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Posted: Sun Jun 19, 2011 4:36 pm
Has anyone ever had a problem with their stoma shrinking?  I'm in the middle of a 6 month battle with a blockage/fistula/malnutrition and my stoma has seriously shrunk.  It's less than  half the size it was before (its normal size).  I'm heading in for surgery in a few weeks to fix everything and I'm wondering if it will go back to its right size or if I'm going to have to have my surgeon fix it.


Posted: Sun Jun 19, 2011 4:49 pm
I have never had that problem.  But I wanted to say good luck with your surgery!  If you ever need someone to talk to let me know.


Posted: Mon Jun 20, 2011 11:16 am
I am watching for replies to your question.  My stoma isn't all that interesting but isurgery was 10 months ago and I don't consider it to be stable in size.  Seems it is always changing.  Your question deals with something different but .... I would like to know.

If you get any answers, please post anything you find out.

Posted: Mon Jun 20, 2011 12:22 pm
A few years after my initial ileostomy surgery I needed to get a stoma revision because the stoma had changed shape. My surgeon explained that he had difficulty creating the original stoma because the ileum was inflamed from so many years of Crohn's and just being sick in general. After the revision everything has been fine. Perhaps the change in your stoma size may because the stoma is settling down from the swelling caused by the surgery.
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