About Ileostomy | Ostomy Community

Intimacy With Ileostomy

posted by vicbear13

I would like to share tips, secrets, anything that helps intimacy be more alluring to others. Dont be shy, I need answers.

Views: 70530 Replies: 122

Looking for feedback from those who have ileostomies and especially anyone who had a colostomy that was changed to an ileostomy. A little over 6 years ago I got a permanent colostomy. But now my gastro doctor said because of a bad stricture and...

Views: 1782 Replies: 41

Drinking With An Ileostomy

posted by Anonymous

Due to recent events in my life, have been feeling the need to go out and get absolutely sh*t-faced! As previously I have only had a glass or two of wine with dinner (and had no problems) was wondering if I have a &nb...

Views: 29029 Replies: 38

I Really Need Help With Ileostomy

posted by sandib

Hoping someone out there can give me some words of wisdom. I had ileostomy done 2 1/2 years ago. Due to chrones and my colon exploding in seventeen different biopsied pieces, I had a Very Good outlook of my surprised surger...

Views: 27160 Replies: 36

Dumped Because Of Ileostomy

posted by blondebabe

hello I have just joined this site. Not sure how it quite works yet. I have a ileostomy and I am single. When I seem to meet guys and you tell them you have a Ileostomy they quickly disappear. Just wondering if anybod...

Views: 20421 Replies: 35

How Long Can You Live With An Ileostomy

posted by Bumba

?i have had an ileostomy for 51 years. does anyone have any information on long a person has lived with an ostomy? Also, any information about conditions that are caused by having ileostomy for so many years would be appreciated.

Views: 39839 Replies: 34

How Do You Gain Weight After An Ileostomy?

posted by whatnow2012

Hi - I guess this is the correct forum to ask post this. My husband has bilateral nephrostomies, a urostomy, and now an ileostomy. He hates Ensure, Boost, Special K breakfast drink, and Carnation Instant Breakfast. I've mixed them wit...

Views: 17586 Replies: 34

Ileostomy/hernia?

posted by gutenberg

Well friends once again I'm in need of information. A little background, two months ago I had to buy new jeans so I got them a couple of inches larger than normal, next I put on my braces to keep my pants from falling to my knees. As i sit here ...

Views: 23571 Replies: 33

Ulcerative Colitis Surgery (permanent Or Temp Ileostomy?)

posted by Happy Cheeks

Hiya everyone. I am soon to have surgery for ulcerative colitis. I'm just very confused which surgical option to choose. - I can either choose to have a total colectomy with removal of rectum and anus and have a permanent bag. - I can ha...

Views: 17102 Replies: 32

Diapers For Anal Leakage?? How Long After Ileostomy?

posted by Anonymous

I am trying to find out how long everyone had to wear diapers after their surgeries. my boyfriend had an ileostomy and is still having issues with anal leakage. he is still in diapers 8 weeks post surgery. please help

Views: 38061 Replies: 31

Ileostomy And Food

posted by stace20

Hello does anyone know what food to stay away from or what is good. I only had this done so I am all new to this.

Views: 17713 Replies: 31

Surgery To Remove Rectum, Post-ileostomy.

posted by horselover

I have to have one last surgery to take out the rectum (can't leave it due to cancer risk) as I've decided not to re-attach. Haven't had any issues since my ileostomy 4 years ago and don't really want to go through the recovery and po...

Views: 48729 Replies: 28

Colostomy Reversal Now Ileostomy - Help!

posted by Anonymous

I had an attempted colostomy reversal, they found yet another leak and now I have an ileostomy. I am having trouble getting my bag on before any output and it's made the skin below my stoma very red and raw. Anyone have tip...

Views: 20980 Replies: 25

Ileostomy Reversal- Successful...positive....a Must Read

posted by destinystar

Hi ...i had a emergency ileostomy done in feb 2012. I was on life support and in a coma in icu for over 4 weeks. It was a shock to wake up with this bag hanging off me....they said they could do a reversal....in a few months... Well a few mont...

Views: 22345 Replies: 23

Ileostomy - Still Have Uc In Rectal Stump - Depressed

posted by beatrice

Just over a month since my perm ileostomy. Have had moderate to heavy anal discharge and thought it was the rectum healing/weeping (surgeon left a rectal stump) or an infection. Saw surgeon last week ... he's saying it's the UC in what's left ...

Views: 22261 Replies: 22

Weight Gain After Ileostomy?

posted by Scott Chance

Can I ask what others experience has been with weight gain (or lack thereof) following an Ileostomy? I had my Ileostomy coming up to a year ago (it will be a year in May). This was after suffering from an acute attack of Severe Ulcerative Coli...

Views: 50878 Replies: 22

Can You Wear Your Ileostomy Pouch Sideways?

posted by socalileo

I was wondering if anyone has any experience with wearinig their pouch sideways. I use a two-piece pouch system. My stoma is located in a kind of different area - pretty much in the front/center of my abdomen, just to the r...

Views: 16148 Replies: 22

Struggling To Like My Ileostomy!!!

posted by stephaniekilty

Hello everyone......i just want to complain for a bit.......ive had a colostomy done in january 2010 and almost lost my life. I had that reversed in september 2013 because the surgeon felt it would give me back life....im really not s...

Views: 5703 Replies: 22

Accepting Ileostomy

posted by Chronicbutterfly13

I've had my ileostomy for a year and a half now and feel I haven't to accepted or came to terms with it. How would people advise I try to accept it

Views: 1543 Replies: 21

Ileostomy - Scar Tissue And Pain

posted by beatrice

Hi all, About 8 months ago, I (ilostomy '09, proctectomy '11) started hgaving some intermittent, occasional pain to the right of my ostomy (about 1 to 1.5 inches from the stoma). Saw GP who seemed to ask the right questions and said it was p...

Views: 17975 Replies: 20

3 Months Post Ileostomy Reversal Update

posted by canaussie

I wanted to put a quick update here to let those interested know how I'm doing since my ileostomy reversal 3 months ago. I had good progress for the first 2 months but the past 3 weeks seem to have gone backwards. I'm still in a lot o...

Views: 45145 Replies: 19

Dating With An Ileostomy - Any Advice

posted by kstewart69

hi. i have had my ileostomy for 2 years now. I was single before my operation and have 2 lovely girls. I would like to meet some special, male. I have tried dating and obviously have had to tell potential new boyfriends. I found that very hard ...

Views: 18863 Replies: 19

Does Anybody Out There Have A Continent Ileostomy?

posted by annie

I had an ileostomy in April 1983, then in October 1987 I had a (BCIR) Barnett Continent Ileostomy! Does anybody out there have one? I was in Mississippi and met 2 people; however, I cannot find them? Freka and John Busan?

Views: 15812 Replies: 18

New With Concerns About Ileostomy

posted by AD

My doctor, a colorectal surgeon, has recommended a temporary ileostomy for puborectalis contraction and constipation that have resisted other treatment for years. I'm trying to seek out ALL the information I can beforehand. I want to be prepared...

Views: 11856 Replies: 18

New To Ileostomy

posted by toffee apple

Had my ileostomy five months now, just begining to get my head around it. I live near Lincoln and would love to chat and share experiences...........

Views: 7989 Replies: 18

Ileostomy Reversal After 18 Years - I'm Excited But Freaking

posted by Feealicious

I have had an ileostomy for 18 years. I was diagnosed with UC and was incredibly ill for years hence the bag... I was told I could consider the j pouch op but after years of ill health and then feeling great finally I decided to forg...

Views: 5027 Replies: 17

Spanx With Ileostomy Bag?

posted by pammer

Hi ladies, This may be a silly question but I will ask it anyway. I have a important event coming up next month. I am round around my belly. I know a lot of women out there wear spanx to help with fat. My question is has...

Views: 2278 Replies: 17

Pregnancy With Ileostomy

posted by Pennyann3

I'm hoping someone can help me...I've had Crohn's for many years and had an ileostomy done more than 10 years ago. I've recently had a complete proctocolectomy and my husband and I are wanting to start a family. Anyone out there been pregnant? I...

Views: 19379 Replies: 16

Life After An Ileostomy...

posted by Anonymous

I am curious, do others with ileostomies catch colds or stomach bugs easier after you lost your colons? Do you fatigue easier? I ask because it seems that ever since I lost my colon, I get sick much more often.

Views: 13258 Replies: 16

Weight Gain After Ileostomy

posted by buterfly

Hi everyone, & nbsp;first time posting, I have an ileostomy since xmas eve 2009. (emergancy surgery). I am 55 year old female and live in Australia. I have gained 30kgs since then. Cant seem to l...

Views: 18470 Replies: 16

Ileostomy Issues

posted by lauren

I have had my ileostomy for three years now and still have not gotten used to it. If I eat after 2pm in the afternoon I am up all night having to empty my bag or in fear that I will have a break because a thicker consistency will break through t...

Views: 7886 Replies: 15

Vicodin And Ileostomy Blockage?

posted by GraphX12

I am 1 year post-op after my ileostomy surgery I had performed at the Mayo Clinic. I still have daily pain from the hernia involved - most days are manageable but some days are very painful. After my surgery, the Mayo Clinic told me I cannot tak...

Views: 6572 Replies: 15

Ileostomy Op Date At Last

posted by quietgirl

Hello all! For some reason, I seem to have lost the ability to send private messages on here, so I thought I'd just put my news here. I'm to have an ileostomy on 4th December! Not much fun but I'm looking forward to spending much less time in th...

Views: 2295 Replies: 15

Two-piece Ileostomy Bag

posted by Jamie93

Does anyone have problems with making the underneath part of this bag (the part that attaches to the skin) last 3 days like they're supposed to? I do! The stoma nurses/doctors say that seeing a white line around where the bag is fitted after a...

Views: 10095 Replies: 14

Ileostomy Output - Very Inconsistent Texture!

posted by gracelinedesign

Ileostomy due to rectal cancer surgery here - just 4 weeks in. Still getting used to stuff. Some days it's like peanut butter, but for the past 2 days it's been complete liquid. I know this is based on what I eat, but I ha...

Views: 8972 Replies: 14

Ileostomy And Colonoscopy

posted by Michspo

I am scheduled for a colonoscopy on Thursday and pretty confused. I still have my colon, but due to abscesses on my colon and a fistula, I was given a (temporary?) ileostomy. Trying to get a correct diagnosis. My question i...

Views: 6836 Replies: 14

Ileostomy And Salads

posted by foxwoods

Hi all, Fairly new to this site, not too sure if I am in the right place, just wanted to know if there Is any info or what is every one's take on salads, that seems to be the one thing I miss Not eating, has any one here ate them and if you had...

Views: 7459 Replies: 14

Ileostomy Question

posted by Tiggy

Greetings! I'm asking this question on behalf of my husband who has been an ileostomate for 10 months now. While he's adjusted admirably, there is one issue that is ongoing and causing him quite a bit of stress. It seems that everytime he remo...

Views: 7162 Replies: 13

Hernia Prevention & Ileostomy Appliance Support

posted by beatrice

I'm going blind (and not finding what I know much be out there) looking at the websites -- so maybe someone can lead me in the right direction. I'm interested in getting a support belt. Not one of the narrow ones that attaches to the pouch and...

Views: 9372 Replies: 13

Ileostomy To A J-pouch And Reversal

posted by Anonymous

Has anyone had an ileo then gotten a j-pouch made and been reversed? I have a preop visit with the surgeon in a few weeks and am pretty nervous about the coming surgery. I want to know what I am in for. I'm not thrilled about having an ileo but ...

Views: 20541 Replies: 13

1st Date After My Ileostomy

posted by Joanna190587

Hello all I have had my little friend since December 2011. I did think it was hard enough finding a fella as a single mum but this makes things that much more harder. I met a guy on a dating site so have had the chance to get to no him and him...

Views: 11056 Replies: 13

Open Skin Wounds Developing Around Ileostomy Stoma

posted by txgal914

I have had my ileostomy since 1991 when I was 19. I am now 42 and have started having open wounds develop on the skin immediately surrounding the stoma starting about a year ago. I have never had this occur in all these years. These wounds are n...

Views: 7400 Replies: 13

Back Pain After Ileostomy Surgery

posted by tudibird

I have never suffered from back pain until now. I am now 4 weeks post op and find the littlest amount of walking and/or standing causes me terrible back pain. Even when I'm sitting down I must prop pillows behind my back to avoid the ...

Views: 12733 Replies: 13

Getting An Ileostomy - Please Help

posted by jpeters

In 2008 at the age of 20 I inherited a neurological disorder that caused 15 daily BMs and a constant fecal smell. Other than nerve problems of the internal sphincter, my health & fitness were excellent.In July 2013 I got an elective sigmoid ...

Views: 3950 Replies: 13

Problems With Ileostomy

posted by Moonshines63

I've been having problems with my ileostomy for well over a year and been in and out of A&E with severe abdominal pain several times. The A&E doctors only seem concerned that the stoma still has output. It stops working while I'm having ...

Views: 4316 Replies: 13

New Ileostomy Recovery

posted by Susans53

I had surgery 2 weeks ago. Besides just feeling numb, I can't shake this overwhelming feeling of fatigue. Will it get better? I would have posted this in forums but don't know how? I click on forums but nothing comes up to post on. < >

Views: 2082 Replies: 13

Ileostomy Versus Colostomy????

posted by lottagelady

Hi Guys ........ It looks like I will need to make a decision before long as to whether to have an ileostomy or a colostomy which I will have to have for the rest of my life .....(currently have an ileo...) I am fortunate enough NOT ...

Views: 8161 Replies: 12

Flying In The Uk With An Ileostomy?

posted by Scott Chance

Hi all, What are others experiences of flying in the UK with an ileostomy? The specialist assures me it is safe to fly, but why do I get the feeling you have to have been there to really know what it's like? I'm due to fly next month (inte...

Views: 9204 Replies: 12

Anyone With An Ileostomy Done Slimming World/low Carb Diet?

posted by Tigerlily

Hello everyone. I have recently been told that my bowel resection/reversal is likely to be in September this year which is earlier than I thought. Great news but less time to lose weight before surgery. surgeon says it will make things easier ...

Views: 11657 Replies: 12

Spinach Dip After Ileostomy

posted by Anonymous

I know that cooked spinach is a bad idea with ileostomy, I was wondering if anyone had tried spinach dip? There is some in the fridge and it is looking very good.

Views: 5972 Replies: 12

Ileostomy

posted by stace20

Hi I just had the ileostomy but im finding it leaking. Is this normal ?

Views: 4017 Replies: 12

Ileostomy Problem

posted by stace20

Hello my Ileostomy bag keeps filling up with water been doctors they gave me dirolyte and immoduim but nothing working. Can someone help me please ?

Views: 7141 Replies: 12

Constipation?!!! And Ileostomy

posted by DawsyH

Hi there, the last few days I have had this horrible feeling the way that I felt pre surgery when I had constipation. I have been taking tramadol due to abdominal pain and Im wondering if this could have caused constipation. Is it possibl...

Views: 5304 Replies: 12

Weight Loss Diet With An Ileostomy

posted by bwilu

I am trying to find some sort of diet regimen that will result in weight loss that will work in harmony with my food limitations with my ileostomy. Most standard weight loss diets require a lot of fresh fruits and vegetables. I have discovered (...

Views: 3947 Replies: 12

Urostomy And Ileostomy

posted by suzy1957

I just have been diagnosed with recurrant bowel cancer, my question is has anyone got a ileostomy and a urostomy. this might be a question that will have to answer to if i get the option after my pet scan results. I would like to make an informe...

Views: 11185 Replies: 11

Irrigation For Ileostomy Obstruction (blockage)

posted by Anonymous

Yesterday afternoon, shortly after lunch, I was surprised by a sudden blockage. I was so busy that I didn't even realize that I had no output ALL day. It was 3:00 pm. Cramping, nausea, pain, and belly distension had me paralyzed in pain. This ...

Views: 43373 Replies: 11

Ileostomy, Diarreha And Metamucil

posted by tess45

Here's my question does any one have the first two condition's and do they use Metamucil? I was just wondering if I should start using the Metamucil again, would it help with the diarrhea and or what other benefits that I might get fr...

Views: 13150 Replies: 11

A Pooh And An Ileostomy

posted by Charchie

I have had Norman for 2 1/2 years now and appart from the occasional urge to pass mucus which I was pre-warned about, have this week been for a pooh twice!!! It is real pooh, the same colour as it used to be, and I am quite concerned. My stoma i...

Views: 6938 Replies: 11

Back Pain Since Ileostomy

posted by tudibird

So, I posted once before about the constant back pain I now have since surgery. Well, at my second follow-up I brought it up to my doctor who "assured" me that he's never heard of such a thing. Am I just crazy or aren't ther...

Views: 5504 Replies: 11

Need Help For My Mother ... Emergency Ileostomy And Reversal

posted by WorriedDaughter

Hi all. My mother was recently in a head on car accident (oct 03 '14) in Spain - visiting from the UK for a friends birthday - and it resulted in her having some of small bowel removed under emergency conditions due to heamoraging, I am here to ...

Views: 4780 Replies: 11

Your Guidance Can Cure My Aunts Complicated Ileostomy Case

posted by help$eeker

Greetings to All.... I am jotting down and seeking help on behalf of my beloved Aunty. My Aunt is 52 yrs old who has undergone major surgery due to ovarian cancer in the year Aug 2013 and was under chemotherapy.Due to obstru...

Views: 2350 Replies: 11

Colonoscopy Preparation With An Ileostomy

posted by ZaliBee

I am having my first colonoscopy this week and I have an ileostomy. I dont understand why they have mailed me the golightly and pills to take after I heard that someone with an Ileo should never take laxatives. Isn't it dangerous to ...

Views: 14523 Replies: 10

What To Eat With An Ileostomy

posted by Tink75

Hey guys. I have had my little friend (I call him sammy) for 8 years and was out on a very strict moderate fiber diet. 8 yrs later I'm still trying to figure out what I can and cannot eat. For example...i love honey roasted cashews...can I still...

Views: 231 Replies: 10

Recent Ileostomy And Passing Stool From My Rectum - Worried

posted by tudibird

Once again I am turning to you all for advice. My surgeon had told me that once in a while I might find that I pass mucus from my rectum even a small amount of stool. He did remove about 1/3 of my rectum but said I still ha...

Views: 13934 Replies: 10

Is An Ileostomy Reversal At 5 Months Too Soon???

posted by tudibird

Hi all. Looking for feedback from anyone who has had a reversal or is being considered for one. I am 3-1/2 months post ileostomy and my surgeon has said I am a candidate for a reversal. He wants to scope me next ...

Views: 4533 Replies: 10

After Ileostomy Surgery

posted by pammer

I am 9 days after surgery. Nothing could have prepared me for this. The pain, not feeling well, the constant trips to bathroom. Its hard work. I have had leaks and dont know why. Not being able to do much for myself. They kept telling me in the ...

Views: 6056 Replies: 10

Ileostomy Output Consistency

posted by 2tired

My ileostomy output is sometimes thick, sometimes thin and sometimes like water. I'm used to that, and I know that foods can affect the consistency. But I also have noticed that sometimes the output seems what I might call "blended"--a smooth co...

Views: 980 Replies: 10

It Is Ok To Sauna With An Ileostomy, Right?

posted by vdahl

I had an ileostomy Feb. 2nd colonic inertia and pelvic floor issues. Before the surgery, I was probably a little over-the-edge with saunas because I couldn't stand the thought of what was happening with all the toxins since I was only able to go...

Views: 345 Replies: 10

Need Tips For Reducing Feces Fluids In Ileostomy

posted by Anonymous

Hello,<?xml:namespace prefix = o ns = "urn:schemas-microsoft-com:office:office" ; /><o:p></o:p> <o:p> </o:p> My mom has an Ileostomy since October this year. She have many feces fluids with any bowel movemen...

Views: 6298 Replies: 9

Whats A Good Diet For A Ileostomy?

posted by LovingLife2

Hi Iam new here, had my ileostomy a yr ago, I'd like to know what we can really eat, does anyone have a good diet to follow. I love salads but afraid to try them, was wondering if anyone has, and how it worked out. thanks

Views: 12703 Replies: 9

Crohns-ileostomy-pain

posted by skidder

I am angry, embarrassed and I don't understand. Whenever I have been to see my GI doc, who I have seen since 1988, and love him dearly, I'm asked how I'm doing, number of poop runs per day, eating, you all know the routine. I have always answer...

Views: 7362 Replies: 9

So I Have An Ileostomy

posted by foxbody

July 3 i seen my dr for a check up every-thing is ok . After exame he gave me my opptions &n bsp; &nbs p;&nb...

Views: 4758 Replies: 9

Gall Bladder Removal And Ileostomy

posted by Anonymous

Hello I'm considering having my gall bladder removed, and would welcome any information from ostomates who have had this operation. I have an ileostomy (no large colon at all) and am interested to hear others' experiences of how t...

Views: 9921 Replies: 9

3 Months Into An Ileostomy, Have Questions

posted by Anonymous

Have a temporary Ileostomy which is scheduled to be reversed in January. I've had a bunch of problems with leakage, ended up going with a Hollister wafer for low profile stomas along with high tension on the ostomy belt and that really seemed to...

Views: 5239 Replies: 9

26yr Old With An Ileostomy; Success Story :)

posted by Rach1987

Hello everyone, I've not been on here for such a long time. Last time I was on here my boyfriend was facing the prospect of stoma surgery back in the summer, and now here we are, 5 months later, with a very special little friend we've affection...

Views: 4591 Replies: 9

Ileostomy Reversal

posted by Sierra

I am new to this forum. I had an ileostomy for one year and just had it reversed in August of 2014. I am having a difficult time and would like to meet individuals and have them share their experiences with me. I am seriously c...

Views: 5392 Replies: 9

Ileostomy Relocalization And Hernia Repair

posted by Sierra

Has anyone had a stoma prolapse and had to have their ileostomy moved to the other side of their abdomen along with an abdominal hernia?

Views: 1511 Replies: 9

Question About Changing An Ileostomy Appliance

posted by mmcgee74

Hi, I'm a registered nurse that has just started working on a general surgery unit. I don't have that much experience with changing ileostomy appliances. I had one patient the other night who's ileo appliance is always leaking. Some...

Views: 8505 Replies: 8

Cuba & Ileostomy

posted by Augusta

Hi, I am heading to Cuba in 2 weeks and wondering if anyone travelling has had any problems with bringing supplies and having to explain your supplies.....Anybody with any advice or travel tips...... Thank you

Views: 5770 Replies: 8

Child With Ileostomy ?

posted by Anonymous

Anyone on here got a child with an Ileostomy ? My son is 13 and had his when he was 11. We dont know any other children with one and we just muddle along and get on with things. Im worried about his growth, he is tiny. He is nowhere near puberty...

Views: 7784 Replies: 8

Ileostomy

posted by LeanneP

Hi everyone! I am new to this kinda thing! So i had my operation last August due to severe ulcerative colitis. I was wasn't suffering very long and the fact i had a major operation very quickly was a bit of a shock! I had to have a sub total c...

Views: 5315 Replies: 8

Ileostomy & Dehydration

posted by notexpectingthis

Hello all! I need some advice. I have had my ileostomy since 10/11 & we are just now getting into the heat here in the South. I was at my daughter's softball tournament yesterday & it was about 90 degrees here in Georgia. I drank ALOT of...

Views: 9631 Replies: 8

Ileostomy Question

posted by lanabana

Hi I am an almost 23 yr old female who just had to have her colon removed for having severe C.Diff for over 3 1/2 years and it was causing major problems causing my kidney function to go down to low 70's and exreme water retention around 15 lb's...

Views: 5251 Replies: 8

Possible Hernia Symptoms With Ileostomy

posted by skidder

I have ostomy on my left lower abdomen. For the last year I have been experiencing a burning sensation from left hip bone to left edge of ostomy. No pain but the burning at times is very uncomfortable. I have a nice size raised area underneath t...

Views: 4748 Replies: 8

Ileostomy Reversal

posted by tudibird

Me again. I keep writing because I find myself so lost in this whole thing. Question for anyone out there that has undergone ileostomy reversal. I've been told if all goes well and I heal well I should be able to...

Views: 4867 Replies: 8

Incredibly Sick After Ileostomy Reversal

posted by tudibird

Hi all. Been a while since I've posted. On March 4th I finally went in for my reversal. Since that time I've been incredibly sick. I've lost 10 lbs. My nausea has been the worst ever and I'v...

Views: 5945 Replies: 8

Total Proctocolectomy With Ileostomy

posted by Anonymous

Hi! I am 28 years young. I am schedule for a total proctocolectomy with ileostomy in a few weeks. I have had enough of dealing with ulcerative colitis and i have decided it is time for a stoma. Obviously, i have a lot of questions of what to exp...

Views: 893 Replies: 8

Continent Ileostomy..kock Precedure

posted by Sam70

Would like to chat with anyone who has had a continent ileostomy.< >

Views: 2102 Replies: 8

Ileostomy Complications

posted by Atom009

Hi There! First of all, thank you for taking your time out and reading my post. I had an emergency operation of tuberculer intestinal obstruction and 3 feet of my small intestine was resected and ileostomy was created. One night I felt something...

Views: 1213 Replies: 8

Partial Gastretomy And An Ileostomy

posted by Maisie London

Dear All, I have a partial gastretomy and an ileostomy for almost a year now. I live in the UK. Recently I have started to throw up a lot. I don't know what best to eat or drink. I wonder does anyone have a similar experience and if so could of...

Views: 1151 Replies: 8

Rectal Constipation With Ileostomy

posted by bebbers

Help! I've had an loop ileostomy for 4 months (colostomy for 10 months prior to this). I still have a small amount of faecal matter passing through my large bowel and due to the Imodium to slow my bowels done, I am now really constipated. I've t...

Views: 13578 Replies: 7

Breast Cancer And Ileostomy

posted by LisaT

Hi: I am a 53 year old woman who has had an ileostomy since January 1996 due to ulcerative colitis. I haven't had too many problems over the years expect for a few blockages due to bad food and taking codeine for a toothache pain.&nbs...

Views: 6370 Replies: 7

Help With Eating And Appliances For A Permanent Ileostomy

posted by Anonymous

Hello all. I am new to this and would like to introduce myself and my concerns. I am the fiancee of a 46 yo man with a permanent ileostomy. He was diagnosised with colorectal cancer last Feb. He underw...

Views: 6212 Replies: 7

Diabetes & Ileostomy

posted by Anonymous

Does anyone have ileostomy & Diabetes? Difficult to stay on a diabetic diet because of foods cannot tolerate due to the fiber. Any suggestions? Would like to talk to someone like me.

Views: 11950 Replies: 7

Total Proctocolectomy With Permanent Ileostomy.

posted by BustedColon

Can it be reversed? Ive searched and searched for any info on it and i'm coming up with nothing. I'm OK with living with the bag I just didn't know if maybe sometime down the road i wanted to reverse it, I could? Anyone know anything ...

Views: 8083 Replies: 7

Ileostomy

posted by puddin

Hi everyone, serious newbie here. I am due to have an ileostomy in a few months time. I have had a stoma for about 15 yrs due to having an ACE button. But having an ileostomy bag is scaring me to death, although I know it's going to make my li...

Views: 3167 Replies: 7

Ileostomy Noise!

posted by Fay520

Just got my ileostomy yesterday. And oh my stars! It is noisy! I hate it! When air passes through it, it literally startles me because it's so loud! And it's so embarrassing! I don't see myself going out in public with this noisy thing... EVER! ...

Views: 3768 Replies: 7

A Tip For Loop Ileostomy Or Those With De-functioning J-pouc

posted by magoo

Hi there,< > &n bsp; &nbs p; Just a tip for those people with a Loop Ileostomy or a de-functioning J-Pouch ( my configuration ) . In the Stoma there a...

Views: 1118 Replies: 7

Total Colectomy With Ileostomy Scheduled May 25th & Looking For Tips.

posted by Reddia01

Hello, I am new here, but not new to digestive malfunctions. It's finally come time to say goodbye to my colon and at this moment I'm not too sad to see it go. I can no longer go to the bathroom on my own and my pelvic floor is all ...

Views: 353 Replies: 7

Ileostomy....not Quite!

posted by tinmlizzy

I recently had surgery to remove my entire large intestine, the surgeon then joined my small bowel to my rectum. I am trying to balance the food/liquid problem because my bum is suffering from trips to the bathroom 8-15 times in a 24...

Views: 4912 Replies: 6

Medication And Ileostomy

posted by Rabbit

Surgery a few weeks ago reconnected my colon eliminating an colonostomy but resulting in a temporary ileostomy. I've been seeing my medications (full pills) spilling out of my bag. I've switched to liquid ibuprofen and acetaminophen which seems ...

Views: 7337 Replies: 6

Ileostomy

posted by geordie casper

hi some1 must be to give me some advice, i had my operation september 2010, i get phantom poo pains on a daily basis but the last couple of weeks i felt more severe cramps and pain. usually just mucus would weep from my bottom but now...

Views: 3939 Replies: 6

Ileostomy And Kidney Stones

posted by bes0642

I've had my Ileostomy since November 2005. Everything has been going fine with the Ostomy EXCEPT. I seem to have reoccurring kidney stones. Has anyone else experienced the same problems? I drink plenty of water and try to watch what I eat but I ...

Views: 8733 Replies: 6

Night Drainage For Ileostomy?

posted by Crohnsguy84

I purchased a urostomy container so I can plug it into my ostomy and empty at night. I think the tubing is too small and it won't work. Are there night drainage devices for an ileostomy?

Views: 3576 Replies: 6

Ileostomy Reversal

posted by fordlady

I am new to this, so I will tell my story and then see what comments are made. Ok, well back in 2011 I was diagnosed with cervical cancer so I started chemo and radiation. I had 35 radiation and 4 weeks of chemo and also 4 internal ra...

Views: 3602 Replies: 6

New To Site, New Ti Ileostomy

posted by kevs1981

hi, i just wanted to introduce myself and ask a few questions. Ive recently had surgery and have been left with (i hope) a temporary colostomy, im still trying to recover from the surgery and having a lot of concern about living with a bag. i k...

Views: 3232 Replies: 6

Ileostomy

posted by Fay520

How often will I have to empty my ileostomy per day? I know it's different for everyone, but hoping to get a general idea. Also, will I have to set my alarm at night to get up and empty it several times a night? I have surgery March 21, 2014 to ...

Views: 2848 Replies: 6

Ileostomy Reversal

posted by mollymoo

Hello all you good people out there -- Has anyone had to have an ileostomy because of Radiation Damage? In January 2012 I had a major operation for Cancer. The operation was successful and the tumour removed from my womb. THEN I was advised to...

Views: 4048 Replies: 6

Ileostomy Reversal Success Story.

posted by Melb_guy

Hi all! I am a 48 yo male and am one week post ileostomy takedown. I had a temp ileostomy for 5 months due to a bowel resection for diverticulitis. I read many horror stories online in my quest for information and i have to say I couldn't be hap...

Views: 5438 Replies: 6

Joint Pain Post Ileostomy Surgery

posted by Dieseldog

Hello Post prednisone medication I have been experiencing rather severe joint pain. Has anyone else experienced this? If so, can you explain why this is happening and how long I should expect it to last? Thanks Dal

Views: 2577 Replies: 6

What To Expect After A Reversal Of Ileostomy?

posted by rednut68

I'm sure this questions been asked many times.... As mentioned on my profile I've put off getting the Reversal done for around 5 years.Aside from being a bit unsure of the outcome there were other circumstances too,unfortunately. I was to get ...

Views: 1091 Replies: 6

Question About Ileostomy Blockage

posted by freedancer

What does an Ileostomy blockage feel like? I am experiencing really painful cramping on my upper right side of my stomach, across from my stoma. The area around the stoma is very tender and sore but not like a skin rash sore. It is m...

Views: 124 Replies: 6

Abs Of Mashed Potato Following Ileostomy!

posted by beatrice

Ok, before my op I did not have abs of steel. Had the mid-life lady body type where every extra ounce went to the midriff and my activity level would never give me a six pack. So I was middle soft with a little muffin top. But now ... I defini...

Views: 4394 Replies: 5

Watery Leakage Every Morning - Ileostomy Done 1 Yr. Ago

posted by tello

I have a question that I am hoping someone can answer for me. I first had a "straight-thru" (small intestine hooked directly to anus) sub-total colectomy done in 2009. this didn't work out for me because I was hav...

Views: 5529 Replies: 5

Ileostomy / Urostomy

posted by Mickey

Hi all i have ileostomy since 1981 now i have been told i need a urostomy!.Has this happened to anyone else Dwyer

Views: 3166 Replies: 5

Ileostomy Due To Fap- Additional Issues

posted by ZaliBee

I had my colon, rectum and anus removed due to a diagnosis of FAP, but now they are saying that I have hundreds of polyps in my duodenum. Is there anyone else on here who has FAP and any problems with their duodenum? I'm ...

Views: 3810 Replies: 5

Irrigation If Not Ileostomy

posted by shrek74

Hi my name is neil I have a colostomy since August 2013 I have a large lump its hernia which is causing pain and discomfort and leaks the surgeon said he will fix the problem wants me to irradiate if that don...

Views: 2422 Replies: 5

Ileostomy And Pregnancy

posted by Lilly

Hi everyone I've had an ileostomy for the past 7years with lots of surgery since then. I've recently found out I'm pregnant 'about 6weeks'. I'm having a lot of problems with pressure on my back passage and even faceases coming out every day, wh...

Views: 2253 Replies: 5

Dating With An Ileostomy

posted by snuggles w/iliostomy

I want to know how to do the dating thing with an ileostomy I am looking for someone who does not care if I have one...My husband left me last year after I had it for two years...I don't know how to go on from here...any suggestions..

Views: 1339 Replies: 5

Colonoscopy With Ileostomy

posted by Anonymous

Annual check up the Dr stated time for colonoscopy. My concern is the prep and getting dehydrated. Anyone have this done and is there a different prep for us? Only one large clinic in town that does them, called there and they ...

Views: 866 Replies: 5

Due My Surgery For An Ileostomy, I'm Really Worried.

posted by Maz

Hi, I'm new to this site and would appreciate some advice from people who have had ileostomy surgery. I would like to know anything that might help me before my operation. Is it extremely painful? Should I stop eating beforehand? How long is th...

Views: 784 Replies: 5

Ileostomy And Rectal Discharge

posted by honestabe

Have ileostomy. Still have colon. Sometimes still have small rectal discharge (poop), usually very liquid type. Surgeon said its normal due to colon still producing mucus and poop. You would think the medical field would make you aware of things...

Views: 723 Replies: 5

Cpap And Ileostomy

posted by Maryellen

Hi there. Can anyone comment on using a CPAP for sleep apnea with an ileostomy? I am having some problems and wonder if it is just me? Thank you! maryellen

Views: 264 Replies: 5

**second Surgery To Relocate Ileostomy-whoa Advice Is Needed

posted by Anonymous

Hello This is my third question to this forum since I found it very useful and so many good people offer great advices. As communicated before, my mom had a TME surgery (permanent ileostomy) about six weeks ago; currently my mom is still hosp...

Views: 7802 Replies: 4

Having Surgery To Convert Colostomy To Ileostomy. Have ?'s

posted by Maryland Gal

Hi all, I have posted before and I have to have the rest of my large bowel removed due to a severe stricture along with severe motility issues which have caused me to be on TPN and do not allow my colon to work. I know I ha...

Views: 5855 Replies: 4

Colostomy Reversal, Hernia Repair And New Ileostomy

posted by warmknight

I need some advice on what to expect and encouragement. I have crohns disease which was very active in the decending colon and rectum. I had a permanent colostomy formed and my decending colon and rectum removed with the hope that it ...

Views: 6835 Replies: 4

Information On Ileostomy Reversal

posted by moses0730

So in March of last year, I had surgery to have a total colectomy with end ileostomy. I was told that since it was a final determination of ulcerative colitis, that I could later on have a reversal if I wished. I'm looking to get information fro...

Views: 6956 Replies: 4

Medications With An Ileostomy

posted by cassiemarie

I am on quite a few medications, including several that are timed released. After asking my pharmacist, I found out that most of them are absorbed in the colon. Since I no longer have a colon, I am very concerned that I am not absorbi...

Views: 3293 Replies: 4

Ileostomy Output

posted by tudibird

Hi. Had my ileostomy 10 days ago and struggling with my output. Doctor and ostomy nurse say I should have output of 800cc's a day and I'm having about 400cc's a day. Doing my best to follow the low residue diet a...

Views: 2541 Replies: 4

Rectal Pain And Pressure Post Ileostomy

posted by tudibird

I'm four weeks post op today and am having the worst day yet. I've had occasional days of rectal pain and pressure which has usually meant I need to pass some mucus and once I do I have relief. Well, today starting around 7...

Views: 3847 Replies: 4

Ileostomy Reversal

posted by pitterpatter

I had the ileostomy reversal a month ago I am still feeling a lot of rectal pain and am trying to control my elimination but often have accidents daily. Does anyone know how long it takes to stop hurting and to get control? ...

Views: 2934 Replies: 4

Open Colostomy Reversal And New Temporary Ileostomy

posted by CelticTee

Long story short: On April 20, 2013 my colon perforated due to diverticulitis. I arrived by ambulance to the hospital already in full blown septic shock. I was in the operating room for 5 h...

Views: 5218 Replies: 4

Worried - Slow Output From Ileostomy

posted by tudibird

It's been a while since I've written and here I find myself again looking to you all for advice. For the past 10 weeks since my surgery my stoma has produced a consistent flow. However, now in my 11th week, I barely have an...

Views: 2750 Replies: 4

Need Guidance - Getting A Reversal For My Loop Ileostomy

posted by tudibird

Hi all. It's been a while since I've written. I am happy to say I've been given the green light to proceed with an ileostomy reversal but I'm nervous as hell. I've tried to find input from others on this site but find there's not much...

Views: 2539 Replies: 4

Treatment For Ileostomy Adhesions

posted by zanzi1

does anyone know how this can be treated when you have an acute episode. I've had my ileo for 40 years and didn't have this problem until 20 years ago. I read on this forum that people use irrigation but i wondered if that's just for food blocka...

Views: 1106 Replies: 4

Ileostomy Skin Barrier Medicinal Odor

posted by Shash

Hi all For the last month+ I have noticed a very medicinal odor that occurs after wearing my flange for 1 day or so; it actually causes my clothing in that area to pick up the odor as well. It is not the result of output.... not sur...

Views: 464 Replies: 4

Trying To Gain Weight S/p 15 Yo Gastric Bypass And Ileostomy

posted by Jojo322

Been reading loads of great info but I can't seem to find the info I'm looking for. I had a gastric bypass 15 years ago with no problems. That is until now. July of 2016 was my first lap surgery for removal of adhesions. All seemed f...

Views: 653 Replies: 4

Smallbbowel Series Test With Ileostomy

posted by 2tired

I am scheduled to have a small bowel series test on Friday, Feb. 17, 2017, and I am very nervous about it! The test was ordered after I had four bowel obstructions in 12 months following emergency abdominal surgery in November 2015. They tell me...

Views: 362 Replies: 4

Prostate Cancer Radiation With Ileostomy

posted by bluerose157

Morning of Sept. 27/16: early morning had abdominal pain, vommiting; this continued to get worse over morning. By early afternoon, my wife (retired r.n. for 38 yrs.) called ambulance; could see motteling in extremeties; skin was cold & clamm...

Views: 329 Replies: 4

Ileostomy And Uric Acid Kidney Stones

posted by mcame

Has anyone experienced this after your ileostomy? If so what are you doing to help prevent them? I have read in the forum Lecithin might help with the uric acid?

Views: 422 Replies: 4

Permanent Ileostomy

posted by Gary w

Hello all I have had a permanent ileostomy for 3 years now and was wondering if there is any product out there that allows us to go bag less like at the beach or something . Like a plug ? Thanks in advance for your knowledge and comments&n

Views: 190 Replies: 4

Taekwondo With An Ileostomy?

posted by HungryHamster

Hi, I did taekwondo for nearly four years before I had my surgery. It was pretty much the only sport I've ever done that I've actually been alright at as well as really enjoying it. I was never big on sparring as I'm not an overly aggressive pe...

Views: 259 Replies: 4

Loop Ileostomy And Problems With Hard Mucus Build Up

posted by Kateinbed

I have a loop ileostomy and had the surgery due to dymotility of the gut and pseudo obstruction( no longer had any peristaltic wave to move things along ) this happened after two lots of major surgery on my spine done through my abdomen. I had t...

Views: 166 Replies: 4

Ileostomy And Ms

posted by Belinda

Anyone out there with the strange combinatio of ileostomy and Multiple Sclerosis. Am I unique? Belinda, England

Views: 5671 Replies: 3

Colostomy Verses Ileostomy?

posted by Maryland Gal

Hi, I am new to the site and had a few questions. I had to have a colostomy just over a year ago due to a doctor screwing up my back. I have cauda equine syndrome ( No bladder function and my nerves to my rectum...

Views: 3756 Replies: 3

Ileostomy With Large Parastomal Hernia

posted by Phanne

Hello, I'm new to this site so still finding my way, that is if my memory...what's that! will allow me to remember where I've been before. However despite all that I have a question regarding quite a large parastomal hernia. I acquired this Ileo...

Views: 6183 Replies: 3

Ds, Ileostomy And Transition To Adulthood

posted by Robin LeoGrande

Hi I'm new to this forum and I hope you can help. My son is 21. He has Down syndrome and an ileostomy. In June he will be graduating from high school. His future is filled with opportunities for jobs and community activities. He needs to learn...

Views: 2767 Replies: 3

Ileostomy Questions

posted by bikergrammy

Hello, all. I'm so happy I've found this website! My mother who is 79 had surgery last October, and most of her large intestine was removed. She now has an illeostomy bag. Since Mom doesn't own a compu...

Views: 3655 Replies: 3

Who Has Both An Ileostomy And Ileal Conduit?

posted by Big H

I have an ileostomy since I was 18. Now at 72 I have been newly diagnosed with bladder cancer which quite possibly will result in radical surgery...the removal of my bladder and reconstructive surgery after proscribed Chemotherapy. Th...

Views: 3560 Replies: 3

Ileostomy Reversal, I Will Let You Know How It Goes

posted by TotallySurprised

Guess I will start from the beginning. 2 1/2 years ago I had a sudden onset of abdominal pain which got worse over 48 hours. Having no insurance coverage, I held out as long as I could before going to the ER with the abdominal pain and no B/M fo...

Views: 3738 Replies: 3

Prostate Biopsy After Ileostomy

posted by HangLoose50

Have any males had to have a Prostate biopsy after their rectum has been removed and if so, how was it performed.

Views: 6259 Replies: 3

Ileostomy Reversal Finally Done

posted by Anonymous

Hi folks, I was a newbie to the site last year when I underwent an emergency Ileostomy and the doctors were surprised that I had no prior symptoms or illness other than the ones I presented them with on the day. I havent been too goo...

Views: 14921 Replies: 3

Post Ileostomy Stomach Flu- Like Sypmtoms

posted by zanzi1

I had an ileostomy in 1976 at age 28 for ulcerative colitis with no after effects. I know how lucky I am. In my early 30's I went to Europe and got terrible stomach or what is left of my small intestine pains, with vomiting and liquid output. I ...

Views: 4325 Replies: 3

Possible Hernia After Ileostomy Surgery

posted by tudibird

Looking for some advice. Had ileostomy surgery 11 days ago and now that I am home have noticed a bulge to the left of my stoma which is quite painful. I should mention I had this bulge after surgery but the sharp, burning p...

Views: 3383 Replies: 3

Ileostomy Reversal

posted by fordlady

I have had an ileostomy since last april due to a small bowel resection, they took about 2.5 feet from me. I am wandering about a reversal, wandering if they will be able to do it. My doctor was worried about adhensions. If any one has any sugge...

Views: 2095 Replies: 3

Discoloration Of Ileostomy

posted by Shash

Hi all, I noticed this morning that I have a discolored area at the opening of my ileostomy; it is a small brown/gray area (not discolored from any residual output) There is no pain or any other issue. Any thoughts?? Thank

Views: 2718 Replies: 3

Preparing For Final Part Of Ileostomy Reversal

posted by Jenniee

Hi everyone! I joined this forum recently in search of people to talk to who have already been through a reversal of the colostomy bag. I myself have undergone the first part of the reversal, and i'm due to have the second part at the begining ...

Views: 2682 Replies: 3

Does Ileostomy Output Have Mucus From Digestive Tract.......

posted by OstGirl9930

in it like normal bowel movements do? I still have 90% of my colon and was wondering if mucous from the digestive tract is also present in ileostomy output like it is in regular bowel movements? I know ileostomy output has digestive enzymes NO...

Views: 3509 Replies: 3

Troublesome Loop Ileostomy, Help Please!

posted by Positivethinkeroncrisis

Hello fellow ileostomates! Just wondering if there's anybody out there who has the same problem I do... I had a loop ileostomy performed on 11/2014 due to a small bowel obstruction that I still have and will be operated on 05/2015. Initially my...

Views: 2312 Replies: 3

Ileostomy And Partial Gastrectomy

posted by AncaR

Hi everyone, My boyfriend had a partial gastrectomy on the 8th of December and was recovering very well until the 29th when we had massive internal bleeding. He had another emergency surgery and the doctors had to do an ileostomy to save his or...

Views: 1944 Replies: 3

Ileostomy And Diabetes

posted by Monsieur Le President

I was a reasonably fit and athletic 20 year old when I developed UC in 1966 and I had 2 young children. After 8 years suffering the symptoms we all know so well, we ( my wife & me ) decided upon the surgery that would leave me with THE BAG. ...

Views: 1844 Replies: 3

Ileostomy Pains

posted by Anonymous

hello currently I have an ileostomy and have had it for about six months. I frequently get severe pain on and around my stoma almost like a hot knife is trying to cut its way out of it. I'm not taking any pain medicine, but I want to know if thi...

Views: 1188 Replies: 3

Questions To Ask Surgeon Re: Colostomy & Ileostomy Rever

posted by Erinbeth

Hello forum readers. I had a colostomy last August due to complications from colorectal cancer. My tumor was at the junction of the colon & rectum, so some of each was removed. It's a long sordid story, but end result is th...

Views: 915 Replies: 3

Ileostomy

posted by Scorpio58

hi new here is there anyone from England on this site with ileostomy

Views: 416 Replies: 3

Ileostomy

posted by Lilian

Does anyone have a greyish smelly from their back passage. I had my ileostomy 18 months ago

Views: 179 Replies: 3

Bruising Around Ileostomy

posted by gary

Hi everybody. I had an ileostomy last year in July2016 and was a bit touch and go at the time, spent 103days in hospital after 5 operations. Thankfully I was allowed back to work in April this year 2017 as a engineer. I'm currently away from hom...

Views: 105 Replies: 2

Just Had Colostomy Converted To Ileostomy

posted by Maryland Gal

Hey, it's Maryland Gal. I had my surgery July 13th. Surgery went well. Took 6 hours because I had so many adhesions. My surgeon was able to bring the small bowel through the same hole. I had many other complications that ke...

Views: 3489 Replies: 2

Colostomia- Colostomy /ileostomia - Ileostomy

posted by GACWOCN

This video will help explain colostomy and ileostomy surgery. Joy Hooper, RN, CWOCN & Italo Santana explain the surgery in English and Spanish. If you have any questions concerning the information in this video, please contact me ...

Views: 3808 Replies: 2

Liver And Ileostomy

posted by dina

i want to know if a ileostomy surgery with the pass of time affect the liver? i have a 24 years surgery and now the liver enzyme are a little be high...thank you bye dina

Views: 4620 Replies: 2

Ileostomy Reversal Question

posted by lanabana

Hi, I had C.diff for over 4 years and had tried every medication that was avaliable, I had 2 fecal transplants, and it was starting to effect other parts of my health. My kidneys were only functioning in the 70%s and I was retaining...

Views: 3737 Replies: 2

Ileostomy Reversal After Having Bowel Obstruction

posted by SA

Hi All, I struggled with bowel obstruction for about 10 years and after plenty of operations to remove obstructions I ended up with an Ileostomy. Is there anyone here that has had a similar thing happen to them and what are the chanc...

Views: 3550 Replies: 2

Ileostomy Reversal

posted by Anonymous

Hi everyone! Just had my reversal 3 weeks ago. I woke up with a huge hole in my belly but is healing up pretty good. I guess its the new thing not to sew you up and let it heal from the inside out. ...

Views: 2641 Replies: 2

Ileostomy Question

posted by seekingsupport

I recently changed appliances because my prior appliances were too small for the stoma. I have now been using these new two piece appliances but have found it to be extremely frustrating. The appliances do not properly fit the stoma. This may be...

Views: 69 Replies: 2

Ileostomy And The New Toilets

posted by joanmarie

I have an ileostomy and my stool is pretty much all liquid. Recently did some home renovation and put in an American Standard low flow toilet. I didn't realize the new toilets have a different compound in the ingredients th...

Views: 2100 Replies: 2

Ileostomy Patient For 2 Years

posted by NorthLA

Hello. I wanted to get some feedback from any people who have an ileostomy and have had any issues with proctitis. If you have had this, please let me know any treatment(s) you tried and the outcome. Many thanks

Views: 2424 Replies: 2

Ileostomy Reversal - Unsure What To Do

posted by Anonymous

I have just joined this site and thank you to everyone for their candour and support for each other. < > i hope you can help me. I have had acute Crohn's since 2000 when I turned 30. I am now 43, have 2 children (miraculously) and h...

Views: 2412 Replies: 2

Ileostomy Problems

posted by MARYLANDGAL

Help, Anyone have one or several what are called sudo obstructions do to Neurogenic small bowel? I am currently in the hospital again at Hopkins and have a great team ( this is very important as I was rushed to a hospital that did not know me o...

Views: 1951 Replies: 2

Ileostomy And The 5:2 Diet

posted by Anonymous

Evening all I'd like to try the 5:2 diet to get a bit lighter - anyone tried it and if so did it have more of an impact due the ileostomy?

Views: 1684 Replies: 2

Ileostomy Check Up

posted by Cappabarstar

I'm just curious...I've had an ileostomy since 2005. I've had partial bowel obstructions here and there along with ct scans, mri's, and X-rays. But is a person supposed to have some type of yearly or every 5 years, whatever, checkup, like a colo...

Views: 562 Replies: 2

Reversal Ileostomy:

posted by cuddlefish

I am very self-concious, so I curious how other scares look and how other people feel about their healed abdomen? It has been a little over a year since my reversal and my plumbing is working fine; but boy,will I ever have that 6 pack again?

Views: 689 Replies: 2

Reconstruction Ileostomy

posted by Rubyroo

Anyone had this done to make a better stoma?

Views: 612 Replies: 2

Ileostomy Reversal

posted by Anonymous

I will be having reversal in Feb 2016 can't do in Oct 2015 as planned due to FMLA won't be available til Feb as I exhausted it for the year. I have been reading posts here all weekend on this and now scared. Has anyone had this done...

Views: 568 Replies: 2

5 Weeks After Surgery - Loop Ileostomy

posted by Sis1949

Its been 5 weeks since my surgery. Things are going ok. I only had one issue with a bag leak. But I do have another issue that I'm concerned with. When I get up in the morning I feel fine, but after moving around for about an ...

Views: 423 Replies: 2

Ileostomy And Lot Of Rectal Discharge

posted by honestabe

Help

Views: 557 Replies: 2

Ileostomy - Stomach Pain

posted by Sis1949

I had my Ileostomy on Nov 2016. The reason I had this done is for years I've been to many doctors because I couldn't go to the bathroom. Been on many medications. Every day feeling bloated and uncomfortable. The doctors s...

Views: 410 Replies: 2

Massaging Ileostomy Area For Pain Relief

posted by freedancer

I've been told that the ileostomy area can be massaged to help with pain but I was wondering if there was a specific way that this should be done. I know this is probably considered a pretty goofy question but if I could ease the pain I am...

Views: 98 Replies: 2

Ileostomy Vs Colostomy

posted by Sunnyone

Hello, I am looking for information from anyone who has had a ileostomy and then had a colostomy. How do you feel about the difference beteen the two? If you had the ileostomy and now have a colostomy are you happy with the chan...

Views: 727 Replies: 2

Reversing Ileostomy With Minimal Large Intestine?

posted by Smiles101

Hello Everyone. I am curious about opinions, medical experiences, articles or general input on my pending reversal decisions given I have only 5cm of remaining large intestine remaining. Ileostomy October 2016 and my (ahem) bodily function below...

Views: 150 Replies: 2

Last Week I Had An Ileostomy Loop Reversal,can Anybods Help

posted by shadow750

hi everyone,i recently had my ileostomy loop refersal after 2 and half years of haveing a stomer bag i started with a colostomy then i had an ileostomy,then i had to have my intestine repaired for it was not possible to have a revers...

Views: 4427 Replies: 1

Ileostomy Prolapse

posted by JoeP

I have had an ileostomy (Crohn's related) for 9 months now. At the start it recessed, then a few months ago began protruding, now is about 15cm out. But at nigh when lying down, it often retracts all the way back. Anyway, I have read about a s...

Views: 2906 Replies: 1

Ileostomy And Very Wet,,,need Help!!

posted by dragon2

<p>Hello dragon2 (griffin); but its his mum JULIE POSTING THIS!!</p> <p>I need some help and ideas about griffin, he has to drink so much to be hydrated that at night he is so wet urine that we have not had a dry night yet!! I...

Views: 1633 Replies: 1

Help! What's An Ileostomy Revision Like???

posted by livinnandlearnin

It's starting to look like I'm going to need a revision of my ileostomy. I had a complete colectomy 5 years ago (and many other surgeries since) and blood flow to my stoma is poor now and causing me pain, not to mention how sick I get when I eat...

Views: 1906 Replies: 1

Living With Colostomy And Ileostomy, Some Physical Limitatio

posted by Aileen green

Hi there!! If you read my profile you'll know I'm dealing with a lot. Would love to talk with people who have similar issues. :) :)

Views: 1632 Replies: 1

Relocalization Of Ileostomy With Prolapsed Stoma Repair And

posted by Sierra

I am having surgery in April to move the ileostomy to the left side of abdomen as well as an abdominal hernia repair and stoma prolapse repair. I'm wondering if anyone has had this surgery and how successful it was. Hope to hear from...

Views: 717 Replies: 1

Going From Bcir To Normal Ileostomy

posted by Prince Velvet

Hello all, F.A.P. is genetic on my dads side. I got a total colectomy on October 1st 1997. Bout 12 years ago my BCIR started having continence issues. I found out this past December that the reason is I have 2 Desmoid Tumors, one of which is att...

Views: 490 Replies: 1

Recovery From Ileostomy Reversal

posted by LindaB

I was worried I would have endless diarrhea after reading some blogs. I am 6 weeks past my reversal surgery and I have never had diarrhea even once. I was very compliant with the food plan my surgeon prescribed. I now have no limitations on food...

Views: 606 Replies: 1

Ileostomy Question

posted by tpattison

Hi. I face having a ileostomy next month where they will leave my one foot of left colon in and the rectum will be left in..... I guess it is called a loop ileostomy.... I would love to chat to people who have this kind of surgery to know upfron...

Views: 416 Replies: 1

Antibiotics With An Ileostomy? Any Tips For A Newbie?

posted by BeYourOwnHero

I need some help here. I've tried the recommended foods but output is still like water. What can I do ao I don't get more dehydrated? I was told to avoid fiber but looks like I could use some....right?

Views: 375 Replies: 1

Ileostomy Question.

posted by seekingsupport

i recently changed appliances because my prior appliances were too small for the stoma. I have now been using these new two piece appliances but have found it to be extremely frustrating. The appliances do not properly fit the stoma....

Views: 31 Replies: 0

Hair Loss After Ileostomy

posted by freedancer

Have any of you folks had any trouble with losing large amounts of hair after you had your ileostomies? My hair is falling out by the hand fulls. The doc did check my thyroid levels and found my T4 to be 40. She raised up my medicat...

Views: 5 Replies: 0