Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,431 members
Jul 11, 2010

Post-Surgery Bleeding Concerns After Large Intestine Removal

This topic is about experiencing bleeding and mucus discharge from the rectal stump after having a total colectomy with an ileostomy, which was done to treat ulcerative colitis. The person who shared their experience is noticing small amounts of mucus, which is common, but is also seeing fresh, light-red blood every few days. They are concerned that the remaining rectum or small colon segment might still be inflamed with colitis and are seeking advice since their follow-up appointment isn't until August.

Here are some helpful insights and advice:

1. Don't wait until August for your follow-up. Reach out to your general practitioner, stoma or IBD nurse, or the surgeon's secretary to see if you can get an earlier review or referral.

2. Fresh red blood and mucus are often due to residual ulcerative colitis in the rectal stump. This part is left by surgeons in case a future reversal or J-pouch is desired. The mucosal lining can still ulcerate and bleed.

3. Others have had similar experiences after a subtotal colectomy. Symptoms often improve with rectal medications such as:
- Salofalk (mesalazine) suppositories, 1000 mg, used nightly or every other night.
- Cortifoam Rectal Foam for flare-ups.
- Other mesalazine or steroid suppositories or enemas—consult your doctor for advice.

4. If the bleeding worsens, is accompanied by pain, or becomes heavy, seek urgent medical assessment to rule out hemorrhage, infection, or other issues.

5. Wearing a pad can help manage ongoing mucus or blood loss. Be aware that exercise, like walking or hiking, might increase spotting.

6. Some people have opted for a complete proctectomy, also known as "Barbie butt," and a permanent ileostomy to eliminate persistent ulcerative colitis, urgency, and leakage. This is a more complex operation with specific risks, especially for women, so thorough research is essential before making a decision.

7. The quality and experience of the surgical center are important. Check hospital rankings, seek second opinions, and ensure your rectum is medically quiet before any further surgery. Aggressive medical therapy first is advisable.

8. There is a gastro-surgeon in Augusta, GA, who reportedly offers a rectal "ring" procedure to improve continence after reversal. This might be worth investigating if you're considering restorative surgery.

9. Some people report a better quality of life with a permanent ileostomy compared to dealing with ongoing stump problems or challenging J-pouch function.
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,431 members.

“I mostly read and still feel like I belong.”

“Doctors took notes; they want others to find this website.”

“From midnight blowouts to big wins, there’s always a hand to hold.”

Join Free

Popular Topics

The Elusive Stoma Nurse
Post-Op Proctectomy Cleaning Tips
Saturday Night at the Bodega
Having Good Luck Finally With Leaks
Hobbies
Hello
Hiking Tour in Japan with an Ileostomy: My Experience
Nothing Too Gross, Just a Strange Experience After PET Scan
Bicycle or Moped for Post-Surgery Transport and Exercise Advice
Managing In-Flight Bag Emptying for Frequent Travelers

New Topics

B. Withers - Be Kind 148
Hollister 2-Piece System Alternatives
Colostomy Reversal Recovery: What to Expect and Personal Experiences
Images
Saturday Night at the Bodega
Understanding Diversion Proctitis with a Permanent Ostomy
blank space
THE DRY WASH
Ostoform FlowMax Experiences and Reviews
Post-Surgical Neuropathic Pain Around Stoma: Seeking Advice
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑