I started developing a hernia shortly after my ileostomy surgery. It looked like I had half of a tennis ball around my stoma which made it somewhat difficult to get my flange adheasive to form around the "hump". After about a year and a half, I woke up one morning with the most horrific pain I had ever had in my life. I know I passed out at least twice and my daughter found me in a pool of sweat on the bathroom floor and got me to the hospital. Turns out 8 inches of me small intestine had pushed through the hernia and got twisted and blocked everything. Emergency surgery was required but the surgeon told me he was not a specialist in this area. He pushed everything back in sewed things up, along with removing a lot of scarred tissue from my initial surgery. He told me the hernia "hole" was big enough for him to put his fist through. Again he stated that he only sewed things back together and tighten things up around my stoma. He said the correct way to "fix" this would be to move the stoma to a different location and repair the old site with mesh.
I had been wearing a hernia belt since the repair but now, 5 months later, the buldge is back and I fear that I will eventually have to have another surgery. Any time I cough or sneeze I have to bend over and hold my abdomine tightly for fear of blowing everything out again. I think I actually feel better when I'm NOT wearing the hernia belt. The surgeon told me there is really nothing I can do to prevent it from returning. He said, "If it's going to happen, it will happen."
I am so parinoid about having to have stoma moving surgery! Has anyone had stoma moving surgery due to a hernia?