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Open skin wounds developing around ileostomy stoma


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 txgal914





PostPosted: Sat Oct 19, 2013 10:39 pm    Post subject: Open skin wounds developing around ileostomy stoma Reply with quote

I have had my ileostomy since 1991 when I was 19. I am now 42 and have started having open wounds develop on the skin immediately surrounding the stoma starting about a year ago. I have never had this occur in all these years. These wounds are not being caused by any excoriation issues, changes in skin care products, my hygiene routine, etc or anything else I can possibly think of. I am a registered nurse and have very good hygiene and take exellent care of my stoma and use well-fitting appliances. I do know how to properly care for the wounds when they occur, and can get them to completely heal in about a week or so. The problem is they keep re-occuring. I have been to my GI specialist and my GI surgeon. Neither one of them have an explanation of why these spontaneous and painful wounds keep happening to me. The surgeon will not do anything about them unless they become infected, and so far that has not happened. This is just very frustrating and embarrassing because, as you can imagine, my appliance will start leaking at any given time because I cannot get an adequate seal of my appliance when the wound is present. All of my bloodwork has come back normal. However, I have not had any x-rays, scans, or MRI's done. Has anyone else ever experienced these kind of issues or complications or have any suggestions or ideas on how to stop these wounds from repeating?
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 Ewesful





PostPosted: Mon Oct 21, 2013 6:44 pm    Post subject: Reply with quote

I have had some issues with open wound -- I stumbled onto a solution that is working at the moment -- I cut the hole in the bag to just barely fit the stoma - not a speck bigger -- use the powder and skin barrier 2x then really heat the glue on the bag - when I put the hole over the stoma, I push the stoma in and firmly push the glue down around it -- apparently the acids etc were eating at the glue and then the skin - --I know this really cured the problem for me.  If you find other solutions, I'd be interested too.
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 skidder





PostPosted: Mon Oct 21, 2013 9:17 pm    Post subject: Reply with quote

Hello Txgal, Skidder here.
I presently have some excoriation with the mucosal tissue around the stoma. I am also in the healthcare profession. My hygiene is as most, very good but problems still arise. I have that problem at present too. I have had CT's, MRI's, Ultrasounds, Labs....come to find out I have a parastomal hernia. I cannot lie flat, sitting is not the most comfortable...both because it causes the wafer to pull from the skin where the hernia is. Standing and laying down in a fetal position with pillows positioned around my ostomy are the most comfortable. My surgery is scheduled for Oct. 30th and crazy as it sounds I am ready for it. My lifestyle at present is very sedentary and I don't take kindly to that! Normally I'm just a very physical person, I love life and no way do I feel 63! I can't wait to get back to my old self and I really do hope you find some solutions and dang it....get healthy again without having to worry about "Leo"!
The best to ya....
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 marisa.s





PostPosted: Tue Oct 22, 2013 8:47 am    Post subject: Reply with quote

I would try seeing a dermatologist - sometimes they can figure out what is going on with the skin.  

Another thought is to use duaderm dressings under your flange.

Hope you find a solution.

Marisa
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 Juuust_Jim





PostPosted: Wed Oct 23, 2013 3:16 am    Post subject: Reply with quote

most definitely see a Dermatologist ASAP. I had a rare skin condition about 18 yrs ago often linked to digestive disorders called pyoderma gangrenosum - fortunately not around my stoma where it would have been even more painful and difficult to treat - but on my extremities. My Surgeon and Ostomy nurse had never seen anything like it, and referred me to the Dermo lab, and the chief resident knew what it was right away. Google that condition and find some photo and see if it resembles what you have? it forms crater-like lesions where the skin appears to be burned or slightly eaten away. I cross my fingers this is not what you have, because it is extremely painful and requires heavy doses of the dreaded Prednisone to get rid of.
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 skeeteranne





PostPosted: Sat Oct 26, 2013 12:43 pm    Post subject: Reply with quote

                                 
Ewesful wrote:
I have had some issues with open wound -- I stumbled onto a solution that is working at the moment -- I cut the hole in the bag to just barely fit the stoma - not a speck bigger -- use the powder and skin barrier 2x then really heat the glue on the bag - when I put the hole over the stoma, I push the stoma in and firmly push the glue down around it -- apparently the acids etc were eating at the glue and then the skin - --I know this really cured the problem for me.  If you find other solutions, I'd be interested too.
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 seasport





PostPosted: Wed Oct 30, 2013 5:19 pm    Post subject: Reply with quote

Hello....I had the same type of problem. I went to a few derma. doctors and couldn't get any help. Finally I found a doctor out of Johns Hopkins here in Maryland. He put me on a drug called CellCept (sp?). The pain was like that of a 3rd degree burn. After about 2-3 months of the drugs the pyoderma gangranosum cleared up and went away. Of course it left me with on heck of a scar. I suggest searching for a good derma. doctor. Good Luck


Bonnie
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 Pooter





PostPosted: Mon Jan 20, 2014 8:45 pm    Post subject: Reply with quote

I have had my Ileostomy for 42 yrs. I have a hole beside my stoma. It gets in the way of my pouch on skin. I have to change my pouch daily, also have a huge parastoma hernia. I think my sores are from Crohns. Just a guess. Have not been to Dr. due to no insurance.
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