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Nov 07, 2020

High output and watery output after ileostomy surgery - seeking advice and experiences

This topic is about dealing with high and watery output after ileostomy surgery, especially when a significant portion of the small intestine has been removed. The person is seeking advice on managing this condition and wondering if a return to a "normal" life is possible. Here are some helpful insights and tips:

1. Early Post-Op Adaptation
- It's common to experience high or watery output for several months post-surgery as the small intestine adapts to absorb more water.
- Foods high in water or fiber, like fruits and raw vegetables, can increase output, while foods like potatoes, rice, and white bread can help thicken it.
- Keeping a food and output diary can help identify personal triggers.

2. Chewing and Eating Practices
- Chew food thoroughly to aid absorption and prevent blockages.
- Opt for small, frequent meals instead of large ones.

3. Hydration Strategies
- Sip isotonic fluids throughout the day; plain water and sugary drinks can worsen dehydration.
- Flavor water with low-sugar squash or electrolyte powders and limit tea and coffee.
- Drinking a large glass of water before bed can help with overnight absorption.
- Monitor kidney function closely, as dehydration can lead to rehospitalization.
- Some may require nightly IV hydration for adequate fluid intake.

4. Medication Tips
- Loperamide (Imodium) and codeine, taken before meals, can help manage high-output stomas.
- Octreotide injections may be prescribed for very high outputs, though they have potential side effects.
- Other motility drugs may offer limited benefits and can have unpleasant effects.

5. TPN and Liver Protection
- While TPN is crucial, long-term use can affect the liver, so regular liver-function tests are important.
- Work with specialists to gradually reduce reliance on TPN as the bowel adapts.

6. Specialist Follow-Up
- With a short bowel, seek out clinicians experienced in Short-Bowel Syndrome, often found in teaching hospitals.
- A recommended resource is "A Patient’s Guide to Managing Short Bowel Syndrome" by Carol Rees Parrish.

7. Appliances and Leakage Prevention
- High-output pouches can help manage leakage and are easy to clean.
- Consult with stoma nurses for proper fitting and adjustments.

8. Lifestyle and Mindset
- Accept that high output may continue, but many lead active lives by managing hydration, diet, and using the right equipment.
- Continuous learning and support from forums can build confidence and help adapt to the new lifestyle.
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