Ileostomy

I would like to share tips, secrets, anything that helps intimacy be more alluring to others.  Dont be shy, I need answers.

Looking for feedback from those who have ileostomies and especially anyone who had a colostomy that was changed to an ileostomy. A little over 6 years ago I got a permanent colostomy. But now my gastro doctor said because of a bad stricture and...

Due to recent events in my life, have been feeling the need to go out and get absolutely sh*t-faced! As previously  I  have only had a glass or two of wine with dinner (and had no problems) was wondering if I have a &nb...

Hoping someone out there can give me some words of wisdom.  I had ileostomy done 2 1/2 years ago.  Due to chrones and my colon exploding in seventeen different biopsied pieces, I had a Very Good outlook of my surprised surger...

?i have had an ileostomy for 51 years. does anyone have any information on long a person has lived with an ostomy? Also, any information about conditions that are caused by having ileostomy for so many years would be appreciated.

hello I have just joined this site.  Not sure how it quite works yet. I have a ileostomy and I am single.  When I seem to meet guys and you tell them you have a Ileostomy they quickly disappear. Just wondering if anybod...

Hi - I guess this is the correct forum to ask post this.  My husband has bilateral nephrostomies, a urostomy, and now an ileostomy. He hates Ensure, Boost, Special K breakfast drink, and Carnation Instant Breakfast. I've mixed them wit...

Well friends once again I'm in need of information. A little background, two months ago I had to buy new jeans so I got them a couple of inches larger than normal, next I put on my braces to keep my pants from falling to my knees. As i sit here ...

I have to have one last surgery to take out the rectum (can't leave it due to cancer risk) as I've decided not to re-attach.  Haven't had any issues since my ileostomy 4 years ago and don't really want to go through the recovery and po...

Hiya everyone. I am soon to have surgery for ulcerative colitis. I'm just very confused which surgical option to choose.  - I can either choose to have a total colectomy with removal of rectum and anus and have a permanent bag. - I can ha...

I am trying to find out how long everyone had to wear diapers after their surgeries. my boyfriend had an ileostomy and is still having issues with anal leakage. he is still in diapers 8 weeks post surgery. please help

Hi ...i had a emergency ileostomy done in feb 2012. I was on life support and in a coma in icu for over 4 weeks. It was a shock to wake up with this bag hanging off me....they said they could do a reversal....in a few months... Well a few mont...

Hello does anyone know what food to stay away from or what is good. I only had this done so I am all new to this.

Hello, I'm new to this site and i have been living with an ileostomy since 1978 due to severe ulcerative colitis.The question i have is after your (ileostomy only) surgery did your start to develop periodic bouts with depression and or anxiety...

I had an attempted colostomy reversal, they found yet another leak and now I have an ileostomy.  I am having trouble getting my bag on before any output and it's made the skin below my stoma very red and raw.  Anyone have tip...

Just over a month since my perm ileostomy. Have had moderate to heavy anal discharge and thought it was the rectum healing/weeping (surgeon left a rectal stump) or an infection. Saw surgeon last week ... he's saying it's the UC in what's left ...

Can I ask what others experience has been with weight gain (or lack thereof) following an Ileostomy? I had my Ileostomy coming up to a year ago (it will be a year in May). This was after suffering from an acute attack of Severe Ulcerative Coli...

I was wondering if anyone has any experience with wearinig their pouch sideways.  I use a two-piece pouch system.  My stoma is located in a kind of different area - pretty much in the front/center of my abdomen, just to the r...

Hello everyone......i just want to complain for a bit.......ive had a colostomy done in january 2010 and almost lost my life.  I had that reversed in september 2013 because the surgeon felt it would give me back life....im really not s...

I have had my ileostomy for three years now and still have not gotten used to it. If I eat after 2pm in the afternoon I am up all night having to empty my bag or in fear that I will have a break because a thicker consistency will break through t...

I've had my ileostomy for a year and a half now and feel I haven't to accepted or came to terms with it. How would people advise I try to accept it

Hi all, About 8 months ago, I (ilostomy '09, proctectomy '11) started hgaving some intermittent, occasional pain to the right of my ostomy (about 1 to 1.5 inches from the stoma). Saw GP who seemed to ask the right questions and said it was p...

I had an ileostomy in April 1983, then in October 1987 I had a (BCIR) Barnett Continent Ileostomy! Does anybody out there have one? I was in Mississippi and met 2 people; however, I cannot find them? Freka and John Busan?

I wanted to put a quick update here to let those interested know how I'm doing since my ileostomy reversal 3 months ago. I had good progress for the first 2 months but the past 3 weeks seem to have gone backwards.  I'm still in a lot o...

hi. i have had my ileostomy for 2 years now. I was single before my operation and have 2 lovely girls. I would like to meet some special, male. I have tried dating and obviously have had to tell potential new boyfriends. I found that very hard ...

My doctor, a colorectal surgeon, has recommended a temporary ileostomy for puborectalis contraction and constipation that have resisted other treatment for years. I'm trying to seek out ALL the information I can beforehand. I want to be prepared...

Had my ileostomy five months now, just begining to get my head around it. I live near Lincoln and would love to chat and share experiences...........

I am new to OstoMate and just a bit shy about asking questions. But from what I have read, I know I shouldn't be concerned about asking any question, so here it is: Soon after my ileostomy surgery in 2013, I was informed that about every six mo...

I have had an ileostomy for 18 years.  I was diagnosed with UC and was incredibly ill for years hence the bag...  I was told I could consider the j pouch op but after years of ill health and then feeling great finally I decided to forg...

Hi ladies, This may be a silly question but I will ask it anyway.  I have a important event coming up next month.  I am round around my belly.  I know a lot of women out there wear spanx to help with fat.  My question is has...

I'm hoping someone can help me...I've had Crohn's for many years and had an ileostomy done more than 10 years ago. I've recently had a complete proctocolectomy and my husband and I are wanting to start a family. Anyone out there been pregnant? I...

I am curious, do others with ileostomies catch colds or stomach bugs easier after you lost your colons? Do you fatigue easier? I ask because it seems that ever since I lost my colon, I get sick much more often.

Hi everyone,         & nbsp;first time posting, I have an ileostomy since xmas eve 2009. (emergancy surgery). I am 55 year old female and live in Australia. I have gained 30kgs since then. Cant seem to l...

Hello! This is my first post on this site. One of the things I was curious about, and am hoping people have real experience and tips for, is how to manage with an ileostomy and traveling, specificaly in New York City? I fear this ileostomy will...

I am 1 year post-op after my ileostomy surgery I had performed at the Mayo Clinic. I still have daily pain from the hernia involved - most days are manageable but some days are very painful. After my surgery, the Mayo Clinic told me I cannot tak...

Hello all! For some reason, I seem to have lost the ability to send private messages on here, so I thought I'd just put my news here. I'm to have an ileostomy on 4th December! Not much fun but I'm looking forward to spending much less time in th...

Hi There, Just thought I'd introduce myself and ask a couple of questions. I've been reading the forum and I have found it SO helpful and SO uplifting. Thank you for your kindness and openness.  And now I will reveal what a spaz I am ;) ...

I'm going blind (and not finding what I know much be out there) looking at the websites -- so maybe someone can lead me in the right direction. I'm interested in getting a support belt. Not one of the narrow ones that attaches to the pouch and...

Does anyone have problems with making the underneath part of this bag (the part that attaches to the skin) last 3 days like they're supposed to? I do! The stoma nurses/doctors say that seeing a white line around where the bag is fitted after a...

Ileostomy due to rectal cancer surgery here - just 4 weeks in.  Still getting used to stuff. Some days it's like peanut butter, but for the past 2 days it's been complete liquid.  I know this is based on what I eat, but I ha...

I am scheduled for a colonoscopy on Thursday and pretty confused.  I still have my colon, but due to abscesses on my colon and a fistula, I was given a (temporary?) ileostomy. Trying to get a correct diagnosis.  My question i...

Hi all, Fairly new to this site, not too sure if I am in the right place, just wanted to know if there Is any info or what is every one's take on salads, that seems to be the one thing I miss Not eating, has any one here ate them and if you had...

Greetings! I'm asking this question on behalf of my husband who has been an ileostomate for 10 months now. While he's adjusted admirably, there is one issue that is ongoing and causing him quite a bit of stress. It seems that everytime he remo...

Has anyone had an ileo then gotten a j-pouch made and been reversed? I have a preop visit with the surgeon in a few weeks and am pretty nervous about the coming surgery. I want to know what I am in for. I'm not thrilled about having an ileo but ...

Hello all I have had my little friend since December 2011. I did think it was hard enough finding a fella as a single mum but this makes things that much more harder. I met a guy on a dating site so have had the chance to get to no him and him...

I have had my ileostomy since 1991 when I was 19. I am now 42 and have started having open wounds develop on the skin immediately surrounding the stoma starting about a year ago. I have never had this occur in all these years. These wounds are n...

I have never suffered from back pain until now.  I am now 4 weeks post op and find the littlest amount of walking and/or standing causes me terrible back pain. Even when I'm sitting down I must prop pillows behind my back to avoid the ...

In 2008 at the age of 20 I inherited a neurological disorder that caused 15 daily BMs and a constant fecal smell. Other than nerve problems of the internal sphincter, my health & fitness were excellent.In July 2013 I got an elective sigmoid ...

I've been having problems with my ileostomy for well over a year and been in and out of A&E with severe abdominal pain several times. The A&E doctors only seem concerned that the stoma still has output. It stops working while I'm having ...

I had surgery 2 weeks ago. Besides just feeling numb, I can't shake this overwhelming feeling of fatigue. Will it get better? I would have posted this in forums but don't know how? I click on forums but nothing comes up to post on. < >

I am trying to find some sort of diet regimen that will result in weight loss that will work in harmony with my food limitations with my ileostomy. Most standard weight loss diets require a lot of fresh fruits and vegetables. I have discovered (...

Hi Guys ........ It looks like I will need to make a decision before long as to whether to have an ileostomy or a colostomy which I will have to have for the rest of my life .....(currently have an ileo...)  I am fortunate enough NOT ...

Hi all, What are others experiences of flying in the UK with an ileostomy? The specialist assures me it is safe to fly, but why do I get the feeling you have to have been there to really know what it's like? I'm due to fly next month (inte...

Hello everyone. I have recently been told that my bowel resection/reversal is likely to be in September this year which is earlier than I thought. Great news but less time to lose weight before surgery. surgeon says it will make things easier ...

I know that cooked spinach is a bad idea with ileostomy, I was wondering if anyone had tried spinach dip? There is some in the fridge and it is looking very good.

Hi I just had the ileostomy but im finding it leaking. Is this normal ?

Hello my Ileostomy bag keeps filling up with water been doctors they gave me dirolyte and immoduim but nothing working. Can someone help me please ?

Hi there,  the last few days I have had this horrible feeling the way that I felt pre surgery when I had constipation. I have been taking tramadol due to abdominal pain and Im wondering if this could have caused constipation. Is it possibl...

I just have been diagnosed with recurrant bowel cancer, my question is has anyone got a ileostomy and a urostomy. this might be a question that will have to answer to if i get the option after my pet scan results. I would like to make an informe...

Yesterday afternoon, shortly after lunch, I was surprised by a sudden blockage. I was so busy that I didn't even realize that I had no output ALL day. It was 3:00 pm. Cramping, nausea, pain, and belly distension had me paralyzed in pain. This ...

Here's my question does any one have the first two condition's and do they use Metamucil?  I was just wondering if I should start using the Metamucil again, would it help with the diarrhea and or what other benefits that I might get fr...

I have had Norman for 2 1/2 years now and appart from the occasional urge to pass mucus which I was pre-warned about, have this week been for a pooh twice!!! It is real pooh, the same colour as it used to be, and I am quite concerned. My stoma i...

Once again I am turning to you all for advice.  My surgeon had told me that once in a while I might find that I pass mucus from my rectum even a small amount of stool.  He did remove about 1/3 of my rectum but said I still ha...

So, I posted once before about the constant back pain I now have since surgery. Well, at my second follow-up I brought it up to my doctor who "assured" me that he's never heard of such a thing.  Am I just crazy or aren't ther...

Hi all. My mother was recently in a head on car accident (oct 03 '14) in Spain - visiting from the UK for a friends birthday - and it resulted in her having some of small bowel removed under emergency conditions due to heamoraging, I am here to ...

Greetings to All.... I am jotting down and seeking help on behalf of my beloved Aunty.     My Aunt is 52 yrs old who has undergone major surgery due to ovarian cancer in the year Aug 2013 and was under chemotherapy.Due to obstru...

I had an ileostomy Feb. 2nd colonic inertia and pelvic floor issues. Before the surgery, I was probably a little over-the-edge with saunas because I couldn't stand the thought of what was happening with all the toxins since I was only able to go...

Hey guys. I have had my little friend (I call him sammy) for 8 years and was out on a very strict moderate fiber diet. 8 yrs later I'm still trying to figure out what I can and cannot eat. For example...i love honey roasted cashews...can I still...

I am having my first colonoscopy this week and I have an ileostomy.  I dont understand why they have mailed me the golightly and pills to take after I heard that someone with an Ileo should never take laxatives. Isn't it dangerous to ...

Hi all.  Looking for feedback from anyone who has had a reversal or is being considered for one.  I am 3-1/2 months post ileostomy and my surgeon has said I am a candidate for a reversal.  He wants to scope me next ...

I am 9 days after surgery. Nothing could have prepared me for this. The pain, not feeling well, the constant trips to bathroom. Its hard work. I have had leaks and dont know why. Not being able to do much for myself. They kept telling me in the ...

My ileostomy output is sometimes thick, sometimes thin and sometimes like water. I'm used to that, and I know that foods can affect the consistency. But I also have noticed that sometimes the output seems what I might call "blended"--a smooth co...

Hello,<?xml:namespace prefix = o ns = "urn:schemas-microsoft-com:office:office" ; /><o:p></o:p> <o:p> </o:p> My mom has an Ileostomy since October this year. She have many feces fluids with any bowel movemen...

Hi Iam new here, had my ileostomy a yr ago, I'd like to know what we can really eat, does anyone have a good diet to follow. I love salads but afraid to try them, was wondering if anyone has, and how it worked out. thanks

I am angry, embarrassed and I don't understand. Whenever I have been to see my GI doc, who I have seen since 1988, and love him dearly, I'm asked how I'm doing, number of poop runs per day, eating, you all know the routine. I have always answer...

July 3 i seen my dr for a check up every-thing is ok . After exame he gave me my opptions                  &n bsp;       &nbs p;&nb...

Hello    I'm considering having my gall bladder removed, and would welcome any information from ostomates who have had this operation. I have an ileostomy (no large colon at all) and am interested to hear others' experiences of how t...

Have a temporary Ileostomy which is scheduled to be reversed in January. I've had a bunch of problems with leakage, ended up going with a Hollister wafer for low profile stomas along with high tension on the ostomy belt and that really seemed to...

Hello everyone, I've not been on here for such a long time. Last time I was on here my boyfriend was facing the prospect of stoma surgery back in the summer, and now here we are, 5 months later, with a very special little friend we've affection...

I am new to this forum.  I had an ileostomy for one year and just had it reversed in August of 2014.  I am having a difficult time and would like to meet individuals and have them share their experiences with me.  I am seriously c...

Has anyone had a stoma prolapse and had to have their ileostomy moved to the other side of their abdomen along with an abdominal hernia?

Help! I've had an loop ileostomy for 4 months (colostomy for 10 months prior to this). I still have a small amount of faecal matter passing through my large bowel and due to the Imodium to slow my bowels done, I am now really constipated. I've t...

Hi, I'm a registered nurse that has just started working on  a general surgery unit. I don't have that much experience with changing ileostomy appliances. I had one patient the other night who's ileo appliance is always leaking. Some...

Hi,  I am heading to Cuba in 2 weeks and wondering if anyone travelling has had any problems with bringing supplies and having to explain your supplies.....Anybody with any advice or travel tips...... Thank you

Anyone on here got a child with an Ileostomy ? My son is 13 and had his when he was 11. We dont know any other children with one and we just muddle along and get on with things. Im worried about his growth, he is tiny. He is nowhere near puberty...

Hi everyone! I am new to this kinda thing! So i had my operation last August due to severe ulcerative colitis. I was wasn't suffering very long and the fact i had a major operation very quickly was a bit of a shock! I had to have a sub total c...

Hello all! I need some advice. I have had my ileostomy since 10/11 & we are just now getting into the heat here in the South. I was at my daughter's softball tournament yesterday & it was about 90 degrees here in Georgia. I drank ALOT of...

Hi I am an almost 23 yr old female who just had to have her colon removed for having severe C.Diff for over 3 1/2 years and it was causing major problems causing my kidney function to go down to low 70's and exreme water retention around 15 lb's...

I have ostomy on my left lower abdomen. For the last year I have been experiencing a burning sensation from left hip bone to left edge of ostomy. No pain but the burning at times is very uncomfortable. I have a nice size raised area underneath t...

Me again.  I keep writing because I find myself so lost in this whole thing.  Question for anyone out there that has undergone ileostomy reversal.  I've been told if all goes well and I heal well I should be able to...

Hi all.  Been a while since I've posted.  On March 4th I finally went in for my reversal.  Since that time I've been incredibly sick.  I've lost 10 lbs.  My nausea has been the worst ever and I'v...

Hello everyone,  I am asking a question about the skin around my ileostomy.   It is quite red and sore.  It looks like it is irritated where the stiches are starting to disolve but it is really burning.  My first stoma used t...

Hi! I am 28 years young. I am schedule for a total proctocolectomy with ileostomy in a few weeks. I have had enough of dealing with ulcerative colitis and i have decided it is time for a stoma. Obviously, i have a lot of questions of what to exp...

I've heard a colostomy output is a less watery, but that's about it. Anyone knowledgeable on this?

Would like to chat with anyone who has had a continent ileostomy.< >

Hi There! First of all, thank you for taking your time out and reading my post. I had an emergency operation of tuberculer intestinal obstruction and 3 feet of my small intestine was resected and ileostomy was created. One night I felt something...

Dear All, I have a partial gastretomy and an ileostomy for almost a year now. I live in the UK. Recently I have started to throw up a lot. I don't know what best to eat or drink. I wonder does anyone have a similar experience and if so could of...

I'm having debulking surgery for ovarian cancer in a few weeks and need to prepare for a very likely ileostomy. I don't think the one-time visit with a stoma nurse pre-op is going to cut it. I want to be prepared before I go under the knife so ...

I currently have an ileo-anal anastomosis and will be having elective permanent ileostomy on Oct 26.  I had a temporary ileostomy back when i had my first surgery 30 years ago.  I remember how liberating it was after 3 years of full-fl...

Hi: I am a 53 year old woman who has had an ileostomy since January 1996 due to ulcerative colitis.  I haven't had too many problems over the years expect for a few blockages due to bad food and taking codeine for a toothache pain.&nbs...

Hello all.  I am new to this and would like to introduce myself and my concerns.  I am the fiancee of a 46 yo man with a permanent ileostomy.  He was diagnosised with colorectal cancer last Feb.  He underw...

Does anyone have ileostomy & Diabetes?  Difficult to stay on a diabetic diet because of foods cannot tolerate due to the fiber.  Any suggestions? Would like to talk to someone like me.

Hi everyone, I didn't think I would have so many problems before and after my ileostomy surgery. Question(s) I have today is what would anyone recommend me eating after ileostomy surgery, they told me liquids at first then move to solids and so ...

Can it be reversed? Ive searched and searched for any info on it and i'm coming up with nothing.  I'm OK with living with the bag I just didn't know if maybe sometime down the road i wanted to reverse it, I could? Anyone know anything ...

Hi everyone, serious newbie here. I am due to have an ileostomy in a few months time. I have had a stoma for about 15 yrs due to having an ACE button. But having an ileostomy bag is scaring me to death, although I know it's going to make my li...

Just got my ileostomy yesterday. And oh my stars! It is noisy! I hate it! When air passes through it, it literally startles me because it's so loud! And it's so embarrassing! I don't see myself going out in public with this noisy thing... EVER! ...

Hi there,< >         &n bsp;       &nbs p;  Just a tip for those people with a Loop Ileostomy or a de-functioning J-Pouch ( my configuration ) . In the Stoma there a...

Hello,  I am new here, but not new to digestive malfunctions. It's finally come time to say goodbye to my colon and at this moment I'm not too sad to see it go.  I can no longer go to the bathroom on my own and my pelvic floor is all ...

I have a loop ileostomy and had the surgery due to dymotility of the gut and pseudo obstruction( no longer had any peristaltic wave to move things along ) this happened after two lots of major surgery on my spine done through my abdomen. I had t...

Hi all! shoulda posted earlier but here I am. After four months with an ileostomy (laparoscopic partial colectomy ended up being open surgery and woke up with a bag), tomorrow I am getting it reversed. I am scared and anxious, mostly because 1....

I recently had surgery to remove my entire large intestine, the surgeon then joined my small bowel to my rectum.   I am trying to balance the food/liquid problem because my bum is suffering from trips to the bathroom 8-15 times in a 24...

Surgery a few weeks ago reconnected my colon eliminating an colonostomy but resulting in a temporary ileostomy. I've been seeing my medications (full pills) spilling out of my bag. I've switched to liquid ibuprofen and acetaminophen which seems ...

What does an Ileostomy blockage feel like?  I am experiencing really painful cramping on my upper right side of my stomach, across from my stoma.  The area around the stoma is very tender and sore but not like a skin rash sore. It is m...

hi some1 must be to give me some advice, i had my operation september 2010, i get phantom poo pains on a daily basis but the last couple of weeks i felt more severe cramps and pain.  usually just mucus would weep from my bottom but now...

I've had my Ileostomy since November 2005. Everything has been going fine with the Ostomy EXCEPT. I seem to have reoccurring kidney stones. Has anyone else experienced the same problems? I drink plenty of water and try to watch what I eat but I ...

I purchased a urostomy container so I can plug it into my ostomy and empty at night. I think the tubing is too small and it won't work. Are there night drainage devices for an ileostomy?

I am new to this, so I will tell my story and then see what comments are  made. Ok, well back in 2011 I was diagnosed with cervical cancer so I started chemo and radiation. I had 35 radiation and 4 weeks of chemo and also 4 internal ra...

hi, i just wanted to introduce myself and ask a few questions. Ive recently had surgery and have been left with (i hope) a temporary colostomy, im still trying to recover from the surgery and having a lot of concern about living with a bag. i k...

How often will I have to empty my ileostomy per day? I know it's different for everyone, but hoping to get a general idea. Also, will I have to set my alarm at night to get up and empty it several times a night? I have surgery March 21, 2014 to ...

Hello all you good people out there -- Has anyone had to have an ileostomy because of Radiation Damage? In January 2012 I had a major operation for Cancer. The operation was successful and the tumour removed from my womb. THEN I was advised to...

Hi all! I am a 48 yo male and am one week post ileostomy takedown. I had a temp ileostomy for 5 months due to a bowel resection for diverticulitis. I read many horror stories online in my quest for information and i have to say I couldn't be hap...

 Hello   Post prednisone medication I have been experiencing rather severe joint pain. Has  anyone else experienced this? If so, can you explain why this is happening and how long I should expect it to last? Thanks   Dal

I want to know how to do the dating thing with an ileostomy  I am looking for someone who does not care if I have one...My husband left me last year after I had it for two years...I don't know how to go on from here...any suggestions..

Hi there,  I've had an permanent ileostomy for the past 9 years and have adapted really well.  It has freed me up to be able to really enjoy my life.  In fact, I have checked off 8 of my 10 bucket list items (involving mostly tra...

I'm sure this questions been asked many times.... As mentioned on my profile I've put off getting the Reversal done for around 5 years.Aside from being a bit unsure of the outcome there were other circumstances too,unfortunately. I was to get ...

Does anyone here have a continent ileostomy? I have had one since 1980, having had a conventional ileostomy for four years and deciding to have the conversion. I realize so much has changed in the options available in the last 38 years...

Ok, before my op I did not have abs of steel. Had the mid-life lady body type where every extra ounce went to the midriff and my activity level would never give me a six pack. So I was middle soft with a little muffin top. But now ... I defini...

I have a question that I am hoping someone can answer for me.  I first had a "straight-thru" (small intestine hooked directly to anus) sub-total colectomy done in 2009.  this didn't work out for me because I was hav...

Hi all i have ileostomy since 1981 now i have been told i need a urostomy!.Has this happened to anyone else Dwyer

I had my colon, rectum and anus removed due to a diagnosis of FAP, but now they are saying that I have hundreds of polyps in my duodenum.   Is there anyone else on here who has FAP and any problems with their duodenum?  I'm ...

     Hi my name is neil I have a colostomy since August 2013 I have a large lump its  hernia which is causing pain and discomfort and leaks the surgeon said he will fix the problem wants me to irradiate if that don...

Have any of you folks had any trouble with losing large amounts of hair after you had your ileostomies?   My hair is falling out by the hand fulls.  The doc did check my thyroid levels and found my T4 to be 40. She raised up my medicat...

Hi everyone I've had an ileostomy for the past 7years with lots of surgery since then. I've recently found out I'm pregnant 'about 6weeks'. I'm having a lot of problems with pressure on my back passage and even faceases coming out every day, wh...

It has been 5 months since my ileostomy and I am now having abdominal pain just above my belly button.  It really hurts when I cough.  I first thought maybe a pulled muscle but now the pain is getting worse without coughing.  Has ...

I had a loop ileostomy 2/2/2017 because of colonic inertia w/ pelvic floor issues. Knowing what I know now, I would have questioned why they didn't remove the colon and do an end ileostomy at the time. We knew it would not make sense to do a tak...

Annual check up the Dr stated time for colonoscopy.  My concern is the prep and getting dehydrated.  Anyone have this done and is there a different prep for us?  Only one large clinic in town that does them, called there and they ...

Hi, I'm new to this site and would appreciate some advice from people who have had ileostomy surgery. I would like to know anything that might help me before my operation. Is it extremely painful? Should I stop eating beforehand? How long is th...

Have ileostomy. Still have colon. Sometimes still have small rectal discharge (poop), usually very liquid type. Surgeon said its normal due to colon still producing mucus and poop. You would think the medical field would make you aware of things...

Morning of Sept. 27/16: early morning had abdominal pain, vommiting; this continued to get worse over morning. By early afternoon, my wife (retired r.n. for 38 yrs.) called ambulance; could see motteling in extremeties; skin was cold & clamm...

Hi there. Can anyone comment on using a CPAP for sleep apnea with an ileostomy? I am having some problems and wonder if it is just me? Thank you! maryellen

Hi everyone I'm new to this site and would really appreciate some tips on ileostomy high output. I had an emergency operation 10 weeks ago on the 17th of March and woke up with a bag stuck to my stomach. My stoma nurses have prescribed me 48 mg...

Hello This is my third question to this forum since I found it very useful and so many good people offer great advices. As communicated before, my mom had a TME surgery (permanent ileostomy) about six weeks ago; currently my mom is still hosp...

Hi all,  I have posted before and I have to have the rest of my large bowel removed due to a severe stricture along with severe motility issues which have caused me to be on TPN and do not allow my colon to work.  I know I ha...

I need some advice on what to expect and encouragement.  I have crohns disease which was very active in the decending colon and rectum. I had a permanent colostomy formed and my decending colon and rectum removed with the hope that it ...

So in March of last year, I had surgery to have a total colectomy with end ileostomy. I was told that since it was a final determination of ulcerative colitis, that I could later on have a reversal if I wished. I'm looking to get information fro...

I am on quite a few medications, including several that are timed released. After asking my pharmacist, I found out that most of them are absorbed in the colon. Since I no longer have a  colon, I am very concerned that I am not absorbi...

Hi.  Had my ileostomy 10 days ago and struggling with my output.  Doctor and ostomy nurse say I should have output of 800cc's a day and I'm having about 400cc's a day.  Doing my best to follow the low residue diet a...

I'm four weeks post op today and am having the worst day yet.  I've had occasional days of rectal pain and pressure which has usually meant I need to pass some mucus and once I do I have relief.  Well, today starting around 7...

I had the ileostomy reversal a month ago I am still feeling a lot of rectal pain and am trying to control my elimination but often have accidents daily.  Does anyone know how long it takes to stop hurting and to get control?  ...

  Long story short:  On April 20,  2013 my colon perforated due to diverticulitis.  I arrived by ambulance to the hospital already in full blown septic shock.  I was in the operating room for 5 h...

It's been a while since I've written and here I find myself again looking to you all for advice.  For the past 10 weeks since my surgery my stoma has produced a consistent flow.  However, now in my 11th week, I barely have an...

Hi all. It's been a while since I've written. I am happy to say I've been given the green light to proceed with an ileostomy reversal but I'm nervous as hell.  I've tried to find input from others on this site but find there's not much...

does anyone know how this can be treated when you have an acute episode. I've had my ileo for 40 years and didn't have this problem until 20 years ago. I read on this forum that people use irrigation but i wondered if that's just for food blocka...

Hi all For the last month+ I have noticed a very medicinal odor that occurs after wearing my flange for 1 day or so;  it actually causes my clothing in that area to pick up the odor as well.  It is not the result of output.... not sur...

Been reading loads of great info but I can't seem to find the info I'm looking for.  I had a gastric bypass 15 years ago with no problems. That is until now. July of 2016 was my first lap surgery for removal of adhesions.  All seemed f...

I am scheduled to have a small bowel series test on Friday, Feb. 17, 2017, and I am very nervous about it! The test was ordered after I had four bowel obstructions in 12 months following emergency abdominal surgery in November 2015. They tell me...

Has anyone experienced this after your ileostomy?  If so what are you doing to help prevent them?  I have read in the forum Lecithin might help with the uric acid?

Hello all I have had a permanent ileostomy for 3 years now and was wondering if there is any product out there that allows us to go bag less like at the beach or something . Like a plug  ? Thanks in advance for your knowledge and comments&n

Hi, I did taekwondo for nearly four years before I had my surgery. It was pretty much the only sport I've ever done that I've actually been alright at as well as really enjoying it. I was never big on sparring as I'm not an overly aggressive pe...

I have recently had an ileostomy for chronic constipation caused by extremely slow transit. I actually ended up having three bouts of surgery in the space of five weeks, but that is by the by. I know it takes about six weeks for the stoma to se...

Anyone out there with the strange combinatio of ileostomy and Multiple Sclerosis. Am I unique? Belinda, England

Hi,  I am new to the site and had a few questions.   I had to have a colostomy just over a year ago due to a doctor screwing up my back.  I have cauda equine syndrome ( No bladder function and my nerves to my rectum...

Hello, I'm new to this site so still finding my way, that is if my memory...what's that! will allow me to remember where I've been before. However despite all that I have a question regarding quite a large parastomal hernia. I acquired this Ileo...

Hi I'm new to this forum and I hope you can help. My son is 21. He has Down syndrome and an ileostomy. In June he will be graduating from high school. His future is filled with opportunities for jobs and community activities. He needs to learn...

Hello, all.  I'm so happy I've found this website!  My mother who is 79 had surgery last October, and most of her large intestine was removed.  She now has an illeostomy bag.  Since Mom doesn't own a compu...

I have an ileostomy since I was 18.  Now at 72 I have been newly diagnosed with bladder cancer which quite possibly will result in radical surgery...the removal of my bladder and reconstructive surgery after proscribed Chemotherapy. Th...

Guess I will start from the beginning. 2 1/2 years ago I had a sudden onset of abdominal pain which got worse over 48 hours. Having no insurance coverage, I held out as long as I could before going to the ER with the abdominal pain and no B/M fo...

Have any males had to have a Prostate biopsy after their rectum has been removed and if so, how was it performed.

Hi folks, I was a newbie to the site last year when I underwent an emergency Ileostomy and the doctors were surprised that I had no prior symptoms or illness other than the ones I presented them with on the day.   I havent been too goo...

I had an ileostomy in 1976 at age 28 for ulcerative colitis with no after effects. I know how lucky I am. In my early 30's I went to Europe and got terrible stomach or what is left of my small intestine pains, with vomiting and liquid output. I ...

I had surgery 2 weeks ago & have an ileostomy. Inthe  last few days I devloped a wound infection & gastritis and had terrible painful attack last night. I am taking anti biotics and omazaprole but don't wan to eat as I'm not hungrey...

Looking for some advice.  Had ileostomy surgery 11 days ago and now that I am home have noticed a bulge to the left of my stoma which is quite painful.  I should mention I had this bulge after surgery but the sharp, burning p...

I have had an ileostomy since last april due to a small bowel resection, they took about 2.5 feet from me. I am wandering about a reversal, wandering if they will be able to do it. My doctor was worried about adhensions. If any one has any sugge...

Hi all, I noticed this morning that I have a discolored area at the opening of my ileostomy;  it is a small brown/gray area (not discolored from any residual output) There is no pain or any other issue.   Any thoughts?? Thank

Hi everyone! I joined this forum recently in search of people to talk to who have already been through a reversal of the colostomy bag. I myself have undergone the first part of the reversal, and i'm due to have the second part at the begining ...

in it like normal bowel movements do? I still have 90% of my colon and was wondering if mucous from the digestive tract is also present in ileostomy output like it is in regular bowel movements? I know ileostomy output has digestive enzymes NO...

I recently changed appliances because my prior appliances were too small for the stoma. I have now been using these new two piece appliances but have found it to be extremely frustrating. The appliances do not properly fit the stoma. This may be...

Hello Everyone on this great site!! I just want to say thanks to everyone who posts - I just found this site and have had ulcerative colitis and a J- pouch resection for 30 years before I had an ileostomy placed in 2013 because of fistulas. What...

Hello fellow ileostomates! Just wondering if there's anybody out there who has the same problem I do... I had a loop ileostomy performed on 11/2014 due to a small bowel obstruction that I still have and will be operated on 05/2015. Initially my...

Hi everyone, My boyfriend had a partial gastrectomy on the 8th of December and was recovering very well until the 29th when we had massive internal bleeding. He had another emergency surgery and the doctors had to do an ileostomy to save his or...

I was a reasonably fit and athletic 20 year old when I developed UC in 1966 and I had 2 young children. After 8 years suffering the symptoms we all know so well, we ( my wife & me ) decided upon the surgery that would leave me with THE BAG. ...

Sorry subject line so long!  Developed small pimple next to stoma 3-4 months ago while beginning our 3 month vacation in our RV. at present, it looks the size of a small peanut and bleeds. It is painful when touched even by ostomy pouch. ...

hello currently I have an ileostomy and have had it for about six months. I frequently get severe pain on and around my stoma almost like a hot knife is trying to cut its way out of it. I'm not taking any pain medicine, but I want to know if thi...

tough decision to make...looking for any insights..70 year old female who has the choice of a reversal surgery.  Does anyone regret their reversal?  Very concerned about my quality.  Bag is now familiar, but the unknown is very sc...

Hello forum readers.  I had a colostomy last August due to complications from colorectal cancer.  My tumor was at the junction of the colon & rectum, so some of each was removed.  It's a long sordid story, but end result is th...

hi new here is there anyone from England on this site with ileostomy 

Does anyone have a greyish smelly from their back passage.  I had my ileostomy 18 months ago  

Hey, it's Maryland Gal.  I had my surgery July 13th. Surgery went well. Took 6 hours because I had so many adhesions.  My surgeon was able to bring the small bowel through the same hole. I had many other complications that ke...

Hi everyone, I'm due to get a loop ileostomy any day now and I'm told that in a year or two I will probably need to have a bigger operation to remove my colon as there is a risk of diversion colitis. I'm not sure if my body could cope with a bi...

Hi everyone!   Just had my reversal 3 weeks ago.   I woke up with a huge hole in my belly but is healing up pretty good.  I guess its the new thing not to sew you up and let it heal from the inside out.   ...

I have an ileostomy and my stool is pretty much all liquid.  Recently did some home renovation and put in an American Standard low flow toilet.  I didn't realize the new toilets have a different compound in the ingredients th...

Anyone had this done to make a better stoma?

I will be having reversal in Feb 2016 can't do in Oct 2015 as planned due to FMLA won't be available til Feb as I exhausted it for the year.  I have been reading posts here all weekend on this and now scared.   Has anyone had this done...

Its been 5 weeks since my surgery.  Things are going ok.  I only had one issue with a bag leak.  But I do have another issue that I'm concerned with. When I get up in the morning I feel fine, but after moving around for about an ...

Help

hi, To anyone who has has an ileostomy take down:  I had colorectal cancer, 2 rounds of chemo and lots of radiation.  I am 8 months out of the ileostomy reversal (had a foot or more of colon removed and reconnect to rectum with pouch ...

I had my Ileostomy on Nov 2016.  The reason I had this done is for years I've been to many doctors because I couldn't go to the bathroom.  Been on many medications.  Every day feeling bloated and uncomfortable.  The doctors s...

I've been told that the ileostomy area can be massaged to help with pain but I was wondering if there was a specific way that this should be done.  I know this is probably considered a pretty goofy question but if I could ease the pain I am...

Hello, I am looking for information from anyone who has had a ileostomy and then had a colostomy.  How do you feel about the difference beteen the two?  If you had the ileostomy and now have a colostomy are you happy with the chan...

Hello Everyone. I am curious about opinions, medical experiences, articles or general input on my pending reversal decisions given I have only 5cm of remaining large intestine remaining. Ileostomy October 2016 and my (ahem) bodily function below...