This topic is about someone living in Ashland, Kentucky, who is looking to connect with others in the Kentucky-Ohio-West Virginia tri-state area who also have an ileostomy. They are hoping to find friends who understand what it's like to live with an ileostomy and are inviting people to connect with them on social media.
Here are some helpful insights and advice shared in the discussion:
1. The main goal is to make new friends who understand the challenges of living with an ileostomy.
2. The person has had two ileostomies. The first one was reversed in 2023, but due to complications, a new ileostomy was placed on September 11, 2024. The first stoma was problematic because it sat below skin level, but the current one protrudes and functions better.
3. They prefer using Coloplast bags over other brands.
4. Finding local connections can be challenging, so it's important to be patient and keep reaching out. Fellow ostomates might eventually connect with you in your area.
5. It might be helpful to ask your hospital, stoma nurse, or local medical center about any in-person ostomy support groups.
6. Even if there aren't many local members, online forums can be a great place to share experiences, ask questions, or express frustrations.
7. Regular engagement on online boards can help build strong virtual friendships and support networks.
8. Another person with six years of experience shared that their planned reversal failed, resulting in a permanent stoma, and reassured that long-term adjustment is possible.
9. A member with five years of experience with an ileostomy recommends using Coloplast products exclusively and highlights their excellent customer service. They suggest contacting Coloplast representatives for customized product solutions, especially for issues like leaks.
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