Facing an ileostomy can be a daunting experience, especially when it's due to diverticular disease spreading throughout the large bowel. If you're feeling worried about this upcoming change, you're not alone, and there are ways to find reassurance and support.

Here are some helpful insights and advice from others who have been through similar experiences:

1. Many people have found that after the surgery, once the diseased bowel was removed and a permanent ileostomy was created, they experienced significant improvements. Pain, anemia, and flare-ups of Crohn’s or colitis often disappeared, leading to better overall health and increased energy.

2. Connecting with others who have ileostomies can be incredibly beneficial. Whether through online forums or local support groups, learning from their experiences can help you know what to expect and build your confidence.

3. Educating yourself is key. Don't hesitate to ask your doctors, nurses, and stoma therapists any questions you have. Reading reliable resources about diverticular disease and ileostomy care can also be very helpful.

4. With an ileostomy, it's important to stay hydrated, as you may lose more fluids. Make sure to drink frequently throughout the day.

5. When it comes to diet, it might take some trial and error to figure out which foods your body tolerates well and which ones cause issues. Keep track and adjust your diet accordingly.

6. Emotional support is crucial. If you're feeling fearful or depressed, talk openly with your healthcare providers. Counseling or peer support can also be very beneficial.

7. Remember that for many, the surgery is a life-saving step. It can prevent serious complications like kidney failure or rectal cancer and allow you to return to normal activities, including travel, work, and spending time with family.