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41,438 members
Oct 10, 2011

Avoided Surgery and Considering a Reversal!

This topic is about someone considering an ileostomy reversal after a surgery was unexpectedly cancelled. The person had a severe bowel blockage that led to a hospital stay, but just before a new ileostomy was to be created, their existing stoma began working again. Now, they are thinking about a full reversal, which involves creating a J-pouch.

- A rectal biopsy taken six months later showed indeterminate ulcerative colitis (IUC).
- The risk of failure for a typical ulcerative colitis reversal is about 10%, but for IUC, it is 25%.
- Despite the higher risk, the person has decided to go ahead with the reversal and is on a waiting list.
- They feel very nervous and are looking into other people's experiences.

Additional concerns include:

- They have had 5–6 previous blockages, all requiring hospital stays and IV treatment.
- They worry about what foods or behaviors might trigger blockages and the possibility of the pouch leaking or the appliance "bursting."

Some advice and insights shared by others include:

1. Each person's outcome is unique, and success rates are just guidelines. Some people would choose a reversal immediately if given the chance.
2. Blockages can sometimes resolve on their own, but they are an unpredictable risk when living without a colon.
3. If you feel well with your current ostomy, consider the potential benefits of a reversal against the risk of complications. One person shared that they became very ill a month after their J-pouch was constructed and regretted the decision.
See full discusison
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