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This is the best website for people with an Ostomy. So much understanding.


RaenotRay wrote:

• I can’t answer the pooing questions thoroughly yet, as all I’ve been able to expel is surgery stuff. Mostly blue dye. A lot of blue dye. 😂

• I can still feel my stoma ‘breathing’ ...

Packing! Ugh. I don't mind surgery, recovery or hospital stays. But I freakin' HATE packing. 

Sounds like things are progressing nicely for you. I'm glad and hope that trend continues. Thanks for the update and condolences on the packing.

 


RaenotRay wrote:

• I can’t answer the pooing questions thoroughly yet, as all I’ve been able to expel is surgery stuff. Mostly blue dye. A lot of blue dye. 😂

• I can still feel my stoma ‘breathing’ ...

Packing! Ugh. I don't mind surgery, recovery or hospital stays. But I freakin' HATE packing. 

Sounds like things are progressing nicely for you. I'm glad and hope that trend continues. Thanks for the update and condolences on the packing.

MeetAnOstoMate - 28,297 members
 


StPetie wrote:

Packing! Ugh. I don't mind surgery, recovery or hospital stays. But I freakin' HATE packing. 

Sounds like things are progressing nicely for you. I'm glad and hope that trend continues. Thanks for...

     You are so right about the packing. I had to pack my midline, and I couldn’t even see it. Now I tear up every time I pack this one, and it’s not even that bad. 😂

     Thank you so much for the kind words. ❤️

 


RaenotRay wrote:

     Okay, it’s time for some bullet points to honor Alex, and to paint a lovely picture for everyone. 😂 These messages have made me laugh so much recently. ❤️
• My procedure was a lit...

WTH, let’s see what ya got. 🤭😮😁

 


AlexT wrote:

WTH, let’s see what ya got. 🤭😮😁

Okay, yucky pics going up in my bio. 😜

 


RaenotRay wrote:

Okay, yucky pics going up in my bio. 😜

So, why don’t they stitch your stoma opening closed? I have no smart ass reply coming, I’m just asking cause I figured they’d stitch it closed.  BTW, if you took your stoma picture, made it a little smaller,  moved it to my butt, you’d have about an exact picture of what my radiation wound looked like before doing hyperbaric oxygen treatments. You all are welcome for that visual. 😁 😘


 


RaenotRay wrote:

Okay, yucky pics going up in my bio. 😜

Looks like the Eye of Sauron from Lord of the Rings, "few could endure it's terrible gaze" but I'm sure you will close that mofo's eye with no problems at all!  

Healing vibes and hugs headed your way Rae! 🤗

 


Anonymous wrote:

Looks like the Eye of Sauron from Lord of the Rings, "few could endure it's terrible gaze" but I'm sure you will close that mofo's eye with no problems at all!  

Healing vibes and hugs headed ...

The Eye of Rae. 😂 Sorry, Jo set me up for that, it was too easy. You can throat punch me if ya want. 😬

 


AlexT wrote:

So, why don’t they stitch your stoma opening closed? I have no smart ass reply coming, I’m just asking cause I figured they’d stitch it closed.  BTW, if you took your stoma picture, made it ...

     Definitely a steamy mental image Alex. 😂 

     The surgeon doesn’t close the opening because it’s dirty from housing the stoma. Every day I have to clean out the opening and pack it lightly with gauze before taping it up. It heals from the inside out in 4-8 weeks. 😜

 


Anonymous wrote:

Looks like the Eye of Sauron from Lord of the Rings, "few could endure it's terrible gaze" but I'm sure you will close that mofo's eye with no problems at all!  

Healing vibes and hugs headed ...

     I love this! I’m definitely going to blind this bastard! Thanks Jo! ❤️

 


AlexT wrote:

The Eye of Rae. 😂 Sorry, Jo set me up for that, it was too easy. You can throat punch me if ya want. 😬

     It actually made me feel pretty cool. We’ll save that throat punch. 😉


 


RaenotRay wrote:

Okay, yucky pics going up in my bio. 😜

I'm glad you are on the mend Rae. ❤️ Looks like you have the making of some beautiful scars. 🌻  We have to be our own kind of beautiful. 🥰❤️🦙🍁🌞



Last edited by on Tue Apr 19, 2022 6:08 am; edited 1 time in total
 

Loving the pics in your bio Rae, and you do indeed have your very own Eye Of Rae 😂! I honestly can’t remember how I cared for my wound after my reversal, but I do remember it healed up relatively quickly, so it can’t have been too bad. I don’t remember having to pack it, but who knows? 🤷🏻‍♀️ Certainly not me!


 

Hi Rae , seems like things are progressing nicely , soooo happy for you .  When I had my Ileo reversed there was some burning when I pooped . It was stomach acide overload  until your belly gets into the swing of things and operates properly . I always had a big jar of Vasalene handy , carried a small one in my ever present backpack .  You might have some control problems but that will get better with time . Unfortunately my J-Pouch didn't  work out for the long term .  

    I had to Pack that loooong  midline incision  for months  and it ia a bit scary at first but at least it didn't hurt all that much . It was just weird looking in my mirror and seeing something out of the Texas  Chainsaw Massacre  looking back at me !!  

    You really do look so healthy in your pics !!  Keep up the good work Rae  . It is quite strange for a while to have poop coming out of  Normal place   !! 

   Keep us posted , great pics . They bring back such memories !!  In the drainage hole in my side  they jammed something into the cavity to help the drainage flow . It was in quite a while so I had no clue what was in there but I could feel it . Then  it came time to remove the drainage  tube .  I was stretched out with  a towel over  the naughty bits and he starts pulling out the tube . As he came to the end  the very small wound began to stretch like a piece of runner as this big lump slowly emerged .  It seemed impossible for this huge thing to come out of such a small opening !!! Then I saw what it was . There were two hospital rubber gloves rolled up together and a Huge  Safety Pin , the big ones for Diapers .  When it popped out my stretched skin  snugged up tight again  and you wouldn't fir two fingertips into the  wound !!  I found it amazing how flexible your flesh is ....just call me Rubberman .

    Anyone else had that big Diaper Safety Pin trick ? 

   Get lots of rest Rae ....and don't you Dare stop visiting all your Osto friends  on here  now that you're  a Normal pooper  , so don't desert us ....Eamon ☘💚

 

Congrats Rae

I’m very happy for you and I hope you heal up nice. The packing would kill me, I just can’t handle that part, glad you are managing.

You better not leave, you are one of the very bright spots on this site for me! 

NGL I’m a bit jealous, I would love to say goodbye to my stoma.

All my best to you while you heal up and keep your awesome sense of humor and positivity!

Abe

aka 

Paul 

 


RaenotRay wrote:

     You are so right about the packing. I had to pack my midline, and I couldn’t even see it. Now I tear up every time I pack this one, and it’s not even that bad. 😂

     Thank you s...

I'm sorry you have to do that. At the same time I'm glad you get the opportunity to pack that particular one. So Yay for Rae! 

I checked out your photos. If your stoma had been top left instead of bottom right, we would have twinsie abdominal scarring.

I wish for your sake that wasn't the case.

 


Anonymous wrote:

I'm glad you are on the mend Rae. ❤️ Looks like you have the making of some beautiful scars. 🌻  We have to be our own kind of beautiful. 🥰❤️🦙🍁🌞

     I agree wholeheartedly. I’m going to rock that bikini every Summer. I’ll always have something to talk about with strangers, and maybe someday I’ll add some tattoos to liven things up. I couldn’t have done it without you Sal. Kindred spirits. ❤️

 


Meadow Snow wrote:

Loving the pics in your bio Rae, and you do indeed have your very own Eye Of Rae 😂! I honestly can’t remember how I cared for my wound after my reversal, but I do remember it healed up relativ...

     Haha, I love your responses Meadow. I imagine we’re sitting in the same room, and you’re thinking out loud. I can hear the cadence of your voice as you mentally struggle with the details. I hope we can all hang out one day. We have a great club. ❤️

 


Anonymous wrote:

Hi Rae , seems like things are progressing nicely , soooo happy for you .  When I had my Ileo reversed there was some burning when I pooped . It was stomach acide overload  until your belly gets ...

     Oh Eamon, I have to confess how much I loved reading your posts when I was really drugged up. My brain followed right along with your imagery, though my fingers were fat and useless. I think we knew each other in an opposite life maybe? There’s definitely familiarity when we talk. Almost like catching up with a friend you haven’t seen in a while. 😊

     I hated packing my midline so much. I couldn’t see it properly, and it made me nauseated to feel things fishing around. I teased my surgeon about this one. Telling her “Only the best for Rachel huh? You laid awake thinking of the most awkward scenario?” I love that we have that relationship, lol. She hugged me and told me to stay out of trouble. Me? 😇😅

     I’m never, ever leaving. I love y’all too much! ❤️


 


RaenotRay wrote:

     I agree wholeheartedly. I’m going to rock that bikini every Summer. I’ll always have something to talk about with strangers, and maybe someday I’ll add some tattoos to liven things up...

❤️

 


Abefroman1969 wrote:

Congrats Rae

I’m very happy for you and I hope you heal up nice. The packing would kill me, I just can’t handle that part, glad you are managing.

You better not leave, you are one of the very...

     Aww, sweet Paul. I wish I could wave a magic wand and give you all your wishes. I’m grateful you have an option at life, though the beginning is so intrusive. I know that soon, you’ll have figured out what works best for you, and then there will be no slowing you down. I honestly felt pretty normal before surgery. I knew how to eat and what appliances worked for me. I’m glad I got to experience relative normal before I had reversal surgery. ❤️
     You are stuck with me Paul. I’m going to stick around and hear all the ups and downs. We’re going to laugh, cry, and make cocktails together. I can’t wait until we can all have a proper adventure together. 🤗

-Rar

 


RaenotRay wrote:

     I agree wholeheartedly. I’m going to rock that bikini every Summer. I’ll always have something to talk about with strangers, and maybe someday I’ll add some tattoos to liven things up...

You knew this was coming…….pics or it didn’t happen. 😁

 


StPetie wrote:

I'm sorry you have to do that. At the same time I'm glad you get the opportunity to pack that particular one. So Yay for Rae! 

I checked out your photos. If your stoma had been top left instead o...

     I’d say we’re still twinsies. Maybe fraternal twins is all. 🥰

 


AlexT wrote:

You knew this was coming…….pics or it didn’t happen. 😁

Oh I will share pictures. It’s currently 50 degrees out, but we’ll get there. Heads up, I’m not paying for anyone’s therapy after I post said pictures. 😂

 

     For all that are curious: pooping is overrated. Thank you for coming to my Ted talk. 😜🤦🏼‍♀️💁🏼‍♀️


 


RaenotRay wrote:

     For all that are curious: pooping is overrated. Thank you for coming to my Ted talk. 😜🤦🏼‍♀️💁🏼‍♀️

😂😂😂

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