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Where Everybody Understands You
41,430 members
Nov 17, 2010

Excited to Join and Share My Journey with a Colostomy

This topic is about a woman who has been living with a colostomy since 2007 due to congenital bowel issues. Recently, she discovered that an incisional hernia has grown and is looping around her colon, which means she will need a complex surgery. Her surgeon has mentioned that there is a higher risk of infection because of the stoma, but the surgery is still considered possible and is likely to happen after the holidays. She has joined a community to seek advice and support from others who have experienced similar challenges.

Here are some pieces of advice and insights shared by the community:

1. The community is welcoming and reassuring, providing a supportive environment where people with ostomies can feel they belong.

2. One member shared their experience of having multiple hernias. They have undergone three hernia repairs and currently have two new hernias, one of which is large and wrapped around the small intestine. Their surgeon has advised that another operation would be life-threatening unless there is an emergency due to pain or obstruction. In the meantime, they:
- Strictly limit physical activity to prevent further complications.
- Eat cautiously to avoid triggering any obstruction.
- Live with ongoing anxiety about potential complications.

These insights highlight the importance of community support and careful management of physical activities and diet for those dealing with colostomy-related hernias.
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