Phantom Rectum Syndrome
I recently joined this site and sent out a request to hear from anyone who was double bagged like me ie. has a colostomy and urostomy. Given the rarity of that situation, it was nice to hear from a couple members who could fully relate. It's not my intention to brag about how special I am, but now I want to put out another call for a condition that is apparently even more rare. It's call phantom rectum and it's as bad as it sounds. It's just like a person having a leg amputated, then feeling pain in the leg that's no longer there. So every pain imaginable that a rectum could cause is created in my brain and it feels 1000% real. I will spare you the nasty details but the pain in combination with the location made it feel like torture. Eventually by chance I was referred to a neurologist pain dr. Who tried an off label opiate use to treat heroine addicts. It helped, then with a addition of smoking marijuana(legal in Canada) I got to a point where life was worth living again. So if there is anyone else out there who has experienced my misfortunes, check in. Maybe my unusual combination of meds might be useful to others.
best in the new year