The Social

Most of you know I left my spouse and moved into my own apartment and secured a part time job.  I am curious if there are any others in ostomy land that have gone through this??  I am having an anxiety issue that comes up every night, right at bedtime.  It has seriously interfered with my sleep and so am becoming exhausted from no sleep.  It also has caused interference wit my using my CPAP.  This odd anxiety has caused some pretty mean panic attacks and seems to start right when I start to go to sleep.   It a...

    "Piglet?" said Pooh. "Yes Pooh?" said Piglet. "Do you ever have days when everything feels... Not Very Okay At All? And sometimes you don't even know why you feel Not Very Okay At All, you just know that you do." Piglet nodded his head sagely. "Oh yes," said Piglet. "I definitely have those days." "Really?" said Pooh in surprise. "I would never have thought that. You always seem so happy and like you have got everything in life all sorted out." "Ah," said Piglet. "Well here's the thing. There are two things that you ...

Hellp old friends & new Osties ..  Quick update ..  Had my Urostomy for 11 & a half yrs now , so well used to it , no dramas  & somtimes forget that I once had a troublesom cancer . A complete  removal of yourbladder is no fun  ( Radical Cyrectomy ) but !! hey ho !I'm still here . Havnt bought any more strange cars  lately , i;'m getting older so seem to have settled down with  the 2014 Skoda Roomster SEauto & family Skoda Fabia Wagon 2008 .. I think on of these should see me out!! Weathe...

Does anyone know if you have surgery for a thyroid when you have an illeostomy does it affect your ostomy in anyway?I would appreciate any feedback?

I had my surgery on April 1, 2016, his name is Tommy. I have made peace with Tommy, I think. Changing, maintaining, living with, all is second nature. I wear a wrap, which I call my bra, and off I go. Rarely do I feel that Tommy makes an entrance before I do. Even my boyfriend forgets that I have it. I've even gotten used to the occasional 'ostomy burp'. I call it the trump solo.  The only thing that I can still not get used to is the 'blues'. My primary doctor says that it's normal. My coloraectal doctor says it's normal. The only o...

I HEARD ABOUT A 92 YEAR OLD MAN.  HE WASN’T FEELING TO GOOD. THE MAN WENT TO THE DOCTOR.  A FEW DAYS LATER  THE DOCTOR SAW HIM AT THE PARK , AS HAPPY AS CAN BE. HE WAS WITH A BEAUTIFUL YOUNG LADY.  THE DOCTOR SAID , YOU SURE ARE FEELING BETTER. THE MAN REPLIED:  I,M FOLLOWING YOUR ORDERS.  YOU SAID GET A HOT MAMA AND STAY CHEERFUL. THE DOCTOR SAID , I DIDN,T SAY THAT, I SAID YOU HAVE A HEART MURMUR AND BE CAREFUL. MINISTER  JOEL OLSTON ON TV TOLD THIS JOKE. IT MADE ME LAUGH, I THOUGHT PERHAPS Y...

I was fortunate to have my grand babies and daughter here with me while son in law was teaching music camp in Kalispel Montana.  I live in Billings Montana.  I haven't seen them in about a year so I had missed them greatly.  We had a great deal of fun but boy oh boy have I gotten rusty having little ones around!  The three year old is a holy terror and my daughter has nerves of pure steel.  There were several times that I would have totally lost it with him and paddled his butt.  She, on the other hand, was ab...

When I first signed up on this site a few months ago, I was totally devastated by what had happened to me...which I think is fairly normal.  What I didn't know was that I am actually lucky.  After reading some of the posts and talking to people, I realize that so many of you on this site are dealing with so much more than I am on a daily basis.  And you do it so WELL.  So much BETTER than I was dealing with things.  The courage, determination and spirit I have seen on this site has absolutely amazed me.  To sa...

Many people with ostomies don't need to wear a bag, there's the continent illeostomy a.k.a.(koch pouch), and the B.C.I.R. pouch, very successful procedures compared to the Jpouch and other pouches like the W-pouch and the S-pouch that are full of pain and suffering to the patient without much success to see.

New Maxine is doing well and holding her own.  No pain since my redo on 17 February 2018.  I have been blessed to have my grandbabies and daughter here with me for two weeks. They live in Boston so it was quite a trip for them.  I have started to experiment with new foods with great success! I went from being able to eat hardly anything, to being able to significantly add vegetables to my diet.  It has been great! I so missed them for the 7 months of Old Maxine who strictured shortly after she was created.  New Max...

Hope I can stay up long enough to see the fireworks.

Keep hope - Strong to overcome all difficulties Hello everyone, I'm new Member Adam. Very excited to participate in the Forum of the same people.I also loved getting the disease melanoma. The time period when the discovery of the disease it's really extremely difficult, I believe that those who here feels the same.But not because of illness and suffering makes us frustrated, our family was always together, strong to go through. And now it's almost back to "spin" your life our previous fun. After being part of surgical removal of melanoma ...

There is somebody I want to talk to based on his location and interests.  If I don't have a full membership how do I contact him?

So, it was time for my whipple procedure. The adenoma count is just that high and a few were showing changes that give the impression that cancer was a-comin". Now, before being wheeled in, I once again informed my surgeon that I did NOT want short gut syndrome. When they got me opened up they found Desmond tumors that spanned my whole small intestine and had invaded the blood supply. The only way to do my whipple was to remove my small intestine, but..uhmm..I already have no colon! Result would be even worse than short but syndrome, so th...