Oy Vey, I keep rolling on my stomach when I’m sleeping! The first time it happened I awoke in the morning with poop ??'? that got squeezed out of the filter hole like tooth paste. Thankfully my output was thick so only a little got on the sheets... so of course I had to change the whole thing out. Then the night before last, my wife woke me up, again sleeping on my stomach. There was no apparent leaks, until yesterday I felt burning on my skin. Low and behold a leak, albeit a small one, barely visible on the side, just enough to burn my skin. I’m at a loss at what to do.? Last night I used a belt, I think it helped. I’m open to any suggestions . I have an ileostomy, located on the on the right slightly over my bellybutton.
Rozanskyism
Apr 06, 2018 6:41 pm
NJ Bain
Apr 06, 2018 7:19 pm
David,
I would suggest using a pouch that doesn't have a filter. They're annoying to me anyways. The pouches are pretty durable so even if you roll over on your stomach, the likelyhood of a blow out is slim if you're using a 1 piece. I can't say the same for a 2 piece system since I've never used them.
Try to finish your last meal of the day within 5 hours of going to sleep so most of the output is gone by that time. I sometimes wake up in the night if I haven't followed that rule with a football size pouch. Since I live alone, I burp the gas out of it while I'm lying down, then get up to empty it.
Bain
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Posted by: SharkFan
Good Evening Bob and All,
I checked my email and saw new postings. That's when I usually visit the site. I've recently met a few others who have developed UC and have made contact with them. I've directed them to this site. I also use the site to look up concerns they or I have. This site has been unusually helpful to me. I have seen questions and concerns of others posted. After I scroll down and see similar comments that I would make, I don't comment. As for social media interest, I have a Facebook account (due to work). As of this date, I have one Facebook Friend (and don't even know how that happened). I find the content here more relevant to my life. Then again, I'm old school. If I want to see how a friend is doing I just make a call.
Stay Safe and Sane all. Back to the hockey game,
SharkFan
Rozanskyism
Apr 06, 2018 11:20 pm
The one piece solution sounds like a good one. I have quite a few of them, but I thought they all come with filters?
Also what do you do when your skin gets really sore?
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Past Member
Apr 06, 2018 11:51 pm
I run around with no pouch for days.just baby wipes and sandwich bags holding moisture back then your wrap or belt wrap.holds it all back.no pouch to clean.
dadnabbit
Apr 07, 2018 4:14 am
Rozanskyism, when I get irritated skin around the stoma from a leak, I use Anascept by Anacapa Technologies. It comes in gel or spray form. I get it online from jet.com. It is expensive (about $30.00 for a 3 oz tube of gel or an 8 oz spray bottle) but very well worth it, as it usually lasts me for a number of months. It requires very little each time, and it kills all bacteria, even C. diff and MRSA.
If I am changing due to an unexpected leak and not taking a shower, I use the spray and gauze to clean up and proceed with my regular routine. If it is after my daily shower and if I have irritated skin from any cause, I put the gel on clean skin, rub it in, and allow it to dry fully. I don't usually have an active stoma first thing in the morning, but if I do and can't leave it uncovered for any length of time, I rub the Anascept in, wipe the excess off with gauze, making sure the skin is dry. Then I use a barrier wipe on the skin to help protect it from future leaks. I apply the SenSura Mio one-piece, which is the appliance I prefer. I don't care for the filter, but I prefer the Mio to any other system I have tried, so I put up with the filter. I don't use wafers (like slims, etc.) or paste, so basically my daily routine involves one barrier wipe and the Mio, but if it is very humid, I will use either tape or the Brava elastic barrier strips by Coloplast for extra strength in helping the Mio to stay adhered. I believe that less is more, but I refuse not to change daily. I have heard people say your skin can't take the daily change, but I have not had any problems with skin issues from changing daily. I prefer to shower naked daily; it's just a personal choice. It is more costly, though, as most insurance and Medicare will only cover 20 changes monthly, so out of pocket can be costly, but I have found that by not using a lot of the other "regular" products (which I have found mostly unnecessary), the difference in my monthly costs is worthwhile and manageable.
Just FYI, I receive no compensation from Anacapa Technologies for promoting their product; I have just found it extremely helpful in caring for any kind of wound, so I share the data with those it could help. I have even turned my PCP on to it, and she has found it an excellent product. And as costly as it is, it requires very little and lasts me quite a while. Since using it, I have found that I have very few skin irritations. Changing daily also seems to help with that issue. Also, if you're using a filtered appliance, use the little tag they supply to put over the vent. It helps. Good luck.
Peace
Nancy
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