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41,411 members
Sep 29, 2011

Urostomy Crystals

This topic is about someone who has had a urostomy for many years and is dealing with a painful issue: crystal build-up around the stoma. Despite trying a recommended treatment, the problem persists, and they are looking for other solutions or advice from people who might have faced similar challenges.

Here are some key points and insights shared:

1. The person has been using white vinegar to soak and cleanse the area around the stoma for six months, as advised by a nurse, but hasn't seen any improvement.

2. The crystals are causing so much discomfort that they remove the pouch at night to relieve the pain.

3. They have already adjusted their diet to avoid foods and drinks with citric acid, hoping it might help.

4. After trying white vinegar, they also experimented with apple-cider vinegar, but unfortunately, it didn't make a difference either.

5. A community member suggested trying apple-cider vinegar, but the person confirmed it was not effective for them.

The person is reaching out to others for any alternative solutions or shared experiences that might help alleviate the issue.
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