All of you guys the latest is Hubby home!!
My neice & I went & sprung him.
He was getting very low, not eating cos he's a vegitarian & NO choices on menu other than cheese butties or some very dodgy looking slop. We took him a veggie subway & he ate the lot so lack of appetite more due to food choice than couldnt eat.
The surgeon was thinking of maybe letting him go the next morning however he got real upset when time nearly time for us to go. So I asked if I could sign him out. They sent for on call doc, she turned out to be a junior with no authority to decide on whether he could go or not so she advised for us to wait for the morning.
Hubby got more agitated so I decided to take the bull by horns & said well we will sign whateva he's coming home.
I discussed my reasoning...the surgeon had spoke to me direct the day of the scan saying no blockage, no leak & no danger just lazy bowel & we just had to wait for it to reawaken, I therefore said he may as well wait it out at home. Plus he couldnt eat their as little or no veggie food therefore bowel wouldnt even begin to operate until eating properly. Also if he tense so would his bowel which again would stop it from working properly. Finally I said we can always return if any problems, so it made sense to take him home if it made him happier.
Since being home less pain, less nausea, less swelling, more eating & drinking therefore finally bowels beginning to work, albeit a little watery but at least he now going a few times a day!!
Thanks again for supporting me through the bad.
I nearly didnt post again, as felt like I had upset someone by the bad time we was having. I got a little touchy am afraid, as we was really having it rough.
I had felt the comment about only wanting to hear good or happy stories was aimed at me for posting in the first place, especially given our full story has been real bad. I have deleted our story for that reason.
I am a positive person therefore although we have bad things happen believe good can be found in everything. I guess thats why I told our full story as good has prevailed through the toil.
With lots of gratitude to you all for your stories & advice.
Love Kizzed xx
Don't ever be afraid to post here please - that is how we help each other; I'm sorry someone gave you that impression..... we all go through good and bad times and that is why I for one am here - to give and receive support, and I am positive that is the same for most of us?
Please keep us posted with your progress?
Thanks for the encouragement...I'd hate to upset anyone but maybe I was being over-sensitive with Jenny's comment about bad news. I was going through the mill at the time. Hubby was so sure he was gona die. He felt something was seriously wrong & that the hosp staff just wasnt listening. Thankfully he was wrong...but it did worry after the last cock up that ALMOST DID cost him his life.
He does seem very traumatised by it all. I have never seen him so emotional...he thinks tears are a sign of weakness yet he openly cried in the ward & there has been a few since he got home. I keep re-assuring him its normal to feel like this after such a traumatic experience. He was let down by the hospital by their over cautiousness about re-opening him up last time. Their wait nearly was my loss, so it was obvious he & I would worry that waiting & watching for whatever was gona end up being a wait too late.
I dont think he will ever quite get over all this, but I am sure as time passes he & most definately I will appreciate much more the healthy days...I feel sure once healed he will feel healthier than ever before & NORMAL for the FIRST time in his life. He never felt normal because of his diabetes & the ensuing ill health. The severity of the diabetes caused tons of operations & further complications...he never thought he would be healthy again. Whereas having to have the bag even for the short time I think put into perspective that the diabetes wasnt as bad as he thought especially given that it is now controlled.
Like he often says "people with health have no idea what us people with ill-health & ensuing disability it often causes are going through". I myself was probably one of those people, however as I said but deleted I had my own pains to bare so could empathize.
He will never get rid of his disability status due to his difficulty in walking, remembering, etc. But what we are looking forward to is his better health. He is fitter just not fit if you know what I mean. He would never be able to run a marathon or do sport...but he can now control the thing that used to control him - DIABETES. I dont fear his impending death like I used to, he still worries but I guess thats natural after his Dad dying at only 52 diabetes related. His Dad was a fitter man in some respects. He had FULL mobility & was a martial arts teacher. So it is VERY natural to assume the same will get 'me' (him) too. But I assure him that the only reason his Dad met his demise was through stubborness & fear of medical people. As hubby is not so stubborn & allows medical intervention, it will never come to pass the same. (His Dad died from a leg ulcer that he refused to have treated by professionals, thus he got a clot which killed him.)
I totally agree Swiffer good news is definately the best news so I intend to update on his recovery, as I am sure we will hve lots of good news in the future. We intend also in time to resume our IVF (InVitro Fertilisation) efforts thus I feel sure one day we will hold the much wanted & loved child we so desire & all of this will of been completely worthwhile, hence my take on bad can become good if we choose to strive toward that goal.
Swiffer...unfortunately hubby isnt computer ready...ha ha!!...he cant even turn one on, so I will be his voice on here as such. But I do read all this out to him, it really helped today. You guys balstered (probably havent spelt that right) his fragile spirit. He said "wow people like me, isnt it nice that they care enough to share their own experiences even though it must be real painful to do so sometimes".
U GUYS are the hero's in my eyes...that poem that mild_mannered_super_hero added to page one of this:-
says it all. You have each put your burdens down to help others & hopefully the other part of the poem will thus come true...by helping others your own burdens lessen.
God Bless you all,with much thanks & love Kizzed xx
No need to apologise - it is hard watching someone you care for going through pain. My husband has watched me for the last year. The whole reason for this forum is to express feelings of sadness and joy.
My stools are still very loose but I was told by the surgeon to expect that so tell you husband not to worry if this happens. I am still taking movicol, omeprazole and docusate sodium capsules.
Thanks for your continued support & concern. Just to update you & anybody wondering about reversal recovery timescale.
Now 2 weeks & 2 days post op - No more pain, nausea, bloatedness. Weight gain now gone, back to normal weight. Appetite back to normal. Urination returning to normal amount. Stools still watery but with some normal mixed in. Urgency not as bad but still present especially after eating, it comes & goes. Was full body cut/open surgery, scar tissue almost healed. Emotional state back to normal happy self. No longer pre-occupied & worried. Now glad he had reversal.
Life almost back to normal, now just waiting for stools to return to normal consistency & Bowel Movement to return to normal regularity. Hoping to return to work (manual work mainly-recycler in busy yard shoveling waste into correct crusher + fork truck driver) on 23rd August 5 weeks post op.
Hope this helps others that find themselves worried & anxious as we was at the beginning.
God Bless Kizzed xx
Here's to a happy and healthy future
Beware incisional hernias (on the scar line) though with manual work ......
I've had a ileoatomy since march 2016 due to crohns disease. I continuously have nausea with dry heaves and sometimes vomit. Has anyone else had this issue? They can't seem to find anything wrong. I did have kidney stones a few weeks ago. And now they checking thyroid for I'm also losing gross amounts of hair.nany advise??
Under the 'Ostomy Reversal' Forum, I started a topic called 'Probiotics'. Antibiotics, aging and stress all reduce the natural probiotics we receive from our mothers as infants. You have to find the right kind and the right amount, and may have to let them build up in your system first. They aid in digestion and help us break down foods and this may help remove much of the cramping and bloating, and help with food intolerances. This should help you process your nutrition and vitamins better. Because of the more efficient digestion, they can make you lose some weight, so be careful to keep an eye on this and maybe try to eat some more if you can.
I knew someone who drank a ginger-ale with real ginger. She said it helped with her nausea.