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Jul 04, 2023

Considering J-Pouch Surgery - Experiences and Expectations

The topic at hand is about someone who had their colon removed and is now considering whether to go through with J-pouch surgery. They are seeking advice and personal experiences from others who have been in a similar situation to help them make an informed decision.

Here are some insights and advice shared by others:

1. For detailed information, you can explore the forum's resources. Go to "Collections" at the top-right of the site, open "Premium Content," and scroll down to the "J-pouch" section for comprehensive background information.

2. One person shared their long-term experience with a J-pouch, having lived with it for 18 years due to ulcerative colitis. They faced ongoing issues with urgency and nighttime accidents.

3. In 2021, they opted for a permanent ileostomy, which involved closing the anus and creating a stoma. This change significantly improved their quality of life, as they no longer needed to constantly search for toilets and experienced minimal leaks, only a couple over two years.

4. Their routine involves changing the ostomy appliance twice a week, on Fridays and Mondays, with each change taking about 5 minutes.

5. They did develop a parastomal hernia, which was surgically repaired a year ago. Now, they describe their life as "100% fantastic."

6. They expressed that they wish they had chosen the ileostomy from the start but noted that if a J-pouch doesn't work out, it can still be converted to a stoma later on.
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