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Gall Bladder Removal and Ileostomy

Posted: Fri Nov 23, 2012 3:43 pm

I'm considering having my gall bladder removed, and would welcome any information from ostomates who have had this operation.

I have an ileostomy (no large colon at all) and am interested to hear others' experiences of how the constant flow of bile affects digestion and output etc.

If anyone has any tips on how to avoid gall bladder removal, that would be brilliant too!


Linda Smile

Posted: Sat Nov 24, 2012 2:51 am
Hi Linda,

I haven't had my gall bladder removed but on my initial CT scan before ileostomy surgery the report indicated that my "gall bladder was packed with gall stones".  I asked my surgeon about this and he said that many people have gall stones in their gall bladder all their lives with no complications.  Problems can occur when the stones become dislodged leading to blockages in the bile ducts (but there would be severe symptoms such as jaundice, severe nausea and pain, etc, to alert you to this and off to the doctor you would go).

I figured as they haven't given me any grief as yet (touch wood) will leave 'em alone, and I would prefer to keep as many organs intact as I can, given that I like you are colon free, plus the fact I have full intention of never entering a hospital ever again (as a patient) if I can help it!

But having said that apparently a cholecystectomy (technical term for gall bladder removal) is a very simple procedure, and I haven't heard of any major problems with people that have had them removed.  Hopefully someone that has been through it all can give you more info.

As to prevention, plenty of water and hydration seems to be the general consensus (and steering clear of fatty foods), and this is always a good move with us ileostomates anyway.

Cheers my fellow Oz-tomate (just checked your profile!),

Posted: Mon Dec 10, 2012 1:50 am
I am an ileostomate and had my gall bladder removed a couple of years ago. Modern surgical techniques are non-intrusive and quite safe. I had this surgery in a modern hospital in Dubai. Of course a GI specialist saw me and advised the surgeon prior to the operation. The outcome was excellent and has not impacted my ostomy care at all. I felt so much better and relieved afterwards. Hope this helps.

Posted: Mon Dec 10, 2012 8:53 am
I have had my ileostomy scince i was 24 i'm now 58. i had my gall bladder out last year, with no problems. Rich

Posted: Mon Dec 10, 2012 11:11 am
I've had an Ileostomy since 2005 and my gall bladder was removed in 2008 with absolutely no problems. My surgeon said my gall bladder had several large stones in it. I'd say if your having issues "Go for it" Good luck.  Bob

Posted: Mon Dec 10, 2012 12:42 pm
Hi, I have had my Ileostomy since 1961 and had my glallbladder removed about a year ago. I have noticed no difference in anything! Good luck.

Posted: Wed Jan 02, 2013 2:05 am
Thanks to everyone who took the time to reply to my post. Your advice and insights are much appreciated, and helpful.

At this stage, despite some ups and downs, my gall bladder is settling with the help of herbs and some dietary modifications.  Finger's crossed it continues to behave itself, but it's good to know that, should l require the operation in the future, the outlook seems good for ostomates! Smile

Thanks again,

Linda Smile

Posted: Mon Jan 21, 2013 12:02 am
Hi There,

I was having severe Gallbladder issues it was ready to bust, i saw a surgeon in my city, who said if they removed it...that it would change the output of stool. So i put it off as long as i could. I've had an Ileostomy for 30 yrs, I didn't want to disrupt anything. I went away, while away i was in desperate pain, My friend took me to the hospital where they did emergency surgery. Really i was concerned about what the dr's had told me in my city, but honestly i have never felt better and have had no problems at all with any changes in output. Everyone is different however. Talk to your doctors, they'll have the right advice.

Good luck!

Posted: Sat Feb 16, 2013 2:40 am
mine seems to be the other way round, gallbladder removed 17 years ago when i was 22 as i had huge stones causing me problems, had my ileostomy september 2010 and my output is, well only way to put it is totally unmanagable, to the point of 6 litres per day. i am on 42 tablets per day aswel as a monthly injection to try and slow things down.  unfortunatly none of this seems to help, every day i have leaks, night bursts etc and to top it all off sensitive skin so uyou can imagine the state of my skin. along with my consultant i have seen 2 others and they have came to the same conclusion, "because i have no gallbladder". BUT not 1 of these specialists will put this in writing, i find it impossible to manage or even cope with, , , Well thats my story, seems most people i have spoken to have their ileostomy first without much problems at all , ,


geordie casper

Posted: Mon Nov 25, 2013 1:12 pm
Had same issue after gallbladder removed--watery output seal broke on ileostomy appliance ;leaks,went to Surgeon he said fiber supplement and also Imodium pills, seem to help some depends on diet to? Chocolate, sugar, fats fried foods set it off. If I use Imodium & fiber bar like Metamucil it does help.Good luck.
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