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41,427 members
Mar 11, 2011

Living with Ostomy Drains and Hernias: My Journey

This topic is about managing life with an ostomy, particularly when dealing with high output, a large incisional hernia, and limited mobility after multiple surgeries. The person sharing their experience is facing several challenges, including frequent emptying of their ostomy pouch, a large hernia, and limited mobility due to past surgeries. They are also dealing with diverticulosis and a draining fistula, which can be quite uncomfortable and isolating, especially during the winter months. Here are some pieces of advice and insights that might help:

1. Emotional Support:
- Connect with others who have similar experiences to share support and encouragement.
- Look forward to better weather and the opportunities it brings for getting outside.

2. Mobility and Independence:
- Consider using a mobility scooter to reduce reliance on others for transportation and to minimize the risk of falls.
- Continue using an abdominal or hernia belt, as it can provide support for weakened muscles and the back.

3. Reducing High Output:
- Talk to a doctor about prescription medications like Codeine Phosphate, which can slow down gut movement and help the bowel absorb more fluid. These should be taken 30-60 minutes before meals.
- Try non-drug options by eating foods that thicken output, such as ripe bananas, marshmallows, potato chips, and rice. Chew food thoroughly.
- If the output in the pouch is watery, adding a few mini marshmallows can help thicken it.

4. Appliance Solutions:
- Request free samples of overnight or high-output pouches from companies like ConvaTec and Coloplast. These larger bags can be easily switched with regular ones when needed.

5. Cautions:
- When trying to slow down output, work closely with medical professionals to avoid issues like excessive constipation or blockages.

These suggestions aim to help manage the physical and emotional aspects of living with an ostomy, especially when dealing with additional health challenges.
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