Living with an ostomy after dealing with ulcerative colitis and undergoing multiple surgeries can be quite a journey. Here's a story of someone who has been through it and some insights that might be helpful.

- The journey began in 2002 with ulcerative colitis, leading to frequent flare-ups and hospital visits.
- Various medications were tried, and even a move to different states (Florida and Massachusetts) was attempted to reduce stress, but nothing seemed to work.
- Family dynamics became strained when a sister asked for a move-out during a severe flare-up.
- A move to Maine brought quicker medical attention, where a primary doctor and gastroenterologist discovered extensive ulcers during a colonoscopy.
- In 2005, a decision was made to undergo a colectomy. The pre-surgery hospital stay, meant to last a week for vitamin rebuilding and addressing low blood count, extended to six weeks due to initial stoma issues.
- After discharge, a return to the ER was necessary due to severe abdominal distention, leading to another hospital stay until the stoma began functioning.
- Post-surgery challenges included ongoing rectal bleeding and a parastomal hernia.
- In 2006, another surgery was performed to move the stoma to the left side, close the rectum, and repair an umbilical hernia.
- As of 2015, health has improved overall, but there are still struggles with hydration, type 2 diabetes, and other conditions, with most care managed independently.
- There is a feeling that family members see the illness as a way to seek attention, which is hurtful.
- A "one-and-a-quarter-pound" pouch system is used, with a preference for Cymed ostomy pouches.
- Currently single and seeking friendship and support.

Here are some pieces of advice and insights:

1. Sometimes, family members may not fully understand the challenges of living with a chronic illness and might dismiss it as attention-seeking. It's important to recognize this as a lack of understanding rather than intentional hurtfulness.
2. Online communities for ostomy patients can be a great source of support and a place to connect with others who have similar experiences.