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41,411 members
Jun 04, 2023

Considering a Colostomy for Bowel Urgency - Seeking Advice

This topic is about a 55-year-old person who is dealing with severe bowel urgency after a sacral nerve implant did not work as hoped. The medical team has suggested two options: a permanent colostomy or using absorbent pads for life. Since the condition isn't life-threatening, the person is unsure about what to do and is seeking advice from others who might have faced a similar situation.

Here are some insights and advice shared by others:

- One person shared their experience of choosing a stoma after a similar situation with a sacral nerve implant failure and anal prolapse. Although they were initially hesitant, they found managing the stoma much easier and less painful than dealing with incontinence.

- Many people noted that having a colostomy, or in one case an ileostomy after a total colectomy, significantly improved their quality of life. It allowed them to move freely and reduced the anxiety that came with constant urgency.

- Planning ahead can be beneficial. Deciding to have the surgery electively, rather than waiting for an emergency, can lead to a better recovery. One person mentioned that their surgeon had already prepared a surgical plan once it was clear that their colon would not improve.

- There is a learning curve involved, but most people become comfortable with ostomy care relatively quickly.

- Several members offered clear encouragement, saying things like, "Go for the stoma—you won’t regret it," highlighting their satisfaction with the decision to have the surgery.
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