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Where Everybody Understands You
41,431 members
Aug 06, 2015

The eyes have it

This topic is about handling curious stares and conversations when someone has a colostomy. It all started when a host, who has a colostomy, noticed a guest at her British afternoon tea party staring at her mid-section. The host found it amusing and wondered if others with ostomies have had similar experiences. She treats her situation with humor and even hoped for a loud noise from her stoma to lighten the mood.

Here are some helpful insights and advice shared by others:

1. Casual curiosity is common. Many people report that once others learn about their ostomy, they tend to glance at their abdomen. It's something that often happens.

2. Being open can help. Some suggest sharing information about the ostomy, explaining how it works, or even showing it if the situation feels right. Educating others can remove the mystery and reduce staring.

3. Humor is a great tool. Making jokes, light comments, or even playfully showing the pouch in group photos can ease awkwardness and help raise awareness.

4. Personal boundaries are important. While some people are open about their ostomy, others prefer to keep it private, sharing only with close family and partners. It's important to do what feels comfortable for you.

5. Reframe perceptions. Remind others that the bag means you used to be ill, not that you are ill now. One creative idea is a T-shirt slogan: “I don’t wear this bag because I’m unwell; I wear it because I used to be unwell.”

6. Confidence is key. Wearing the pouch confidently shows others that you are fine and capable of doing everything they can do.

7. Consider advocacy. Participating in public events with awareness slogans or using humor at work to gain small favors are some ways to advocate and raise awareness.
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