This topic is about someone who has been living with an ileostomy for 20 years and is exploring new ostomy systems and support garments to improve their experience. They have faced challenges with leaks and skin irritation and are seeking advice on different products and techniques. Here are some helpful insights and advice shared by others:
1. Convex vs. Flat Systems
- Many people find that a convex flange or pouch can help prevent leaks, especially if the stoma is retracted or changes shape. Some recommended brands include Coloplast, Dansac, Hollister, and ConvaTec.
2. One-Piece vs. Two-Piece Wear Time
- Some users are comfortable wearing a convex one-piece system for 2 to 5 days, while others prefer changing daily for freshness. If the seal is intact and the skin is healthy, frequent changes are not necessary. Some have reported getting over 5 days of wear without leaks.
3. Sample Programs
- It's a good idea to try free samples from different manufacturers to find the best fit. Coloplast offers samples, including pouches and deodorant, with a quick turnaround time.
4. Skin Protection & Leak Prevention
- Commonly used products include barrier wipes, stoma powder, waterproof tape for extra security, and pouch deodorant. Rinsing the pouch with water can help reduce odor and extend its life.
5. Support Garments
- High-waisted Comfizz boxers are popular for reducing ballooning and providing support. Other options include lower-rise knickers or unisex boxers, depending on personal comfort.
6. Activity and Stoma Changes
- The stoma may expand with prolonged standing, lifting, or strenuous activity. If it protrudes excessively, it might be a sign to rest or reduce activity to prevent prolapse or hernia recurrence.
7. Hernia Repair Experiences
- Mesh reinforcement is common in hernia repairs, and open surgery may be needed if there are adhesions. After healing, many return to their usual pouching systems.
8. General Encouragement
- Long-term ostomates emphasize the importance of experimenting with different brands and accessories. Peer support can significantly enhance quality of life and boost confidence in social and travel situations.
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