This topic is about a personal journey of undergoing bladder removal surgery due to Interstitial Cystitis, a condition that causes severe bladder pain and frequent urination. The story highlights the challenges and triumphs experienced during surgery, recovery, and adapting to life with a urostomy bag. Here are some insights and advice shared from this experience:

1. After the bladder removal surgery, there was immediate relief from the constant bladder pain, confirming the decision was right despite the challenges faced.

2. The hospital stay lasted six days, and there were some complications, including a pelvic abscess that required a PICC line and four weeks of IV antibiotics.

3. During surgery, a suspicious appendix was also removed, which turned out to have contained appendiceal cancer, but no further treatment was needed.

4. A year after surgery, some symptoms of Interstitial Cystitis returned, but without the overwhelming need to urinate frequently.

5. Living with a urostomy bag has become a part of life, and the originator feels no shame about it, encouraging others to embrace their stoma and even decorate their bags if it helps.

6. The experience taught the importance of self-advocacy and educating others to reduce stigma around ostomies.

7. Modern ostomy pouches are discreet, and most people won't notice them unless informed or if a leak occurs.

8. Over time, living with an ostomy generally becomes easier as experience builds confidence.

9. Sharing positive stories and maintaining a good attitude can help both you and others adjust emotionally to life with an ostomy.

10. It's beneficial to request free samples from various supply companies, as new products are frequently introduced. Insurance usually covers standard supplies, and trying different options can help find the best fit.

11. Engaging with supportive communities and having honest discussions can help counter social stigma and cruelty.