Pressure In My Rectum

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truw
Hello and thanks in advance for any advice.
I have had my ileostomy now for 10 years as the result of battling UC. For the past 3 days now, I have been getting really bad pressure in my rectum (feels like my insides are going to fall out).
Sitting, standing, or walking, it does not ease up. I feel the need to clench my bum to stop the pressure. When I go pee, I relax my rectum and it feels like I'm going to lose all my insides. This is driving me nuts.
Other than the first year after my surgery, I have not had any issues and have not seen a specialist in about 8 years.
Has anyone had this problem? Should I make an appointment to see a specialist?
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kinder

I've only had my ileostomy for 10 months but I know that I've had mucus and mucus with blood come out of my rectum ever since the surgery. They gave me suppositories to clear up the blood but I'm still not sure why they just didn't remove the stem since they knew I could never have a reversal. I feel some pressure at times but nothing to the extent you seem to be having. I think I would call my doctor to get it checked out.
Wish you well,
Nanc

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Pinky

I agree - get checked out. You could be having a prolapse of what's left of your rectum. I have a colostomy and a small stub of my rectum and anal sphincter were left intact. I have those pressure problems frequently and I use Anucort steroidal suppositories to reduce the inflammation and weeping from the irradiated tissue. Sometimes it bleeds quite a bit too.

Definitely get checked out.

truw

Thanks, I will definitely make an appointment with my doctor.

artist
Hi Truw... Artist from Seaside, Oregon here. Sorry to hear about the pressure you are experiencing. I have it too, it's been three weeks since my ilio surgery. Every time I urinate, I have to sit down and pass a couple of teaspoons of mucus (dark), and I frequently have what feels like hard bowel cramps. According to the Providence, Portland manual, the passing of the mucus is normal. To minimize the temporary pain from the cramps, my wife rubs my back down in the coxicks area vigorously for about 5 minutes and it usually goes completely away. I just chalk them up as just part of the healing process... anyway, just wanted you to know that I am suffering right along with you... and I'm hoping that it is getting better each day!
 
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Past Member

Hi there, I have the same problem. It drives me nuts! I have had scopes and CT scans. Nothing shows to be wrong. I just keep going back to the doctors until they detect the problem. Just keep bugging them.

ShineyShawnee

Could be internal hemorrhoids.
I still have my little bitty rectal stump and bleeding/mucus passes. I'm told the mucus is normal as the organ still has some function. The bleeding was found to be internal hemorrhoids at my last scoping. And active Crohn's.
Always best to get it checked out when in doubt.
Peace.

beatrice

Yup - I have the pressure/pain/mucus/blood too.

It's a downer isn't it ... after thinking 'that end should be behaving now'

With me, it's active UC flares still happening in the rectal stump.

Definitely go to the doc ... after 10 years ... something 'new' like this should be thoroughly checked out.

All the best.

crazycatlady

Hi, I had that problem for about 2 years after my ileo surgery for ulcerative colitis. The bleeding, cramping, and mucus were just getting me down. The consultant eventually gave up after countless different meds and removed my rectum. It's been the best decision I've ever made! I am very happy with my ileostomy, and it was an easy choice whether to leave the option open to get reconnected or have it removed. I've not had any problems since.

Firegirl25

Hi. I have an ileostomy, so no more rectum. I'm all sewed up. I get what I call phantom bowel movement pains/cramping. It drives me nuts. Sometimes I will sit on the toilet and pretend to poop. It usually goes away. I know - I'm weird. But it works for me.

aeg

I also suffer from this. Usually right after sex or it can happen anytime. If driving, I have to pull over until it's passed. The doctors have no answer other than internal scar tissue. Pain in the a$$ literally :)

Telecaster

I'm getting this too.

It started two weeks before a groin hernia op when I resorted to wearing a support belt, so I could work. Two days later, itching, pressure feeling sore, yet no outward signs.

Then two weeks after the op, went on a walk, the day after my rectal area which had been fine during the initial recovery went berserk, itching, pressure soreness again.

Sitting down relieves it, as does sitting on the loo. Standing for a long time or walking makes me very aware of it.

Two GPs said it was fungal, which it plainly isn't. Two other GPs said it could be the fact that as we have less guts, and more space for them, sometimes a piece of gut can rest on the scar tissue and irritate it. This feels right to me as I can sometimes feel stuff gurgling over the area.

Then the surgeon who did the hernia op said that that wasn't possible.

It's bugging me too, I can tell you.

Could it be another hernia?

All the docs have found no lumps, growths, or bulges, so maybe it's a muscular or a circulatory thing.

Necro1134

I hate to "bring back" such an old post, but this is an issue I'm having out of the blue. I only had my permanent ileostomy (no rectum, only enough anus left to fold and sew closed) surgery last month (Sept. 6th and a second surgery due to complications Sept. 10th). I wasn't warned about mucus/blood etc. coming out of the anus after surgery. I didn't have the issue until about 2 nights ago. I got a horrible pain in the butt (literally) and then came the mucus/blood. It freaked my husband out more than myself, but the pain was almost unbearable.

Telecaster

I've just had an MRI scan for this problem I am having, only right now the pressure is all over my pelvis.

I feel downward pressure on my rectum, scar pressure on the small of my back, then pressure against the recent hernia wound area.

Really sore all over this weekend, going to see a doctor today to see if I can get signed off until the results of the scan get analyzed.

rosiemoe

I only found out about passing mucus after sitting on the loo, feeling like I needed to poop, knowing that part no longer worked. In the end, I passed a very large piece of dried mucus. I was worried as I had no idea what it was. I saved it in a bit of loo roll and in the morning phoned my stoma nurse in a panic. She told me it was normal to pass mucus and I was lucky as some people pass it every day and I was one of the lucky ones who didn't lose much. I get "phantom bum" now and then, I find sitting on the loo and "trying" to poop helps ease the pressure as it can be uncomfortable. I was told that all this is normal as the leftover stump still produces mucus, and as I've little or no rectum left, that's why I only get a bit of mucus now and then. I do wish you were told about this after you have your stoma, as it can be frightening to think you're going to poop when you know you're not, only to pass a nasty bit of dried mucus. I'm glad to say this has only happened once in the 3 years I've had my stoma.

bfraser1999

I also have had these pains. I had my surgery in May 2010. I have had no mucus or blood and no feeling like I have to poop until just lately. I am going to have an MRI as I have 6 inches left of my colon. The reason they left that much in was because the doctor thought I could not live through a longer surgery. I find that if I lay down, it relieves the sensation a little. Good luck. It is so nice to have you folks to help us newbies. Thank you.

bag_n_drag

I've had pressure/pains and discharge (mucus) from my remaining 10 inches of rectum since my surgery back in Dec. 2010 (emergency ileostomy).....talked to my surgeon about it and he suggested a Fleet enema every 3-4 days.    Since his suggestion, I have done one Fleet enema (the Fleet Natural Cleansing kind....NOT the regular saline kind for constipation) every 4-5 days.    It works wonders in cutting down on the discharge and pain/pressure.    I don't have that "urge" anymore as long as I do the Fleet every 4-5 days; no night discharge; no pain!
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