Living with Meningocele and Its Challenges

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Manukwi
Dec 06, 2011 7:08 pm

Dear Friends,

I was born with Meningocele and was operated on at the age of 1 year. The result was that I had no control of urine and bowel. Then in Jan. 1975, I underwent another operation for urinary diversion (Cap. Chloromycetin post-op.), which I think is called ileostomy.

Now I have a stoma outside, on the right side of my stomach, through which urine comes out and fills the urine bag that is fitted on my stoma. For bowel control, I maintain a food diet so that I am not in trouble, for others and myself. There are lots of ups and downs, but the fact is a fact and I have to accept it. I am unmarried and manage everything myself.

This is my small introduction.

Take care of your health.

Regards.

mild_mannered_super_hero
Dec 07, 2011 3:08 pm

Hello and welcome to the forum. You might get more views if you post this under the "Lets Talk" section of this same forum. I will add the link...

https://www.meetanostomate.org/discussion-forum/viewforum.php?f=9


This portion of the forum doesn't get much traffic, and I'm sure there are others who would like to welcome you. Regards, mmsh.........
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Posted by: freedancer

In both of my cases, I had no choice. It was surgery or be put 6 feet under! I thank God that He has been with me all these times. Without Him, I never would have known what to do and might not have gone to the hospital when I did. I don't know if you have had your surgery or not yet but I hope you will hang out on this website when you are done. I have learned a great deal through the people here and it is so great having others who have had the same thing done and been through what you are about to or have gone through. The only thing I have turned down is a reversal of the ileostomy. When the doctors did the emergency rebuilding of my original ileostomy this last February, I told them I did not want to go through this again. My doctor told me at that time that I was no longer a candidate for the reversal. In a way, I was very relieved. The last three years of my life have been a nightmare for me. I do not want to go through any of it again. If you wish to be rehooked up and they say you are a good choice for that, research it carefully. Every surgery I have ever had except for Old and New Maxine and the emergency surgery on my broken foot, I have spent weeks researching. I recently had my C5 C6 disk in my neck replaced with an artificial one. I went to my pre-op with 2 pages of questions for the doctor. I knew everything that they were going to do and could talk intelligently with them. I always try to research my adversaries! Don't cancel your surgery. It is nice not to have to suffer any longer with horrible pain. We all had to change a few things around when we had our surgeries but in the long run, most of us are glad we did it. I know I am. Good luck to you!

Manukwi
Dec 07, 2011 8:08 pm

Hi Dear,

Thanks for your mail. I will post in the Let's Talk section.

Take care,

Bye.