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Aug 26, 2024

Is It Normal for My Stoma to Keep Sinking In?

The topic at hand is about dealing with a retracted ileostomy stoma, which is when the stoma starts to sink inward. This can make it challenging to maintain a good seal with the appliance, and there is a concern that it might eventually become impossible to manage. Here are some helpful insights and advice for managing this situation:

1. Consider scheduling an appointment with your surgeon or stoma care team. A stoma that is persistently flat or retracting can become difficult to manage, especially with an ileostomy.

2. Even if you are not experiencing leaks yet, a consultation can provide peace of mind and allow you to discuss the possibility of surgical revision if needed.

3. Weight gain or a developing parastomal hernia can make a stoma appear retracted. Keep an eye on the stoma's profile throughout the day and over several days to determine if it's true retraction or changes in abdominal contour.

4. If you can still achieve a reliable seal and have no skin issues, you might choose to continue as is, but stay vigilant for any changes.

5. For managing low-profile or retracted stomas, consider using a convex system. Many people have found success with generic convex wafers combined with a moldable seal.

6. A specific product that has been mentioned is the ConvaTec ActiveLife hard convex pouch (one-piece), which is noted for helping to push a flat stoma outward.

7. Surgical revision experiences vary. One person shared that they had an overnight hospital stay and returned to work in four days after a revision that involved enlarging the stoma opening and pulling more bowel through. This solved issues with constant leakage and skin breakdown and was easier than previous major surgeries.

8. Personal experiences differ: some people manage well with an almost skin-level stoma using convex appliances, while others find a retracting stoma very difficult to manage until it is refashioned.

9. If you experience recurrent or intermittent retraction, frequent leaks, or skin damage, these are strong indicators to seek medical evaluation.
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