This topic is about living with an ostomy for over 50 years, sharing experiences of gratitude, regrets, and lessons learned along the way. The originator had an ileostomy at the age of 12 due to ulcerative colitis. While the surgery was physically successful, there were significant emotional and psychological challenges. Here are some insights and advice from this long journey:

- The originator regrets not being involved in treatment decisions, as procedures were done without explanation or consent, leading to feelings of helplessness.
- Waking up with an ostomy without prior information or demonstration was a shock.
- Some medical interventions were later deemed unnecessary, contributing to PTSD.
- Psychological support was lacking, with inadequate therapy and no post-surgery counseling offered.

Despite these challenges, there are positive aspects and advice for others:

1. A good quality of life is achievable long-term. Many people with decades of ostomy experience have fulfilling lives, including marriage, children, work, and travel, with very few public accidents.
2. Education gaps still exist, so it's important for patients to demand thorough pre- and post-surgical education and written resources.
3. Expect a learning curve. Anesthesia effects, hurried nursing, and trial-and-error with pouching are common, so patience and experimentation are key.
4. Psychological support is crucial. Many experience lasting trauma, so ongoing therapy, appropriate medications, and peer support groups can be very helpful.
5. Be kind to yourself and maintain a positive mindset. Embrace both good and bad moments with self-compassion.
6. Modern appliance technology has greatly improved, making daily management easier compared to earlier systems.
7. Dietary management can help. Some avoid raw fruits and vegetables, except bananas, to reduce blockages and leaks.
8. There are continent options like the Kock pouch, which can provide emotional relief, though they require catheterization. Experimental options like TIES and BCID-modified J-pouch exist but are not suitable for everyone.
9. Surgery timing has changed. In the past, surgery often happened before modern drug treatments, which, while traumatic, spared some from long-term medication side effects.
10. Accidents are rare and usually discreet, with many reporting only a few incidents over several decades.
11. Keep realistic expectations. Even with preparation, many are emotionally unprepared for life with an ostomy, and ongoing adaptation is normal.