Popular Forum Topics

I am new here. Never new a site existed for people with my disease. Looking to make some new friends

Hi. I have blood in my bag from time to time. Sometimes gross, other times little. I sent stoma pic to surgeon and he said stoma was very good. He expects periodic bleeding due to the eliquist 5mg 2x a day

any thoughts/comments??

bob

Cancer has been a very unfriendly thing in my life lately. And it’s come back a couple times, On March 7, I had surgery because cancer had gone to my vagina and a tumor attached to my pelvic wall, I had surgery to remove 2 to 2 1/2 inches of my vagina. Remove the tumors and get cancer off the wall of my pelvic area. And as we all know just because we have one more thing done doesn’t mean t ...

Just looking for support in day to day struggles and trying to lead the best life I can

I enjoy reading all the questions on here, but as I try to read the many comments so I can learn too, I’m unable to unless I’m a premium member. Does that make sense? Anyway, I’m wondering if you are planning on an 8 hour work day, what would you eat or not eat to avoid using the bathroom at all during the work day, since you are keeping your personal life private? Can anyone help me? I ...

I got some 2 piece sensura click 2. DBL MAX OPQPC DBL MAX with no directions. I have never used 2 piece appliances, am not very computer literate. I can't find any directions on how to use them.

The videos I have found, do not match what I have.it's very hard to reach My Coloplast rep.

Can someone please help me find a video? Thank you

Another update. So when I was there at the rheumatologist she listened to me about all of my symptoms and she saw my hands. She said this makes me think of scurvy and asked me if I was eating enough fruit like oranges etc. Well. With the ileostomy I told her I cant eat oranges but that I used to drink orange juice and V8 . It's been quite a while as I got busy with work not thinking to pay mor ...

Ok this is bugging me enough to ask on here. I use a holister 2 piece, and lately the bag has been coming detached from the wafer. I am wondering what bone headed thing I am doing to have this happen. It happened two nights ago when I woke in the morning the bag was off the wafer but still close to it because I do wear the belt that attaches to the bag. But it was off the wafer enough to leak ...

Has anyone tried Wegovy or one of the others for wieght loss? I was so happy to be able to finally eat and live like a normal person that I got a little carried away. . I am having difficulty loosing the wieght and not sure if not having a colon, these types of drugs should be tried.

Hi all,

We happen to live in the path of totality, so we'll be able to view the entire solar eclipse today.

What I'm more excited about is the effect it will have on nature (since we live in the country). Apparently, birds will stop flying and nocturnal animals will come out. What a confusing time for them! I have a constant stream of birds at my feeders, so it will be interesting to see w ...

Hello

My ileostomy was formed 4 months ago. On 3 occasions now after fairly heavy gardening and lifting, I’ve noticed that my ileostomy has a pulling / slight pain sensation, protrudes slightly more (I think maybe telescoping out a bit) and at the same time the output turns from porridge like to liquid only. The protrusion goes in a bit if I lie flat. Previous times output and stoma return ...

I had ileostomy reversal 2 months ago. Prior to that I had ascending and transverse colon removed and then a few weeks later 18 inches of my small intestine w ileostomy. My surgeon said I would go to the bathroom 5-9 times a day. I go 20-30 times. Last night closer to 40. My ass hurts so much I found myself screaming in the shower this morning after not sleeping all night. I have absolut ...

I'm new here and really scared as most of you have probably experienced! I've had severe rectal pain for two years and my Dr's have tried everything to identify the problem. As a result, I'm extremely swollen internally and have difficulty having a bowel movement. Have any of you experienced anything like this and did getting "the bag" resolve the pain?

I'm in WA State and was so reliev ...

https://www.instagram.com/reel/C5bMNXYLGeC/?igsh=MTd4aWwzcTM3OGdxNA==

Hi All..I know IRA surgery isn't performed as much as Jpouch , but I still have 10 inches left of sigmoid colon and a current end ileostomy. Last week, I had scopes and was told everything looked great and if I wanted to pursue surgery I should. I saw Dr Remzi in NYC last year and discussed a jpouch , but he never mentioned an IRA which suggests to me that he preferred a jpouch since that's h ...

Hi friends: Last Tuesday I got the latest COVID shot. I don't usually have any negative reaction to the shots, but that night I had diarrhea, which kept going and going out from my stoma. Then the following night I had diarrhea again, but this time it was very watery and messy coming out of my stoma. I always take two diarrhea tablets to make my poop manageable, but the next day I took three t ...

Hello all,

I'm so glad to be here! This forum is exactly what I needed to help me adjust to having a permanent ileostomy.

Oddly enough, I did not have any symptoms of the damage raging through my intestines. They were pretty much like Swiss cheese, I am told.

Believe it or not, I actually fell out of bed one night; my husband heard the thump on the floor and tried to wake me up. Apparent ...

Today is bag change day. We'll, I woke up late and was rushing this morning. I use a Hollister 2 piece system, and have never had any issues,until today. The entire area of the fabric base was really bothering me all day. Felt sore with a burning itch. Never have had that feeling before. Well I got home today and in my bathroom on the sink was the barrier wipe I always use, but today with rush ...

For those of you that use the adapt lubricating deoderant, I have questions. I was not able to get my M9 in time so I ordered this adapt to suffice until my M9 comes. It's been quite some years since I've used adapt. Since its lubricating can you rinse your pouch with a water bottle when you empty or will the lube ruin your seal?

Somehow I'm.remembering something about it maybe loosening u ...

DO WHAT? ( 3.narcissistic achievement)

There are some people who believe
that when they do things to achieve
it does not matter what they do
as long as to their goals they’re true.

Hence, many things that they get done
means you and me and everyone
become the victims of their aims,
their selfishness and devious games.

These people tend to be unkind
because the aims they have in min ...

Hi, it’s looking more and more like I will get an elective Colostomy! Any opinions on placement of the stoma?

My stoma hurts!

Output is good, no screaming runs, skin around the stoma looks good, got prescribed a steroid cream. Had a colostomy. Dr. wants me to put the steroid cream on the stoma

2 x a day. I use a 1 piece pouch. What in the round world could be making it hurt? Walking my 60 lb puppy? He does pull. This started last week.

Haven't eaten any spicy food. I don't drink the tap wate ...

I almost missed the day.
Before the day is over, I want to celebrate Tommy the Ostomy.
Today marks eight years since I had my colostomy surgery.
I want to thank Dr. Bobby Rad for doing such a fantastic job.
Here is his link: https://bit.ly/4cC2wGf
Also, I appreciate the support of the United Ostomy Associations of America.
This photo was taken the day after surgery.

Hey all - had my operation just last month and am now back home recovering.

I have found myself getting random sharp stabbing pains in my abdomen, anus and groin area since my surgery. This is very random when it occurs and can even happen when I'm not moving and just sat in bed for example. It is thankfully not constant but can be a very sharp pain when it occurs and it does worry me somewh ...

Would like to make an informed decision whether to have it reversed. Am getting frequent urine infections due to the proximity of the bladder & the ostomy. Would very much appreciate hearing about your experiences with the reversal procedure & how you decided whether or not to have it reversed in your unique circumstances. Also if you decided to go back to having a colostomy after the reversal ...

A TWO–PIECE split BAG TIP.

For those who use a two-piece set
for your stoma, I should let
you know what I have now found out
so, you may know what it’s about.

Some of you have complained of smell.
Well, as far as I can tell
the bags are fairly flimsy so
here’s something you ought to know.

I use my bags six weeks or more
before I throw them out’ the door
so, with any weaknesses I ...

DO WHAT? –(stomas)

Some of the many things we do
is sort our stomas and the pooh,
which goes from bags to down the loo
and offers us a different view.

Most people’s pooh comes from their bum
but ours emerges from our tum,
so we do quite a lot it’s true
to cater to our stoma’s pooh.

It can be quite hard to adjust
and not treat stomas with disgust
thus, we must do this adjusting
j ...

Anyone know where I might could get these for cheap as I don't have insurance or income and cannot find any

Happy Easter my friends. If you're traveling be safe.

I have very sore skin around my colostomy due to diarrhea, i've tried derma gard wipes that sting, any suggestions that help?