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41,411 members
Mar 27, 2014

You take the good, you take the bad...

Living with an ostomy can bring about a mix of unexpected positives and challenges. People who have undergone this surgery often find themselves navigating a new way of life, and sharing these experiences can be both enlightening and comforting. Here are some insights and advice from those who have been there:

- You can still enjoy vigorous sports. For instance, one person continued playing rugby despite others' doubts.
- A wonderful social benefit is the strong friendships many form within the ostomy community.
- Simply being alive and healthy after surgery is a significant positive that many appreciate.
- Humor can be a great ally. Phrases like “I damn near shit my shirt” or playfully blaming unexpected gas noises on someone else can help ease awkward situations.

Everyday challenges include:
- The pouch can sometimes make audible gas noises at inconvenient times.
- First meetings after surgery might feel awkward if people’s eyes are drawn to the pouch.
- Finding clothes or shoes that match well with the ostomy bag can be tricky.
- There might be perceived limitations on certain jobs that emphasize physical appearance.

Everyday positives include:
- Many people find they can still enjoy foods like corn on the cob without any issues, though this varies from person to person.
- A renewed sense of purpose or faith, such as feeling that “God isn’t finished with me yet,” can provide emotional strength.

An open question that remains is whether a daily teaspoon of apple-cider vinegar is too acidic for those with an ileostomy.
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