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Jul 22, 2016

It's a Trip

Adjusting to life with a new colostomy can be a big change, especially after an emergency surgery. It's understandable to feel a bit overwhelmed, but there are many ways to make this transition smoother and more comfortable. Here are some helpful tips and insights to consider:

1. **Odor Control**:
- You can add a small amount of mouthwash or aftershave to your pouch for a fresh scent, but be careful to avoid alcohol-based products on the stoma.
- Try commercial deodorant drops or sachet liners, which are often available as free samples from manufacturers.

2. **Alternatives to Paste**:
- Barrier rings, also known as washers, can be a cleaner and more effective option than paste for preventing leaks.
- If you prefer paste, apply it in a very thin layer to avoid stickiness and improve adhesion.

3. **Changing Frequency and Adhesion**:
- The frequency of changing your wafer can vary from every day to once a week. Find what works best for your skin.
- Warming the wafer with a hair-dryer and pressing it firmly for a couple of minutes can help improve the seal.
- Use spray adhesive remover to make wafer removal easier and gentler on sensitive skin.

4. **Cutting the Wafer**:
- Trace your stoma size on the backing paper or use a template for accuracy. Suppliers can also pre-cut wafers if you provide the exact measurement.
- Re-measure your stoma periodically, as its size can change in the first few months.

5. **Product and Supply Sources**:
- Explore different brands like Coloplast, Convatec, Hollister, and others for free samples to compare products.
- Websites like locostmedicalsupply.com offer a variety of products, including small-capacity pouches with quick shipping options.

6. **Clothing and Belt Line Issues**:
- Consider wearing higher-waist or stretchy pants, maternity-style waistbands, or using ostomy wraps to keep the pouch comfortable and reduce tugging.

7. **Diet and Blockages**:
- Be cautious with high-fiber foods like nuts, seeds, and raw vegetables until you know how your body reacts. Reintroduce them gradually.
- Keep stool softeners or laxatives handy to prevent blockages, especially before and after any potential reversal surgery.

8. **Finding Professional and Peer Support**:
- Larger hospitals often have certified wound-ostomy-continence nurses. Ask your surgeon for a referral.
- The United Ostomy Associations of America website can help you find local support groups.
- Online resources like YouTube channels by experienced ostomates and nurses can provide practical advice and demonstrations.

9. **Surgery and Reversal Considerations**:
- Discuss the potential risks and benefits of a reversal with your surgeon, as it can be more complex due to scar tissue.
- If you decide to proceed, plan for extra recovery time and be prepared for possible blockages.

10. **General Mindset**:
- The early months are a time for trial and error. Don't hesitate to try different products and brands until you find what works best for you. Request samples and keep experimenting until you're comfortable and leak-free.
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