I was told at my pre-op assessment a couple of weeks ago that my operation could be canceled due to the amount of flu going around, but was assured I'd be called at the last minute if it was. It got to late last night and I'd heard nothing, so I was happy that it must still have been going ahead. Just to make sure, I called the hospital this morning anyway and they said yes, no problem, it's still happening. So I get all my bags ready, etc., go to the hospital, and check in at the Surgical Admissions Lounge. I'm the second operation of the day, so I think great, chances are there are beds free. I have another quick meeting with the Anesthetist to check over everything and then get my wristbands, etc., from a nurse and sit back in the waiting room. I've just bought a new book for my 10-14 days in hospital, so I crack it out and whip through the first 50 or so pages. After just over 2 hours of waiting and reading, I get called through and told that the operation has now been canceled because there's no room in Intensive Care for me. The fact that there are ill people that deserve and need the bed more than me doesn't bother me at all; that's how things are and should be. I am, however, pissed off with the fact that I've wasted my entire morning just because some idiot couldn't ring the Intensive Care unit just to ask if there were any beds free. I now have to wait for another date to come through the post and have been told it could be at least a month or two. Great. Guess I best put another order in to Coloplast for some more Ostomy Bags. =(
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Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty
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