This topic is about managing stoma care when you have painful, low-dexterity hands. It highlights the difficulties faced during the process and shares some advice and insights from others who understand these challenges.
- Handling materials like paper, cloth, plastic bags, and even water can be painful, making it hard to grip and use the necessary supplies.
- Cleaning the stoma with water is too painful, so using gauze and a spray cleanser is a less painful alternative.
- Disposing of soiled pouches involves placing them in a small bag before sealing them in a larger trash bag, but tying and untying these bags can be painful.
- Using an Eakin Cohesive® Seal is necessary, but molding it requires finger strength and dexterity, which can be challenging. Sometimes, two rings are needed for extra security.
- Aligning the ring with the wafer and stoma is a slow and awkward process, and dropping items is a common issue.
- Flange-extenders help with leakage protection but require more dexterity during application.
- Because the output can be unpredictable, it's often necessary to wait to eat until the change is complete and clothing is back on.
Advice and insights from others include offering empathy and recognizing that those dealing with a stoma and additional physical limitations are seen as "heroes and warriors," acknowledging the humbling nature of these compounded challenges.
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