This topic is about a young man who has been living with a permanent ileostomy since 1998 due to a condition called megacolon. Unfortunately, he has been dealing with persistent abscesses and leakage issues, and he is seeking surgical help to address these problems. Here are some insights and advice that might be helpful:

- If you experience leaking from the anus after surgery, it is not typical once the rectal area is fully healed. Persistent discharge could indicate an unhealed sinus, fistula, or infection. It's important to keep pushing your surgical team for a thorough reassessment and a definitive solution.

- Any wounds on the perineum or buttock may ooze until they are fully healed. However, if you have chronic leakage or abscess formation beyond one to two months, it is crucial to seek further investigation and treatment. Don't suffer in silence.

- The output from an ileostomy contains digestive enzymes that can be harsh on the skin around the stoma. To protect your skin:
1. Make sure the Karaya washer (seal) fits snugly around the stoma.
2. Use Stomahesive paste around the washer to create a tight seal and prevent leaks.
3. Change the pouch before the seal erodes, as prolonged wear can lead to skin breakdown.

- If you notice a burning or stinging sensation near the stoma, it could be an early warning of a leak. Change the entire appliance immediately to avoid raw skin and discomfort.

- During the early stages or when experiencing issues, always carry a complete emergency change kit with you.

- Mini plastic "shower-cap" style bowl covers, or homemade fabric versions, can be worn over the pouch to keep it supported and out of the way when needed.

- Ensure you get adequate rest, stay properly hydrated, and follow a cautious diet to aid healing after surgery.

- Peer support is invaluable. This forum is a safe place to ask any questions about living with an ileostomy and to connect with others who understand what you're going through.