Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,427 members
Nov 25, 2021

Thanksgiving, Cancer, CKD & Urostomy - Eating Advice?

This topic is about managing life after bladder cancer surgery, specifically dealing with chronic kidney disease (CKD), diet, and living with a urostomy following chemotherapy. The person sharing their experience is celebrating being cancer-free for a year, although they are spending Thanksgiving alone due to COVID precautions. They have managed to prepare a small holiday meal but find they can only eat a little. Their recent blood work is mostly normal, except for low B-12 levels, which are being treated, and a kidney function measure (eGFR) of 35. They were initially diagnosed with stage-4 CKD after surgery but have improved to stage 3B through diet and exercise. They are curious if others with similar experiences have trouble eating and mention a parastomal hernia might be causing discomfort. Despite losing friends to cancer, they feel grateful to be alive.

Here are some pieces of advice and insights shared:

1. It's important to have a good relationship with a nephrologist if you have an ileal conduit/urostomy, as this can increase the risk of kidney infections and chronic kidney issues.

2. Consider discussing Jardiance (empagliflozin) with your nephrologist. Some people have found it helpful even if they are not diabetic. It has been reported to improve kidney function and reduce cardiac symptoms.

3. Maintaining a positive mental attitude and seeking support from the ostomy community can help you move from living "one day at a time" to having a more extended, confident outlook.

4. Long-term survivors of similar conditions share that life can return to normal. They encourage staying active, celebrating milestones, and maintaining a fighting spirit.
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,427 members.

“I mostly read and still feel like I belong.”

“Doctors took notes; they want others to find this website.”

“From midnight blowouts to big wins, there’s always a hand to hold.”

Join Free

Popular Topics

How do you clean the end of your drainable bag?
Viva Las Vegas
Vitamin K2 Production and Testing Without a Colon
Nothing Too Gross, Just a Strange Experience After PET Scan
Metamucil Success: A Simple Suggestion from My New Gastro Doctor
Shiny Skin and Rash Issues with Ostomy Products
UOAA Conference Photos
Flying with an Ostomy: Tips and Recommendations
Ok so I discovered AI music creators
Well hello!

New Topics

Hernia Under Stoma: Recommendations for Inguinal Hernia Belts
73-Year-Old Basketball Player Shares Life After Colon Surgery and Ostomy
UTIs and Colostomy Bags: Seeking Advice
Anyone Here Play Pickleball?
B. Withers-Be Kind 153
Hello friends!
Irritated Skin Near Belly Button
TURNCOAT WITNESSES
2 years
Eating Cauliflower with an Ileostomy: Tips and Experiences
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑