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Jul 04, 2015

Seeking Support and Guidance for Colonic Inertia and Pelvic Floor Dysfunction

This topic is about a young woman named Sami who has been dealing with severe constipation due to colonic inertia and pelvic floor dysfunction. After trying various treatments and undergoing a gastric bypass, she is now considering a diverting loop ileostomy to improve her quality of life. Here are some helpful insights and advice shared by others who have been through similar experiences:

1. General Reassurance & Shared Experience
- Many people with long-term experience of ileostomy or colostomy report significant improvements in health and freedom after surgery. They encourage Sami, emphasizing that her youth and positive attitude are important.
- The first few months post-surgery can be challenging, but life should feel much better by the holiday season.

2. Hydration & Dehydration Prevention
- It's important to drink fluids consistently. Some people use doctor-prescribed electrolyte solutions or medications to manage output.
- Be aware of the risk of kidney stones and take early action to prevent them.

3. Product & Supply Tips
- Experiment with different brands and sizes of ostomy products to find what works best for you.
- The Coloplast two-piece “click/lock” system is recommended for its security.
- Odor-control drops, sprays, and pouch deodorants can boost social confidence.

4. Professional Support
- Meet with a certified wound-ostomy-continence (WOC) nurse before and after surgery for stoma site marking, education, and troubleshooting.
- Consider attending the United Ostomy Associations of America National Conference to connect with peers and explore products.

5. Education & Resources
- Read the memoir “Stanley and Me Make Three” for insights from a new ostomate's perspective.
- Visit TheAmericanOstomyClub.com for recovery tips and community support.

6. Surgical & Medical Considerations
- It's advisable to get at least two independent surgical opinions to confirm the best procedure and ensure the surgeon's expertise.
- One person suggests checking for cystic fibrosis-related gene issues, as they can mimic motility disorders.

7. Psychosocial Coping
- It's normal to have a “love–hate” relationship with the ostomy appliance initially, but confidence will grow over time.
- Humor can be a great coping tool; one person shared a story about using a remote-controlled “fart machine” to lighten the mood after surgery.

8. Lifestyle Outlook
- Many people with ostomies travel the world and maintain active professional lives.
- Successful relationships and even marriage are possible after ostomy surgery, showing that a normal life is attainable.

9. Final Encouragement
- Focus on short-term recovery goals. The long-term benefits of being free from pain, laxatives, and social isolation make the journey worthwhile.
See full discusison
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