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Severe nausea, pain & bloatedness after reversal

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Forum Home Page -> Ostomy reversal

 
 
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 Guest





PostPosted: Sun Jul 25, 2010 5:01 pm    Post subject: Severe nausea, pain & bloatedness after reversal Reply with quote

Hi I'm a newby so forgive my lack of knowledge but wondered after reading the boards if anyone after having a stoma reversed could offer any help on recovery time.

My husband had a reversal of his Ileostomy 20th July 2010.

In Jan 2010 he woke up with stoma bag after a 10hr emergency surgery to save his life after a Pancreas Transplant went wrong.
Currently he is in a lot of pain, abdomen very swollen, bloated feeling all the time, severe nausea & has gained 11lb yet hasnt eaten.

He was thinking he would be back at work within two weeks but reading the forum it sounds like years rather than weeks!!
Thankyou in advance. Kizzed x

Last edited by Guest on Wed Jul 28, 2010 9:34 am; edited 1 time in total
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 Pinky





PostPosted: Sun Jul 25, 2010 5:25 pm    Post subject: Reply with quote

He won't be back at work in two weeks.

I had a colostomy reversal and it takes time for the bowel to work in the regular way again. But it sounds like your husband has really SEVERE gas and distension (he should chew gum to get the bowel moving and release the gas) OR a bowel obstruction which is an emergency the doctor should handle immediately.  Given all the weight gain and the retching now I'd say it the second possibility - so don't let those nurses put you off.  Call the doctor on call - act hysterical if you must - and get some action out of those people!

I hope this helps.  I know you're in a scary place.  I'm sending good thoughts your way.
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 Guest





PostPosted: Sun Jul 25, 2010 5:42 pm    Post subject: Reply with quote

Thanks Pinky,

I just phoned my husband & read out your reply.
I spoke to a sister who said that although he feels he hasnt opened his bowels properly, the fact that even a little came out is a good sign.
He only passes watery muck no stools.
She said she doesnt think its a bowel blockage cos the doctors have listened & hear movement.
She said it could be slow or asleep whatever that all means.
All I know is he is drinking water, had the odd bits of soup but everytime he takes anything in he feels sick. Although not actually being sick anymore he said he wish he could be just to feel relieved of something.
He isnt urinating much either so he feels its all going in & not much coming out. The hospital staff just keep saying he must be dehydrated so his body is retaining it.
Tomorrow morning his surgeon is coming to see him so I am gona ask that he ring me as visiting isnt til afternoon.
Its just so worrying after all he has been through. That hospital has been on the ball & saved his life so I guess he's in good hands but you just always feel what if they miss something.
Thankyou for replying so prompt.
God Bless Kizzed xx
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 lottagelady





PostPosted: Sun Jul 25, 2010 6:18 pm    Post subject: Reply with quote

Hi Kizzed - I really think they should be scanning/x-raying him at least - if he has gained 11lbs since surgery and hasn't been passing stuff, I cannot believe that no-one is listening to him or that hasn't flagged something 6 days post-op ....

Someone didn't listen to me 12 years ago and now I am in the state that I'm in, disabled, pretty unhappy, unemployed and unwell. Don't want to panic you, but I think he should know his own body better than they do, after all, he has lived with it for some years!

Rach xx

PS if you can - try go and see surgeon with him tomorrow?
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 Guest





PostPosted: Sun Jul 25, 2010 6:52 pm    Post subject: Reply with quote

Hi Rach, thanks for posting in the ask a question for me I found it before after writing this.

I have again phoned the ward & spoke to the nurse looking after him. i asked if I could come see the doctor tomorrow which was a 'no' I need to ring at 8:30am & possibly they will talk to me or I will have to make appointment.
I find it frustrating never seeing the doctors...as my hubby is an adult they think he doesnt need support...but unfortunately he suffers memory loss & has trouble retaining information. I have often said I feel it should be flagged on his records & I should be consulted on everything. They never listen. I have again repeated my concerns. They dont know how insistant I can get though.
Its almost midnight & I need to sleep but am too worked up. Its sooooooooo frustrating. I just hope the doc who sees hubby tomorrow is thorough & explains everything in plain english & is willing to speak to me.
On that note I oughta go to sleep.
Night ladies & thanks for your support.
God Bless Kizzed xx

Last edited by Guest on Wed Jul 28, 2010 9:39 am; edited 1 time in total
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 Pinky





PostPosted: Sun Jul 25, 2010 10:02 pm    Post subject: Reply with quote

We'll be praing for the both of you, Kizzed.

PS - sounds like UK docs are even more annoying than they are here in the US - guess here they're worried about bad PR and losing customers.  Smile
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 Grammybec





PostPosted: Sun Jul 25, 2010 11:28 pm    Post subject: Reply with quote

I have heard so many horror stories about the reversal of a Colostomy, that I am scared to even think about it.  I have only had mine since March 2010, so they don't even want to talk about it until it's been a year.  But hearing everything I hear in person and on line, I'm afraid I might be keeping this a part of me forever.   I was hoping someday to get back to normal, but I'm not sure there is such a thing as normal once you have had problems large enough to warrant a colostomy.  Good luck to your husband and keep us posted.
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 lottagelady





PostPosted: Mon Jul 26, 2010 6:00 am    Post subject: Reply with quote

                                 
Kizzed wrote:
Hi Rach, thnks for posting in the ask a question for me I fond it before.

I have again phoned the ward & spoke to the nurse looking after him. i asked if I could come see the doctor tomorrow which was a 'no' I need to ring at 8:30am & possibly they will talk to me or I will have to make appointment.
I find it frustrating never seeing the doctors...as my hubby is an adult they think he doesnt need support...but unfortunately he suffers memory loss & has trouble retaining information. I have often said I feel it should be flagged on his records & I should be consulted on everything. They never listen. I have again repeated my concerns. They dont know how insistant I can get though. I have kinda told our story in another thread 'I want to quit' & I have said how snotty I can get if I dont think specialist are doing something when something needs doing.
Its almost midnight & I need to sleep but am too worked up. Its sooooooooo frustrating. I just hope the doc who sees hubby tomorrow is thorough & explains everything in plain english & is willing to speak to me.
On that note I oughta go to sleep.
Night ladies & thanks for your support.
God Bless Kizzed xx


Hi Kizzed - hope you got a bit of joy out of them this morning?? If not, go and have a word with PALS, the Patient Advisosory? Liaison Service and they will assist you ... have found that they are pretty good and will advocate for you in case of a complaint - may be good to have them on your side anyway ... make notes about any calls or people you speak too with names and times.... good luck xxxxx
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 beyondpar





PostPosted: Mon Jul 26, 2010 9:56 am    Post subject: Reply with quote

Kizz,

Take control or ask your husband to start demanding a CT scan or MRI to see why he is not passing much .........either gas or fecal matter.how he  has gained 11 pounds is beyond me....pain after eating something and then throwing up tells me the bowels arent fuctioning properly yet, but that doestn mean they wont in the near term, however you dont want another problem  developing due to a blockage or rupture.......STay proactive and push......You must be your husbands advocate ........Period..Yell and scream if you have to.......Pain might be normal but i believe throwing up and not passing anything at this point is not , while gaining wieght......Let me know how you make out...............

YOu are not alone as you have many on this site who can help you..Till your next post......Michael
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 ostralian





PostPosted: Mon Jul 26, 2010 10:04 am    Post subject: Ostomy Reversal Reply with quote

HI Kizzed - have you ever thought of getting a Medical Power of Attorney for each of you? I don't know how you'd go about getting it over there, but it would mean you would have the Medical Power of Attorney for each other in cases of emergency - it means you would be able to have the legal right to get answers and speak on behalf of each other to medical staff.   We did our own, and we both signed them.  

Hope this helps.

Cheers Trish
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 swiffer





PostPosted: Mon Jul 26, 2010 11:57 am    Post subject: Reply with quote

Any updates ? I agree with every post here about getting all the answers you can. Your med system is different than ours but people are people every where and you should be advised  of your husbands condition any and every time you ask. They should find what they think the problem is and  consult with you on the procedure they want to take.{ I know wishful thinking }
Hope in the future this is all just a story for you both to tell to your grand kids.

Last edited by swiffer on Mon Jul 26, 2010 1:55 pm; edited 1 time in total
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 Guest





PostPosted: Mon Jul 26, 2010 12:50 pm    Post subject: Reply with quote

Hi

I had a stoma reversal about 5 weeks ago. I lost 2/3 of my bowel in an accident and originally was given a stoma.

The nausea and pain should be managed on the hospital ward - normal to get this after a reversal. Your husband should be given painkillers.

The bloated and painful tum is really down to the operation and will get better - again very normal. It's down to tummy muscles getting cut during the operation and the bowel getting used to working normally.

Your husband needs to make sure he is being cared for as a reversal is a big operation. The feelings after are not great - give it a month and things will really start improving.

Caroline
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 cancerfree





PostPosted: Mon Jul 26, 2010 1:19 pm    Post subject: Reply with quote

It could be from incisional swelling which is hard to tell how long it will take to go down.  Everyone's body acst differently.  The hospital shouldn't release him until his system is running better.  You have to remember how tramatic all this is to the internal tissue.
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 swiffer





PostPosted: Mon Jul 26, 2010 1:53 pm    Post subject: Reply with quote

Caroline, i  have wondered about some one that loses some of their colon. I don't have any anymore so it is just a question. I am guessing you have a 1/3 of it working again. Does that harden your stool enough to consider it {normal like before}? And do you have more trips to the bathroom now with that much of a working colon or the same amount of trips as when you had your whole colon? Wow when i was young i would have never thought i would be asking these kinds of questions.
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 beyondpar





PostPosted: Mon Jul 26, 2010 4:23 pm    Post subject: Reply with quote

While we dont need a colon to live,  I think we need all of our colon to  have a fully formed and normal bowel routine,

Great questions Swiff as that is something the doctors wont tell you........I m going to guess that there is no way for her to have the same bowel habits as before as caroline is missing 2/3 of her colon..........Im also going to guess that her stool is not as formed since there is less colon,  im also going to guess that she has more frequent trips to the bathroom as well.........I hope I am wrong,  but since hers was a result of an accident and not a diseased colon I willl bet she has a better chance than most at a full recovery.......Please caroline  I would love to hear about it all too...........Know that  I dont have any colon or rectum or anus and want to stay educated in all colon issues and to help those who have no clue on what to expect ,  as I still feel doctors dont tell the whole truth going forward.......

so sorry you had to make this journey via an accident and its pretty couragoues of you to have come onto this site to share...For that I thank you..........Most people  want nothing to do with this site until they are at the end of the journey with and illness and need assistance and support.

Again Thank you and I do  hope I am wrong in all my guesses........Whatever ,  please share..Michael
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