This topic is about a new ostomate who is feeling concerned about changes in their colostomy, particularly its length and recent behavior. They are seeking advice on whether these changes are normal or if they should seek medical attention. Here are some helpful insights and advice shared by others:
1. It's important to contact a stoma or ostomy nurse as soon as possible for an assessment. They can help determine if the changes in your stoma are within normal limits and suggest ways to manage it.
2. Many people recognize the description as a possible prolapse.
- Minor prolapses can sometimes be managed without surgery if the stoma is functioning well, the skin is protected, and there is no pain.
- Make sure to get clear answers from medical staff and keep asking questions until you feel satisfied with the information.
3. Opinions on surgery can vary:
- Some healthcare professionals suggest leaving a functioning prolapse alone to avoid additional surgeries.
- Others may recommend surgical repair, especially if you experience pain, skin damage, hernia, or if it affects your lifestyle.
4. If local specialists are not providing the help you need, consider seeking a second opinion. Teaching hospitals or surgeons with experience in colorectal or ostomy care might offer reconstructive surgery and hernia repair with good outcomes.
5. For non-surgical adjustments, consider increasing the size of your wafer/flange and pouch to accommodate a longer or thicker stoma. This can help prevent constriction and leakage.