I've had a colostomy since 2002 and never had issues. I had a huge surgery to repair a fistula and now also have a urostomy. Both are on the front of my belly. I'm having such a hard time keeping them separated. I asked the surgeon to keep them far enough away, but it's difficult to say the least. A friend of mine suggested I go to an ostomy center in Lone Tree. It's very frustrating. I'm still recovering from the surgery and am so weak. Any help would be appreciated!
Rcote0621
Oct 15, 2022 3:42 am
Justbreathe
Oct 15, 2022 11:43 am
I have no help to offer, but I'd like you to know that my heart goes out to you - dealing with one bag, I frequently feel depressed (and shouldn't), so I cannot even imagine having to manage two of them. There are several on this site who have posted about having two bags - they are all heroes to me - including you. One day at a time is all an ostomate can do. This website helps me put things in perspective, and I turn to humor whenever possible and try to “choose happy” each day - not always easy though. I also sing a lot, and music helps. Some favorite lyrics from a song pop into my head when I get to feeling down…example:
“We are all puny specks of galactic dust here on Mother Earth.”
If you lose your job - sleep till noon,
If the news is bad - watch cartoons,
If your house burns down - you'll have lots more room,
And a much better view of the moon!”
Chin up, girl - you can do this! Hugs, JB
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Posted by: w30bob
Hi gang,
I was thinking what a great resource this site has been for me since I found it. It would have been really helpful, but maybe a bit scary, to have found it before my ostomy, but that's water under the bridge. But I got thinking about it, and now I'm questioning why doctors and hospitals don't provide this site's contact info to any patient even considering an ostomy today. And how can we change that so potential ostomates can learn about the road ahead for them by getting on here and asking questions before the docs go chop-chop. How exactly do you get all hospitals to provide their patients specific information, like this website?
I just happened to find this site something like 4 years after my ostomy when I Googled "ostomy forum" or something like that. But I never found it during previous searches.....so I found this site pretty much by pure luck. We need to find a way to make this site available to new or soon-to-be ostomates......as that's when we really need to commiserate with fellow ostomates. Anybody have any thoughts on how we do this?
Thanks,
Bob