This topic is about someone who had to make a tough decision regarding their health after dealing with complications from ulcerative colitis. They had emergency surgery a year ago due to a perforated colon, which led to most of their colon being removed and an ileostomy being created. However, they still have a small section of the colon left, which has been causing persistent bleeding. After trying infliximab infusions without success, they were given two options by their surgeon: create a J-pouch or remove the remaining colon and have a permanent ostomy. They chose the permanent ostomy and are now waiting for surgery. Here are some insights and advice shared by others:

- Many who have undergone the same surgery to remove the remaining colon report long-term relief from symptoms like urgency and bleeding, and they find traveling easier. They generally have no regrets about their decision.

- It's suggested to advocate with the surgeon or hospital to try and move up the wait-list, especially given the ongoing bleeding and pain.

- When considering a J-pouch versus a permanent ostomy, some who initially tried a J-pouch experienced chronic issues and eventually opted for a permanent ostomy. It's important to be comfortable with your choice, as outcomes can vary. Many people live happily with J-pouches, but it's a personal decision.

- Recovery after a proctectomy can involve significant fatigue for about three weeks. The perineal incision, often referred to as "barbie butt," will be sore for several weeks, and leaning to one side when sitting is common. It's advised to avoid donut cushions, which can pull on the incision, and instead use a flat, soft, or microbead cushion.

- While there was no direct response about severe dry skin, some members noted that overall systemic symptoms often improve once the diseased colon is removed.

- While waiting for surgery, it's helpful to use forums to read about recovery timelines, sitting comfort tips, wound care, and skin management. Gathering this information in advance can help reduce anxiety and assist in planning for supplies, cushions, and time off needed.