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Posted: Mon Jun 01, 2009 9:30 am
[quote/Roberto]
There seems to be a lot of focus on colostomy. Well the management of URO-OSTOMY is much more difficult, because, the flow of urine is 24X7,& the erosion of the skin barrier is unpredictable. Mucus content in the urine, deposits onto  the walls of uro-pouch, constantly, causes the walls sticks to each other, resulting in a back flow and damage of the skin barrier.The leakage starts without an alert. What are the solutions to prevent any embarrassing situations.
I have been an uro-ostmate for the past 18 years, The bladder was removed to prevent the spread of invasive carcinoma & a stoma created by surgery for urine discharge. These are some situations I  have to cope with,  had to keep a the calender to guide me on a possible social set back. Accept the physical changes & don't ever give up. Think of Grp Capt Sir Douglas Robert Bader DFC DSO, the physically challenged ACE RAF Fighter Pilot WW II, who flew several sorties on artificial limbs. His life moved on like a normal person. What a daring, determined person.

[quote Roberto] Bangalore India


Last edited by roberto on Sun Jun 07, 2009 8:24 pm; edited 1 time in total


Posted: Sat Jun 06, 2009 12:59 pm
Hi Roberto
Start by making sure you drink plenty of water to keep flushing the good old drain pipes.And if you start feeling any discomfort around the flange !1  just assume that its starting to leak and change it.
  Cavilon no sting skin prep also helped me to get a better stick with the pouches
   Good Luck
  Jim


Posted: Sun Jun 07, 2009 2:01 pm
                                 
devilishjim wrote:
Hi Roberto
Start by making sure you drink plenty of water to keep flushing the good old drain pipes.And if you start feeling any discomfort around the flange !1  just assume that its starting to leak and change it.
  Cavilon no sting skin prep also helped me to get a better stick with the pouches
   Good Luck
  Jim



[quote Roberto] Hi Jim, thanks, will add your suggestions to the thumb rules of alerts for a change of the wafer etc. I drink around 3 to 4 litres of from the morning till I hit the sack in the night. This includes the frequent gulps of hot water in between, to reduce the incidence of cholestrol deposits in the arteries (an eastern habit). Has helped, I also suffer from hypertension & am on medication to control that.
Best of luck Jim!


Posted: Wed Jun 10, 2009 5:38 pm
Hi Roberto, I am an urostomate too since 1976. It's true, in all forum there are thread on ileo e colonstomy. The management of urostomy is difficult but with the new uro-pouch the life is easier. The leakage are not very frequent.
I have an urostomy for neurologic dysfunction of the bladder that was not removed.
I change the wafer every 2 days and the pouch every day. In the night not use the night-bag and i get up 1 time to empty the pouch... but in the evening I drink a little water.

Sorry for my english. At the next time.
Marco.


Posted: Thu Jun 11, 2009 1:06 pm
[quote="Azimuth"]Hi Roberto, I am an urostomate too since 1976. It's true, in all forum there are thread on ileo e colonstomy. The management of urostomy is difficult but with the new uro-pouch the life is easier. The leakage are not very frequent.
I have an urostomy for neurologic dysfunction of the bladder that was not removed.
I change the wafer every 2 days and the pouch every day. In the night not use the night-bag and i get up 1 time to empty the pouch... but in the evening I drink a little water.

Sorry for my english. At the next time.
Marco.

[roberto/quote]  hi azimuth, dont worry about the language, so long as you can convey your problems. Medical Technology has advanced so much since 1976, now you get get the right appliances, under the advice of your qualified ET. I am using the two piece system & a night drain sytem attached to ny bed to hold the urine contents from the primary uropouch. If you use the night drain system, again under guidance of the ET, the frequency of changing the wafer or the pouch will reduce. Pouches are reuseable if properly sanitised & disinfected.  I will in the meanwhile, consult my Urologist on your type of problem, ie neurological dysfunction of the bladder, and revert to you. I am not a medical professional, and a Cancer Urostomy survivor, hence I would like to avoid any misguidance, on this sort of serious issue. BEST OF LUCK![quote]
  Guest


Posted: Mon Jun 15, 2009 5:51 am
Hi Fellow Urostomates (especially Roberto and Azimuth),

I've had my urostomy for 15 months and things are going well at the moment. I too had bladder cancer, Roberto and am hoping that the cystectomy got rid of all the cancer.

I love connecting the night bag each night because I can sleep uninterrupted, except for our rooster which has been waking me since it learnt to crow!

I live in Australia, where there is excellent support if you live in a big city. I live in a tiny town in the country but travel to the city for meetings.

Hope to talk some more,

Cheers Julie
Nurse


Posted: Mon Jun 15, 2009 5:33 pm
Hi Marco
I am not sure what country you live in and the availability of different supplies.  Since you have had your urostomy many years, I might be stating the obvious ....  but will do so anyway.

Frequent leaks, making for frequent pouch changes:  the best thing to do is get an ostomy nurse to check out your stoma, check for skin creases.  If creases present, often a convex wafer helps ; will also help your stoma to "spout out" and not drain at the skin line.  Another option, adding a washer around the stoma such as Eakins ring by Convatec (www.convatec.com ) or Hollister Adapt ring (www.hollister.com); Coloplast has them too and alos some nice strips that can also be molded around the stoma or put into creases (I am sorry, the name escapes me.

Adding a regular ostomy belt that attaches to the pouch and secured snug can also add to security from leaks.  The night bag for drainage is also helpful.  

Mucosperse (just google the name, many sellers) added to the pouch may help mucous blockages also.

I would prefer my patients get  at least 3 days wear time from a pouch ...but if 2 solid days without leakage and no other issues and everything else tried, then I would consider  it OK as opposed to a stomal reconstruction.

I hope some of these things help.  I'm sure you could give some tips yourself!
_________________
* Certified Wound and Ostomy Care Nurse
* Registered Nurse
* Bachelor of Science in Nursing


Posted: Wed Jun 17, 2009 7:00 am
Thank you for your tip. I am from Italy.
Luckily I have not frequent leaks, and the skin around the stoma has not skin creases. I go to my ostomy nurse about every 2 years and once a year I make a check-up and after I go to my urologist specially for my kidney.
I don't use an ostomy belt. I will try it
I have a question for you. In my free time I go climbing or go trekking. I need of a cover for my stoma to protect it from damage. Do you know something that I can use?
Marco
Nurse


Posted: Thu Jun 18, 2009 10:36 am
www.sto-med.com

Try this website, they have many different protective shields.  When I first became an ostomy RN, I met the original inventor and a female pt. trialed a shield for square dancing..she liked it.  The webiste/owner might be able to suggest one.  It is in the US but maybe they have similar things in Italy???

Italy!!! Wow!  A place on my list of things to see before I die!  (Eat and drink my way through!)
_________________
* Certified Wound and Ostomy Care Nurse
* Registered Nurse
* Bachelor of Science in Nursing
* Please, do not post contact information like email, Facebook or MySpace account, or phone number. It will be removed by the Administartor.
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