV taken out, but still have a drain. I will probably be in the hospital for a total of 7 days. Pain is not too bad this time.

Patrice

i refused the reversal

teddyuk1946 — Fri Feb 03, 2012 7:02 pm

                                      Author: teddyuk1946

                                      Posted: Fri Feb 03, 2012 7:02 pm



                                      thanks every one for your replys

ive just been on a downer since the surgeon told me the news , i just couldnt take it in all he said to me .

why i had the surgury was because i was only going to the jon once or twice  a month thats all i could go . and when i did eventually go i bleed  for around a hour or so continusaly it used to  run out off me like tap water  and the stool was like rock .

he sent me for some tests  and it came back my large bowl was swollen up like a large melon  and i couldnt push  any more  it was blocked  completly  and I WAS TOLD I HAD DIVERTICULA  DESEASE sorry for  my spelling i cant spell that well.

and he told me  that my large bowl was damaged  to much and it needed to be repaired but im told it was beyond repair  thats why it was removed so now i only got   2 inchs off large bowl at my rear end  the rest has gone.

anyway my dear frinds i dont know what else  i can say im  not  to good at putting my thoughts in to words

im greatfull for all your replys and thay have given me some hope  and i   just hope 1   i will be able to look back and say yes its  altered my life but im over  it  now .

im not on the computer that often

many thanks every one for your kind words to me

best wishes

teddyuk1946