Living with Meningocele and Its Challenges

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Manukwi
Dec 06, 2011 7:08 pm

Dear Friends,

I was born with Meningocele and was operated on at the age of 1 year. The result was that I had no control of urine and bowel. Then in Jan. 1975, I underwent another operation for urinary diversion (Cap. Chloromycetin post-op.), which I think is called ileostomy.

Now I have a stoma outside, on the right side of my stomach, through which urine comes out and fills the urine bag that is fitted on my stoma. For bowel control, I maintain a food diet so that I am not in trouble, for others and myself. There are lots of ups and downs, but the fact is a fact and I have to accept it. I am unmarried and manage everything myself.

This is my small introduction.

Take care of your health.

Regards.

mild_mannered_super_hero
Dec 07, 2011 3:08 pm

Hello and welcome to the forum. You might get more views if you post this under the "Lets Talk" section of this same forum. I will add the link...

https://www.meetanostomate.org/discussion-forum/viewforum.php?f=9


This portion of the forum doesn't get much traffic, and I'm sure there are others who would like to welcome you. Regards, mmsh.........
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Posted by: BeachRN

Thank you for your quick reply. I'll discuss irrigation with my doctor. I'm sure it would be down the road. My output is still very liquid. It's all so unpredictable at 6 weeks post-op. I have such a fear of constipation as I struggled with this forever. I used a fiber source to thicken the stool but it hasn't helped very much. I guess I will continue to be positive but it is a bit of a pain. This website is great and everyone is so informative. Cheryl

Manukwi
Dec 07, 2011 8:08 pm

Hi Dear,

Thanks for your mail. I will post in the Let's Talk section.

Take care,

Bye.