Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,413 members
Oct 20, 2024

Seeking Ileostomy Friends in the Tri-State Area

This topic is about someone living in Ashland, Kentucky, who is looking to connect with others in the Kentucky-Ohio-West Virginia tri-state area who also have an ileostomy. They are hoping to find friends who understand what it's like to live with an ileostomy and are inviting people to connect with them on social media.

Here are some helpful insights and advice shared in the discussion:

1. The main goal is to make new friends who understand the challenges of living with an ileostomy.

2. The person has had two ileostomies. The first one was reversed in 2023, but due to complications, a new ileostomy was placed on September 11, 2024. The first stoma was problematic because it sat below skin level, but the current one protrudes and functions better.

3. They prefer using Coloplast bags over other brands.

4. Finding local connections can be challenging, so it's important to be patient and keep reaching out. Fellow ostomates might eventually connect with you in your area.

5. It might be helpful to ask your hospital, stoma nurse, or local medical center about any in-person ostomy support groups.

6. Even if there aren't many local members, online forums can be a great place to share experiences, ask questions, or express frustrations.

7. Regular engagement on online boards can help build strong virtual friendships and support networks.

8. Another person with six years of experience shared that their planned reversal failed, resulting in a permanent stoma, and reassured that long-term adjustment is possible.

9. A member with five years of experience with an ileostomy recommends using Coloplast products exclusively and highlights their excellent customer service. They suggest contacting Coloplast representatives for customized product solutions, especially for issues like leaks.
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,413 members.

“Every morning with my coffee, I read here and feel wrapped in warmth - I hardly post, but it still feels like family.”

“Our oncologist literally wrote down the link; they said more patients need this website.”

“This place pulled me out of the dark. I went from lurking to living again.”

“At 3am, someone’s awake somewhere in the world. I’m never alone here.”

Join Free

Popular Topics

Short hair or long hair
Reducing Stoma Size Suggestions
Close Call
Cohesive Ring Swelling Around Stoma: Need Advice
Meanwhile, back at the beach
So first training for 10k done.
Hellooooooo 👋🏻
Living with a New Colostomy and Old Urostomy: Tips and Advice
Help Needed: Leaking Issues with Stomahesive Paste
Travel Tips for Ostomates Visiting Switzerland

New Topics

Erectile Dysfunction
Osteoporosis Diagnosis After 15 Years with an Ileostomy: Seeking Advice
Reversal
WINTER WEAR
Dealing with Body Odor: Tips and Solutions
Important information regarding proposed changes to how Medicare/Medicaid will treat ostomy supplies.
Metamucil Success: A Simple Suggestion from My New Gastro Doctor
SLIMY, STINKING, BLOOD AND MUCUS
Pancaking Issues with Ileostomy Bag at Night
That was then, this is now....
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑