This topic is about a person who is considering whether to go ahead with a permanent colectomy after having a temporary ileostomy. The individual has been dealing with Crohn’s colitis for seven years and is now facing a decision that could significantly impact their life. Here’s a breakdown of their situation and some advice from others who have been in similar circumstances:

- The person had a bowel resection and a temporary ileostomy 2 ½ years ago to allow the colon to rest, but unfortunately, the colon has worsened instead of healing. Recent medical examinations have been risky due to perforations.

- They are currently on medications like Humira and long-term Prednisone, which only suppress symptoms. The prolonged use of steroids has led to cataracts and osteopenia, requiring additional medication.

- All of their doctors, including specialists from the Mayo Clinic, recommend a permanent colectomy, suggesting it would end the need for medications and significantly improve their quality of life.

- The individual is hesitant about making a permanent change, especially after initially believing the ileostomy was temporary. Their spouse is supportive, but the decision is ultimately theirs to make. They are seeking advice from others who have faced similar choices.

Here are some insights and advice from others who have been through this:

1. Many people report that opting for a permanent colectomy or ileostomy was the best decision they ever made. It eliminated pain, diarrhea, and the constant need to find a bathroom, allowing them to return to work, travel, and enjoy life more fully without frequent medical visits or medications.

2. After surgery, many stopped taking medications and experienced relief from side effects like steroid-induced osteoporosis or vision changes.

3. Waiting too long can lead to serious health emergencies. Elective surgery when relatively stable is safer than waiting for a crisis.

4. Reversal procedures are rarely successful for those with Crohn’s or ulcerative colitis, and most patients eventually need a permanent stoma.

5. Emotional challenges such as fear, sadness, and depression are common, but talking with a spouse, counselor, or online community can help. Knowing others thrive with a stoma can ease anxiety.

6. There is a learning curve with selecting appliances and caring for a stoma, but it becomes manageable over time. Diets often expand, and gas-producing foods can be managed.

7. Having a supportive spouse can greatly ease the transition and help with body-image concerns.

8. Overall, those who chose colectomy would make the same decision again and encourage moving forward to live life fully rather than just managing symptoms.